I am the Mom of a 16 year old boy who has suffered from migraines since he was very young. He also has Janz Syndrome, which is a form of epilepsy.
We have noticed over the years that every time he gets a migraine he also has a very odd and strong odor to his breath. I can only describe it as a “burning chemical” kind of smell. He says he also can taste it in the back of his throat. It only happens when he has a migraine. The odor is so strong that his entire bedroom will smell like it if he wakes up with a migraine.
I have mentioned this to his neurologists several times but they just dismiss it as not important. Unfortunately, it’s important to my son because it’s very embarrassing for him.
Has anyone else on this forum ever experienced this? Is there a remedy for it (he has good oral hygiene and has tried mouth wash, breath mints & chewing gum, none of which really help)? And is it something I should be concerned about and be more assertive when talking to his doctors about it?