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Living with Migraine

they denied me

  • By RockingPink

    I’m 22 and have been diagnosed with serve migraines since before I was 10.. I’ve always been on some kind of meds for it. I have a migraine from the time I get up till it’s bedtime. But here’s why I’m writing…. On Feb 27 a migraine started so I just dealt with it like always. Well here it is Mar 1st and I went to the ER cause this is the worst I’ve ever had. This migraine is off the pain scale to me. But they didn’t do anything for me but give me a pain shot which didn’t help. I’m writing to see if anyone on here knows if the hospital can tell me no for requesting head scans. The last one I had was back when I was like 13. but brain tumors, aneurysms blood clots all that runs in my family and they told me no to the scans can they do that???

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  • By KimberlyAnn

    Someone correct me if I’m wrong, but in the several times I’ve been in to the ER for migraine, they’ve treated the symptoms presented to them with IV pain meds and then released me. Unless it’s the worst pain of your life, signs of trauma, or showing signs of something like a stroke (or something else) it’s not standard procedure to do head scans for migraine treatment in the ER. They only treat what is presented to them unless the Dr on call requests something else.

    Are you being treated by a headache specialist or at least a good neurologist? My neuro has been working with me at finding out what’s the best course of treatment for me. My worst time of the year is winter. I’m in the middle of a winter cycle (a long, never ending migraine that begins in January and doesn’t end until mid-to-late spring. Happens almost every winter. I’ve had an MRI and a couple CT and CAT scans all ordered by my neuro, never in the ER. Make sure you have a good working relationship with your Drs.

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  • By RockingPink

    No my obgyn is the only reason I get migraine pills. Like I put in my post I’ve been having migraines for years and tgos is the worst one of them all. this pain is not right I can’t get any relief at a . O even feel like my brain is going to bust and my eyes pop out

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  • By RockingPink

    And I know I’m dehydrated from not being able to drink anything. I told them too I am very pale my lips are to the point they are busting when I move them and my mom and throat Isaiah dry. I’m so thirsty but still haven’t stopped throwing up whatever I drink and they didn’t give me fluids. They only thing they did was give me pain meds. They didn’t care I was and still am hurting

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  • By Morning

    HI there, I am so sorry you had to go through that. The pain can be so hard for others to see. If you want to get an MRI done to see what is going on, you must ask your Dr to set that appointment up. That is what I did. Also I tried using gravol suppositories to help stop the throwing up. It has to be the gravol suppository type or it won’t stay in long enough to stop or prevent the throwing up. But before you take it make sure it won’t affect any other meds you are on contact a Dr or Pharmacy first. I hope things soon get better for you too!

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  • By Glory

    Unfortunately, I live in a family of chronic migrainers. My son (20) suffers the most and is the one most likely to end up in the ER when the pain gets too awful. His migraines started when he was 8, but were more or less controlled until he hit 18 and his pain level went through the roof.

    Pretty much, the ER does emergency IV therapy and our local hospital has cooperated with us in going to the straight narcotic pain killers instead of the triple therapy (Cogentin, Regulin and I forget the third one(some analgisic, I think)) mandated in Florida, because one of the three in that particular cocktail drops his blood pressure to the point where he is falling down for the next 24 hours.

    Because he is under the care of a neurologist, pain med specialist (which is an utter joke in Florida because he is not dying or has cancer, so forget about getting any relief), psychiatrist and therapist, they do nothing else. However, his neurologist has been very cooperative with ordering MRI, CT, EEG, etc tests. All were negative, so apparently he just inherited the bad gene combo from me.

    I urge you to find a decent neurologist who recognizes the migraine problem. My son was evaluated for any abnormal brain defects through MRI (including aneurysms and Circle of Willis deformities as well as possible epileptic symptoms). Since we had eliminated everything else, it was deemed purely chronic migraine.

    For the nausea/vomiting, three of my family members now use the Zofren (prescription) that you place under your tongue to ingest, which has been a lifesaver for THAT particular symptom. Again, something for you to discuss with your ob/gyn or neurologist (which I hope you find soon!).

    I feel for you and wish I could offer more advice. However, the ER staff generally are not there for diagnostic reasons and unless they have reason to believe you have suffered some “other” calamity, they won’t do tests. Which is actually a good thing for you, since ER charges for any medical testing tend to be at least double the normal rate and you could find yourself suddenly responsible for several thousand dollars worth of tests your insurance company deemed were not **cough**cough** necessary. Been there, done that, got the tee shirt.

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  • By Anonymous

    Hi all thought I would weigh in. Er doctors are lousy for any patient suffering a migraine. The only time they did a scan on me was when I went in with a headache that felt like someone had hit me with a sledgehammer … At that time I did not know it was a migraine although I had all the signs of a migraine . They did do an MRI and a neurologist came in for five minutes ran what seemed liked a pizza cutter over my body and told my parents she’s not having a stroke and left. I left that night with an antidepressant ?!! It wasn’t until months later that I was diagnosed with migraines. So I would recommend if you are unsure it’s a migraine then go to an ER do to but if you know you are a migraine suffer skip the ER and go to an urgent care they are more likely to take you more seriously and provide you with some relief until you’re able to see your doctor. I .recently I was sent to the ER by my PCP for another issue however I had a severe migraine I constantly told the nurses and the doctors I’m have a severe headache they ignored me but had no problem running thousands of dollars in blood tests only to send me home despite the fact I told them I’m uninsured. I left five hours later still in pain. The ones I have encountered have been incompetent at best.

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