I’m 23 and have been living with migraines since I was 11. I suffered with hemiplegic migraines up until the age of 17, had 2 years without, and then migraines returned (not as severe as hemiplegic ones thank god!!).
The only time i feel I have been taken seriously is when I was younger, with pizotifen not having any effect I saw a neuroligist – however all he did was tell me to not eat cheese (not a trigger for me).
I have been to the doctors for migraines 4 times this year so far, with propranolol administered (this worked for a month and now I get migraines daily/every 2 days). The nurse I saw laughed at me when I asked for a referral, saying ‘I don’t think you saw a neurologist, that didnt happen’ so obviously I have lost all confidence with doctors.
At what point is it possible to get a referral? Migraines affect my life almost daily now, im gaining weight from my tablets, my hair is thinning from them. I feel like I have no options! The severity and number of migraines I am getting now is such a sudden increase, with them feeling like they are heading back to hemoplegic – losing vision, not being able to speak well, numbness.
Any advice is really appreciated. Thankyou!