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So now what do I do? (Can't use Meds that work)

  • By SuperAl

    J’adore my Occipital Nerve Blocks!! But now I am brokenhearted because the successful little combo we finally had working, controlling all of my migraine pain as well as it’s radiating areas, I can NO LONGER HAVE. 🙁

    I have a stimulator, get Botox injections and finally for the last four months have gotten an occipital nerve block and I have had a taste of what it is like to get my life back after more than 10 years. It has been AMAZING!

    However, I cannot continue to take the steroids in the occipital nerve block so often without some truly awful consequences.

    So now what?

    I am absolutely devastated. My Neuro is a wonderful man whom I adore but his bag of tricks is empty. I live close enough to Dallas that I can go to the Medical school there. My good friend and previous Neurologist recommended a super-doper specialist down there so I call to make an appointment(with needed referral) and she is no longer taking new patients. I feel like that was the straw that broke the camels back.

    Yesterday I was just sobbing uncontrollably, unsure how I would stop. (Thankfully daughter needed me) I feel like I am just waiting for the pain to start up again and this time, I won’t have anything to make it stop that doesn’t send me back to my non-life in bed.

    For the rest of my life.

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  • By Nancy Harris Bonk Moderator

    Hi SuperAl,

    Thank you for sharing your story with us and being part of the Migraine.com community discussion forum!

    I am so sorry to hear you are having a rough time, please don’t lose hope. It may feel as if you’ve tried everything out there, but that may not be the case. Believe me, I understand how frustrating migraine can be.

    I did want to mention there are a number of doctors in Texas who are board certified in headache medicine that may be able to help. Being certified in headache medicine is different than being certified in neurology. The thing is neurologists may be fine doctors but have a hard time being experts in one area because they treat so many different disorders such as epilepsy, stroke, multiple sclerosis, Parkinson’s and others. True migraine and headache disorder doctors treat one condition all day, every day – migraine and headache disorders. You can find these expert doctors in Texas this list; http://www.ucns.org/globals/axon/assets/10300.pdf/
    You can read more about how these doctors are different and how to find one in these articles; http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.

    Let me know what you think,
    Nancy

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