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Strange breath odor with migraine

  • By Lori

    Hello!

    I am the Mom of a 16 year old boy who has suffered from migraines since he was very young. He also has Janz Syndrome, which is a form of epilepsy.

    We have noticed over the years that every time he gets a migraine he also has a very odd and strong odor to his breath. I can only describe it as a “burning chemical” kind of smell. He says he also can taste it in the back of his throat. It only happens when he has a migraine. The odor is so strong that his entire bedroom will smell like it if he wakes up with a migraine.

    I have mentioned this to his neurologists several times but they just dismiss it as not important. Unfortunately, it’s important to my son because it’s very embarrassing for him.

    Has anyone else on this forum ever experienced this? Is there a remedy for it (he has good oral hygiene and has tried mouth wash, breath mints & chewing gum, none of which really help)? And is it something I should be concerned about and be more assertive when talking to his doctors about it?

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  • By Nancy Harris Bonk Moderator

    Hi lmlowery,

    It is disheartening when a medical professional dismisses our concerns. Rather than blowing off our concerns it would be much more helpful to explain what is or isn’t’ happening.

    We can have foul breath during a migraine attack according to Dr.Susan Hutchinson. This has to do with nasal congestion, pain and/or pressure near our sinuses and face. Take a look at this information to read more about it; http://www.achenet.org/resources/sinus_headache_or_migraine/.

    More than likely, when the migraine attack is over, his breath will improve. Does he have medication to stop the migraine process? There are abortive medications approved for adolescents that may be helpful for your son; Maxalt https://migraine.com/migraine-treatment/maxalt/ and Axert https://migraine.com/migraine-treatment/axert/side-effects/.

    You may want to discuss this with the doctor the next time you see him, or give him a call next week to discuss these options.

    Hope This help,

    Nancy

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  • By Ellen H

    I have been experiencing a really bad breath problem since this summer. At first I thought it might be that we tried new medications, or the nerve block, or the temporary electrode implants. All of which failed miserably. I thought maybe the bad breath was a side effect of the medications, and I hoped it would disappear. It hasn’t yet! I noticed, crazily, that when I flossed at night that the breath was exceptionally bad. So…… I tried something. I brush my teeth. Then I floss with dentotape. And then, I brush my teeth a second time with a hot cinnamon tooth paste (just because I like cinnamon) and it seems to help. It isn’t so bad any more. However, I still do not know what caused the odor to appear in the first place: the meds, something new with migraines, or I should really be flossing faithfully everyday, and maybe twice. I will have to ask the neurologist when I see him again in December. I’m kinda of glad you brought this up. It has really been bothering me. Let me know if you find a solution, and I will do the same. Ellen H.

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  • By eli

    Hello i think it is because of a combination of sinusitis and migraine . when you have migraine and sinusitis at the same time this will cause that bad odor in your breath .
    one of my close friends has this problem . he tried to treat her sinusitis . and Unfortunately all of the doctors that she visit , they just said it is a smell that you yourself just feel it . but i know that smell is real and all her classmates deride her for her problem .
    if any body has any solution please just tell us .
    i read an article in this site about this problem
    https://rpsi.ir/en/home/index

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