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Cluster Headaches

Strange migraine

  • By lynn327

    My grandson (26 years old) has been having strange migraines daily for a year now, and doctors can’t figure it out. First thing that happens is he gets very nauseous. That can last from 30 minutes to hours. Then he has a violent sneezes and the nausea goes away. When he sneezes he gets a Charlie horse In the neck. The only way to get it to relax is to pull up on his head. After the sneeze he gets a terrible migraine. Mostly in the temples, but sometimes the whole head. He says it feels like his scalp is on fire. This happens sometimes 5 times a day. He’s been to several kinds of doctors that only want to treat one thing. One wants to treat the stomach, another wants to treat allergies and another wants to treat the migraines. They are all connected. He went 10 days with all symptoms disappearing at the same time, so we know that it is all connected. Has anyone experienced this strange thing that happens to him. Need help. It is impossible to work. Lost his job, car and the will to live. Anyone????

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  • By Nancy Harris Bonk Moderator

    Hi lynn327,

    I’m sorry to hear about your grandson, that’s frustrating. I also realize how frustrating it is to see multiple doctors without definitive answers.

    I wonder if its time to investigate seeing a true migraine/headache expert rather than a general neurologist. It’s not that neurologists aren’t good doctors, rather they have hard time being experts in one area because they treat so many different conditions such as multiple sclerosis, stroke, epilepsy, Parkinson’s and others. A true migraine/headache disorder expert is board certified in headache medicine which is different from being certified in neurology. Let me share information on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.

    I hope you get some answers very soon.
    Nancy

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