By Joanna Bodner Keymaster
By Joanna Bodner Keymaster
made request for 2 free months via headache specialist. waiting for company to get the injection sent out. hopeful
By Joanna Bodner Keymaster
Sending you positive thoughts & much hope too! Good luck! Be sure to check back in & let us know how things progress.
It has changed my life! I have only had two migraines in the last 5 weeks, and I was chronic for 30 years before that. I just took my second dose last week. Sometimes I feel like my eyes are bothering me a little bit but I can take one Excedrin and it’s gone. This has truly been a miracle for me.
By Joanna Bodner Keymaster
This is truly AMAZING to hear! Wishing you much continued relief! Will you keep us posted? I really hope we continue to hear many, many more of these success stories like yours. Thank you so much for taking a moment to share this with us….we greatly appreciate it! Take good care.
Thank you, Joanna. I still have trouble processing that after everything I have tried and all the misery all these years, that suddenly they’re just gone. I’m a very positive person and I was hopeful that the drug would give me some relief, but this is just incredible.
I will certainly keep you posted!
I’m so happy for you that it helped. Did your doctor prescribe the 70 mg or the 140 mg? I’m doing my first injection today, but just found out it’s only 70 mg. not sure if it will work at this dose. Congrats again!
The stats on this poll are staggering. I would love to see this same poll in about a year or so, hopefully the treatment will be readily available and effective.
The stats are due to insurance refusing to cover the medicine and most ppl being unable to afford the roughly $7,000 yearly cost. Even the patient assistance program from the manufacturer only covers up to $2,700 per year so that doesn’t do anyone any good.
The day it came on the market I called my insurance company to find out If it was going to be covered. The person I spoke to had never even heard of it so he went searching for info. 10 minutes later he came back with a sorry, we aren’t covering it now, we won’t be covering it any time soon and no, sorry, there’s no way to get special approval or dispensation for a drug we don’t have in our database.
Ive called back since then. Nothing has changed. I’ve just become resigned to the fact that even though I’m taking Trokendi, even though I take the maximum of 9 triptan pills a month, even though I go through a full bottle of Excedrin migraine every month in addition to all that I’ll just keep having 10 to 20 migraine days every month forever.
Honestly, having this possible miracle medicine become available and not being able to get it due to cost barriers was the most depressing thing to happen to me since my husband left me for “being too sick all the damn time and spending all his money on doctors and pills”. I kind of wish I had never even heard of it.
Sorry to hear about your experience. The limit of 8-9 Triptans per month is crazy but I know the FDA and most insurance companies do impose that limit. I switched over to DHE-45 injections years ago, which works much better for me, I was having 4-5 Cluster Attacks per day plus Migraines. The DHE comes in 1 ml ampules (little glass containers) and I am able to reduce the recommended dose of 1 ml down to 0.35 ml, which means I can get 3 injections per ampule, allows me to day under the FDA daily maximum and still get relief. My doctor prescribes 30 ampules per month so I can maintain a reserve during those times I don’t need as much. Never know when the manufacturer will run out during shortages, which happens sometimes. Talk to your doctor about it, maybe DHE will be a better alternative?
I will have to ask. I’ve never even heard of that before. I don’t have a headache specialist within 2 hours of where I live so getting treatment of any kind is already difficult. There’s only 1 neurologist close by and he’s booked solid for a year. I’ll ask my regular doctor if he’s heard of DHE injections. I’m willing to try anything. Thank you!
That may be why the insurance company is not helping you also. I know the doctors have to do a lot of work on their end (coding, diagnoses) neurologists and migraine specialists know how to battle the insurance companies. I drive 2.5 hors to see my migraine dr and THE NEXT DAY after the FDA approved AMOVIG she was getting me on it. It’s a long way to drive every 6 weeks but it’s such amazing relief!
Unfortunately, I can’t drive sue to other health problems so I have to rely on others, specifically my ex-mother-in-law, to take me everywhere. She’s just no willing to travel that far in a single day to take me to an appointment, mostly bc she has health problems of her own. She’s in her 60s so I can’t really blame her. It’s just the way things are for me.
I’m so sorry for all you’ve been through. The company seems to really want to help people like you. Besides the two month free trial they have something called the bridge program for people whose insurance won’t cover the cost. I’d give them a call and see. The number is 833-246-5708. Good luck!
ChronicallyEverything and Ellen, I’m really sorry to hear about your situations. Have you downloaded and read the Aimovig paperwork available on their website? Because at the bottom of the patient page, there is a section for qualifying for assistance for Aimovig based on income (I have a relative who has a lower income and gets a REALLY expensive drug for another condition for free). I would at least download the form and see what you might qualify for.
Actually no, I haven’t. Thank you so much for letting me know about this! I just looked at the basic information on the website, got all depressed and gave up. That’s why I so love this community and why I am eternally thankful that my ex at least pays to keep my internet on so I can continually have access to you fantastic people! I am going to hit the library Monday (my head is already killing me today and tomorrow is my 3rd of 3 injections in my back and hip to not even come close to helping the pain from 2 slipped discs) so that’s the earliest I can do it, but at least I have something of a plan now.
Thanks again! There’s hope to be had! 💖💖💖
Very sad that we migraine sufferers are not taken serious by the insurance companies. This disease is debilitating, it is a sin that a medication is available but not affordable
I took my first injection a little over 2 weeks ago. So far migraines & Cluster Headaches have been reduced by over one half and even my nerve pain from neuropathy has been reduced. I’ve been chronic with these for 15 years now, not gone completely but reduced which helps.
I did get Thrush in my mouth in the first week possibly caused by the immune system reductions. My doctor gave me Fluconazole 200mg Tablets, which got rid of it within days. I’ll have to see if this is a recurring side effect with other injections going forward.
Keep everyone posted on the long-term as I plan on giving this the full treatment.
I’m delighted it’s working for you! Did you get the 70 mg or 140 mg dose? I’m about to do my first injection and am disappointed that my doctor prescribed the lower dose. Not sure it will help. Congrats again!
I got a dose of 70 mg on 6/15. Because I am 65 and did not reach chronic or transformed migraine until I was 63, I was not part of the group tested in the studies. I was doing OK with my other preventives, Botox, diet, meditation and exercis–getting maybe 2 migraines/week when I took the injection. I was thrilled at first 10 days w/o a migraine and then only a low level migraine. But just a few days after, I got the worst 3 day migraine I had experienced in years. Since then, the migraines are back to every other day so far–still early days. I also got facial itching and a little rash on my face so was concerned about allergy–Zyrtec and Benadryl took care of that. Not even sure if the allergy was due to the injection since it appeared a few days later and never got any worse. So unless the next injection or a higher dose can help me, I am not currently in the success column
I saw my Neuro two weeks ago and completed the forms to have my Aimovig delivered to my house.
He said the pharmaceutical company is holding the strings tight and the local pharmacies will NOT BE CARRYING IT AT THIS TIME.
I filled out a form and my Neuro said the maker is anxious to get it on the market and he reports the co- pay has been approximately $5 for most of his patients.
I can’t wait for it to arrive. For someone who for years, injected DHE IM with a 1 1/2” needle, a delivery method similar to epinephrine seems easy.
CANT WAIT TO GET MY MAILED DOSAGE. There was no discussion with my Neuro,that I remember, about dosage. I wasn’t even aware that it came in different doses and am hoping I’ll be getting the highest dose.
Right now I either get admitted to the hospital, depending on my mental status, or get an out patient IV DHE cocktail for 3-5 days depending on how much I’ve been suffering. In fact, we discussed setting up a monthly infusion for three days.
But alas, we’ve been discussing Aimovig for months now and we’re anticipating it would be available the earliest mid May. I had a regularly scheduled appointment mid June and that’s when I completed the paperwork for home delivery. I’m expecting a miracle package any day.
Good for you and like me after taking DHE injections for years the Aimovig is easy stuff. The 70 mg dosage is the starting one, if after a few months you don’t get enough relief you doctor needs to prescribe the 140 mg dose, which is basically 2 injections of Aimovig. This is a new drug and it will take time to determine the right dosage for everyone and possible side effects. Good luck with it. I started mine on June 15th with good results so far. My migraines have been reduced by over 50% so far, doc said it may take a few months to get complete results.
Thanks for the info on the two doses. I’m disappointed that I got the lower one, but it sounds like that’s standard protocol. Did you get relief with the 70 mg dose?
I’m not familiar with DHE infusions. What are they and more importantly, do they work? I’m entering week 6 of Aimovig and losing hope. Everyone who has posted about it seemed to have gotten almost instant relief. Next month we are trying the higher dose but I need to keep searching for other options. Thanks for posting this list.
My doctor did not discuss different dosages either. Nor did anyone at the Aimovig Ally program. I haven’t tried it yet. I rec’d it from my pain mgmt doc. Want to discuss with my Neuro before proceeding. Still waiting for my 2 month free samples.
I FINALLY got my injection pen this morning. My doctor faxed my info on June 7. Since then I’ve been given the run around every time I call. (I’m doing the free trial.) I know beggars can’t be choosers, but it would have saved me a lot of energy and headache if the company had been honest from the beginning. They finally told me the demand is overwhelming and that’s why it took almost a month to get. So just an FYI for anyone waiting….be patient and don’t get your hopes up until the specialty pharmacy calls with a delivery date. Now that I passed the first hurdle and received it, fingers and toes are crossed that it will help!
Has anyone had success with the 70 mg injection? Just got my pen and am disappointed that my doctor prescribed the lower dose.
I have taken my second month shot about 2-3 weeks ago. I should be getting my third month shot here in a week or two! In the first month I saw a difference in my headache calendar. Aimovig has sliced my migraines and headaches frequency in half as well as the intensity. I used to max out my rescue meds and nausea meds weekly. This month I’ve only taken them one day thus far!!!!
*My neurologist says you can get up to one year of Aimovig FREE if your insurance won’t pay for it, while Novartis is waiting to see how the insurance companies are going to pay, and also pay for Aimovig plus Botox.
She has Aimovig ordered for me, and they are supposed to call me when it is in. (They want to teach you how to use it the first time there at the office.)
She has been giving Aimovig plus Botox!
*There are no contraindications between Botox and Aimovig!
She does feel like the insurance companies will try to pay for one or the other, but not both within a specified time frame.
This medicine was not recommended for me because of my latex allergy. Primary care doctor has referred me to a neurologist (again).
I am hoping for some relief soon because this round of migraine had lasted 20 days.
Oh that sucks. I’m sorry yo hear about the allergy and the 20 day stent. The longest I’ve ever had is 43 days long so I know where you are coming from.
My neurologist and I have filled out the paperwork and sent in to get my first free doses of the drug. We will see how it works (or doesn’t) for me. I will be happy to try it and hopefully not need as many preventatives and triptans to stop the migraines.
texaseve, I’m glad you have the paperwork all filled out! Please keep us posted on how you’re feeling after the first doses. I hope this treatment gives you some much deserved relief. -Sarah (Migraine.com Team Member)
Had the cgrp (aimovig) injection on the 13th of July 2018. I am very hopeful for all of us who suffer from this invisible disability. I have been a chronic migraine sufferer for the past 30 years. I will post again in a couple weeks.
Hi fellow silent sufferers.
I have bee getting (M) as I call them for 31 years. It crept in and destroyed any hope of “career” back then. Mine were always severe. Lying in bed, without moving, sleeping or eating for 4-8 hours with medication. I have had a Hysterectomy and thought” this could help!” It didn’t. I had a severe (M) while in the hospital and the nurse put an IV into a muscle instead of vein.
I could go on and on about these sad stories. But for now, my ONLY medication that has worked Amerge is failing. It is not covered under ANY Insurance since 2015. When a special request was sent by my Dr. to my Medicare Supplement Insurance; it cost $445.00 for 6 pills. (2 headaches for me).
I now order from outside the USA and recently the “government” is trying to close down this one
place for me to afford my medication. I do not know what I will do since I have tried everything, I mean everything
My Dr. told me that it is mostly for tension type, mine are not stress related, so when I was younger and healthier I was willing to try it then. Not now at 73 and dealing with several age related conditions.
I recently had a 10 day (M) with several 2 hour windows as I call them, to function for each day. That enabled me to feed my animal companion and clean up my home a bit.
The vertigo, blurred vision, nausea and other muscle and bone pain just floored me. I became totally hopeless and depressed. Who wouldn’t? I hate when people tell me to think positive. I know, they do not understand.😢
I have another appointment to make with ‘my who knows how many’ Neurologists I have seen. Hoping for him to find a way for me to try CGRP. Having Medicare can hurt me even more. I do not have false hopes, but the “Golden” years for me are more like “Life” in jail.
OK, a Jail, I was able to decorate to accommodate my ill fated (M). But never-the-less a kind of prison.
I used to have many friends and some social life. Now; my life is shopping for food, cooking and freezing it for after the (M) attack. Oh yes, watching as many movies as I can.
Even reading can now trigger one. I used to read a hundred books a year.
I apologize for my venting. But most of you will understand. I hope.👵
I completely understand. I’m 43, a single mom and I can’t work be sure of my migraines and other conditions, but it’s mostly the migraines that mess up my life. They’re so unpredictable, so uncheckable, so invisible to others and I feel like I’m not believed when I say how bad my pain is or how many days I’m bed bound bc of my migraines.
I will always listen to a fellow sufferer vent and complain! I don’t mind it at all. Nobody in my real life wants to hear about my headaches, but online I’ve found that others are willing to listen. I am never going to ignore someone in need of being heard like I’ve been ignored for so long.
I also understand about your Medicare. I have/had/have/had (it’s a complicated process to get and keep it here in texas) Medicaid and the number of doctors who actually accept it are few and far between. I’ve been able to find general practitioners but not a single specialist of any kind within an hour of my rural location will accept Medicaid because they don’t have to. There’s no law saying they must and because there are so many ppl and so few specialists it’s the doctors who are in the position of power here. We patients have no power and no choice. It’s really really sad.
I hope you’re able to get somewhere with your Neuro. I don’t have access to one lol. I’ll keep my fingers crossed that you find relief. 💖
Hi, all.This is my first post. Yesterday my neuro signed me up for Aimovig. She was in a hurry (I was last patient of the day on a Friday) and I didn’t get to ask many questions. When the Aimovig nurse (?) contacts you to arrange to deliver to your house, is that your time to ask questions?
I’m 83 and have had migraines daily since I was in my 30s. I know what started this changed life, it but it’s a long story. (Fortunately I have a wonderful husband; if I didn’t, I’d have left this vale of tears (look how dramatic I’m being!) long ago. Anyway, here’s my first question. People say how many migraines they have weekly or daily. I wake up with one virtually every day and for years and years no one gave me any painkiller, so I had a constant migraine. 24/7. Then I got a good doctor who put me on butalbital w codeine and caffeine, 6 a day, and after a life of hell, I had a perfectly normal life. I believe he saved mine.
But codeine is an opiate. So he, under pressure, I’m sure, cut my codeine in half. So now the headaches are back, but of course not as constantly as before– just half the time.
I’m shocked to hear Aimovig will cost almost $7k a year. Hey, I have family and other expenses, some ongoing, some anticipated that we’re trying to save for (we’re old and can’t stay together in our house forever).
I’ve gone on too long. I’m just distressed and confused. If I took Aimovig and it made my head hurt less of the time . . . for $7k/year? What is the right thing to do?
I don’t believe I can find another doctor who will return me to enough codeine or other painkiller to give me my life back. They will say “rebound headache” even though for many years I had constant agony with zero medication to rebound from.
This is awfully disorganized. I think I don’t know what I’m asking, exactly.
ER, go online to the Aimovig website. There is a program called Aimovig Ally where eventually a company representative will patiently give you the information you need if you decide you want to use this once a month. The first 2 months are free courtesy of the company. That may mean 2 free 70 mg doses or 2 free 140 mg doses, depending on what your Dr prescribes. I would expect that he would prescribe the lower dose based on your age, since they did not do much testing in older population (I am 65 and have taken it 2 mo w/o a problem and with about a 50% drop in migraines but I am still on other preventives, and watch my diet, etc). If you have private insurance, it is possible that you will qualify for a low monthly co-pay. If you have Medicare like me, it is more complicated. Talk to Ally about that step-by-step. Your Dr. has to request the medication from Medicare and ask for a non-formulary exemption, stating the reasons he believes you need it. Assuming Medicare denies it again, then you need to appeal. I have not got that far yet. If that appeal is again denied, then you may qualify for assistance through Amgen if your annual income with your husband is less than appx 73,000. If you are not working, you have to show your income via tax returns and whatever else Amgen is willing to accept. As someone else has said, there are more of these CGRP drugs that are awaiting approval soon, and at least one of them is quarterly injections–unknown if that makes it less expensive. A pill is also being tested–do not know what phase. You may be able to get into a drug study and get the medication for free if there are open test sites near you–although I have heard so far that the injection is likely better than the pill–but I have no medical knowledge–just heard that from someone. I hope you get your relief. You have amazing patience
I’ve been on it for two weeks and so far zero improvement. Am I the only one? I’m worried because the only posts about success seem to all indicate success comes soon after you start the medicine. I would love to hear from anyone who took weeks to notice an improvement or had to take the larger dose. Thanks!
I read your post and see myself so clearly. We have travelled much the same road. I am 47 and have been doing the battle since 15. I wish you continued strength. I wanted to comment on the Amerge. It has long been my rescue when I’m down days at a time. It does come in a generic now and my co pay is $7 for 12 tablets/month. Once it went generic my cost dropped from $30 co pay. Please ask your dr to send in for the generic Naratriptan. Best of luck
How come people are just hearing of this medication, and it’s already going to generic. That’s what is so upsetting. I have had migraines for 30 plus years, 58 now and dont see them ending anytime soon. Doctors really dont know much and dont want to listen to us when we go to them with information. Frustration just brings on more migraines. At least that has been my experience. I wish all of you painfree says ahead. I hope your I insurances will cover this medication and that we get the treatments and respect we deserve
Do you mean Aimovig? It was just approved by the FDA for treatment of a wide range of migraine types and is a completely different type of medicine than what we have had access to before now. I’ve not heard of any kind of generic since this medication is truly newly approved by the FDA the creator should have at least a 10 year copyright on the formulation since that’s the industry standard feom what I remember. Now there are other companies working on their own versions of this type of drug, but they are just bringing their own versions of it, not generic versions. For all we know at this time the other versions will cost around the same as Aimovig give or take a few hundred dollars a year. So as much as I wish the other formulations coming out were going to be generics they aren’t. They’re just other formularies of the same type of drug.
After waiting 5 weeks, took the first 70 mg shot on Friday. Weird side effect is extremely orange urine and what feels like a yeast infection. Anyone else have this side effect?
Hoping the meds work and side effects disappear.
I am 71 yrs old and have had migraines since age 5. Currently my migraines are due to medication over use (MOH) due to months of taking 1/2 amerge every morning because of always waking up with a headache. My neurologist prescribed Amovig and I injected 3 weeks ago without any results. Then I read in some Amovig literature that the clinical trials did not include people with MOH. Is the only way for Amovig to help me is if I withdraw from triptans? Any comments would be much appreciated.
Reliefnow, that’s a good question. It seems like the only thing to do is try for a while and see if it affects you or not. If you are currently withdrawing from triptans and experiencing MOH, you might have to give it some time to get past that to see if it’s going to help in the long run. Having done the MOH thing, it’s no picnic and I’m sorry. Are you doing any infusions?
Just got my first Aimovig injections today (I’m on 140mg.) Took three weeks from date of prescription to arrive. Super easy and didn’t hurt. No word yet on insurance. Doctor said to expect it to take 8 days to start seeing results. Fingers crossed!
Thank you LindaBlackmon. Only rescue meds I have are triptans and that’s what I’m withdrawing from (starting tomorrow UGH). I do have migranal spray but my neurologist tells me to try not to use it. Never heard of using Thorazine but my withdrawals are so brutal that I will ask my neurologist about it. The only other thing I use is amitripiline to try to settle me down and help w that sense of desperation that it’ll never go away.
Thank you for your comments. I’ve never taken any infusions. What medications are you thinking about that I would take via infusions?
You would have to discuss with your doctor about what meds would be appropriate/safe, but there are lots of different things you can get in an infusion.
To shamelessly copy a awesomely informative post of Nancy’s:
There are many types of infusions that can be used to break a nasty migraine cycle. Some medications include, but are not limited to;
Brand name Decadron, or dexamethasone
Brand name Depacon, valproate sodium
Brand name Inapsine, or droperidol
Brand name DHE-45 or dihydroergotamine
Brand name Keppra or levetiracetam
Brand name Phenegran or promethazine
Brand name Regaln, or metochlopramide
Brand name Ultram or tramadol
I take phenegran and tramadol everyday and neither help with my migraines. Meanwhile I still have the same headache I had now 3 months ago. I was so close to going to the E.R. last night but toughed it out because they always look at me like an addict looking for a fix.
They usually give me magnesium and depacon, sometimes DHE and zofran as well. I’m really sorry both of your attacks are lasting this long. I get really long ones, too, and I know it completely drains you.
I avoid the ER unless we just can’t control the vomiting or something’s crazy-wrong. My migraines tend to rebound horribly so if you give me steroids/benadryl/painkillers/triptans (all the stuff they try at the ER) you can make me better for like 4-8 hours, but it comes roaring back worse than before and we’re back in the same boat. The cocktail I’m infused with doesn’t work immediately, but slowly seems to calm the thunderstorm. DHE is the only thing I take that can cause rebound, and it’s generally better about it than triptans.
I think Nancy takes a different cocktail of meds when she gets infusions, too. Different things work for different brains, and often, having things delivered by IV can be more effective. I take Mag orally every day, and both my neuro and the infusion center nurses admit while it does something, it’s known it doesn’t work nearly as well as IV magnesium.
My physician suggested that I take Tramadol no more than 3 days straight to prevent rebound headaches. Have you tried taking your rescue meds some too? When all else fails, I have thorazine to take. It knocks you out, but somehow resets the brain.
I am a 50 yo mom of two grown up men. I have suffered
With migraines for 30 years. I have been to Several
Neurologist and Headache Specialists. The one I am seeing now for my severe migraines that occur 27/31 days a month or more. These are all encompassing migraines. Most land me admitted FOR IV DHE drip over 23 hrs. Sometimes I need a second bag of the same. I have tried many drugs, treatments, complimentary therapies, standing on my head,
Steroid injections in my neck, novacaine injections on my face,head,neck. Etc. You get the picture. As soon as Aimovig came out I knew I wanted to try it. My headache specialist office gets free samples and the nurse Practitioners can administer it without a charge in the office.
I thought I saw God!,,
My Dr. And I discussed all the percentages, did this really work, which clinics are using it a lot and how are their patients feeling. Typically a small percentage start to feel
Better in the first two weeks, the % increase from there
To the first 28 days. Then my md mentioned some patients
Who had not felt any better yet to begin feeling better in month 2. Then after month 3, you can discuss with your md
Which dose to stay with.
The percentages of improvement get only slightly better on the 140mg dose.
I will end with this statement- I’m approximately 3 weeks post Aimovig 70mg given in July. Today is August 11, 2018.
Today is the first day OF NO MIGRAINE on a rainy day in
MANY YEARS FOR ME.
Don’t give up! If this doesn’t help, there are 2 others drugs
Coming to market end of 2018 and 2019.
Best wishes for all with migraines. May you get relief. 😎
Beachbumgirl. Your migraine story and comments were SO helpful to me. Thank you. Continued good luck with the Amovig.
The stats I saw released by Amgen at the end of June for reduction of migraine days were:
50 percent or more: 67 percent on 140 mg and 53 percent on 70 mg
75 percent or more: 42 percent on 140 mg and 27 percent on 70 mg
100 percent reduction: 13 percent on 140 mg and 6 percent on 70 mg
To me, it seems more than just a slight increase of people who improve on the higher dose versus the lower.
I have received 2 injections. And the third one is the last day of the month. The first two days after the injections were fine. Then the five to seven days after that we’re bad with headaches. Has anyone else had this happen? I don’t know whether to tell the nurse or wait for the third to see if it happens again. Also I had the same number of headaches the first month as the last month before I started it. Am I the only one? I am receiving 70 mg dose. It also seems like my migraines are worse quicker. Thanks to everyone that is sharing. I read these blogs and try to learn from everyone good and bad that might help my fight with this.
I would definitely report these issues.
RainorShine, I’ve only had one round of injections, 7 days ago, 140 mg dose. Disclaimer: my doctor said it would take at least 8 days to start working, and I also have a comorbid condition (SIH/CSF leak) which I know is active at the moment and impacting my migraine.
That said, I also felt pretty okay for a day or two, then have had headaches… of course, I’m chronic intractable.. so I pretty much always have headaches? Has it made anything completely go away yet and turned me into a fluorescent-light loving butterfly? No. I did start to get a migraine over the weekend (well, got one), and it only lasted two days!! (mine have been going on 12-14 days recently) and only got to pain level 6. So I’m still cautiously optimistic and keeping a careful calendar so I can track data. Also, I’m at week 12 on botox at the moment, when I’m normally a disaster, and am only getting level 4 daily headaches by the end of each day.
I did the 2 month free trial and it was great. The first month I only saw small improvement but month 2 was amazing! I had my life back to a great degree! Then month 3 happened. I am still fighting to get my dose on the bridge program! It has been pure hell! I started working with the Ally support program mid month 2 to make sure they had everything they needed because my insurance company denied coverage. It is now the 19th of month 3 and I still have not been approved or shipped my 3rd dose despite frequent calls to Ally and the speciality pharmacy. I have spent HOURS on the phone ( on hold for 1hr just to get to a person at the pharmacy ) and it is excuse after excuse. I have spoken to various people, asked to speak to supervisers and still no one can tell me when I might be getting my 3rd dose. Since this medicine works by building up in your system, I am back to square one once it finally dose come. And who knows if I will have the same problem each month?? It is such a great drug… but what hassles I am having!!! The life of a migraineur.
Has anyone taking amovig had any unusual side effects? I find that the side effects on the drugs I’m taking for migraines are almost as terrible as the migraines but in such a desperate state for relief.
I have taken 2 months of Aimovig. I did get constipated about 1 week after each dose, but otherwise I did not have any side effects. The shots did sting when I injected them, but I don’t think it was any worse then a flu shot.
I injected my first dose of Aimovig on Monday, today is Friday, and I have had almost constant nausea since a really bad headache Wednesday night (one of my worst ever). I know it’s not listed as a side effect but this is not normal for me. Has anyone else had this issue?
Check your blood presssure, if you haven’t. Feel better. (((hugs)))
I injected two doses of Aimovig Thursday evening, 8/16. I pretty quickly felt my blood pressure go up, and it was 165/105. I have pre-existing hypertension, so I’m going to be more sensitive to that side effect. I took my normal dose of blood pressure meds, and it came right on down. I was in the middle of a run of daily migraines, and I haven’t had one yet since taking the dose. It’s a bit early to be celebrating, but it was like I felt something in my brain right after I took the shots. Maybe it was just the blood pressure. But I think that’s essentially what it does, is prevents dilation of the vessels. So I’m unfortunately optimistic. Set up for heartbreak!
I also have stage 4 colon cancer in my liver, and I travel for treatment. Very expensive. Someone stole a $500 check made out to me today. Urgghh!!! What is wrong with people?!?