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Living with Migraine

Two months is just too long

  • By tmarie13

    ve had the same migraine since around thanksgiving. I’ve been pushing myself through the pain, but doing absolutely nothing but the necessities of my job and completely let any housework go by the wayside. Now it’s all I can do to get out of bed. I’ve had a neurologist all what I expected him to do, because he didn’t have a magic wand, and an ER doctor ask me why I was there wasting his time. I’m thinking about dying all the time. I feel like I should just get over out and go on with life, but my body won’t let me. I feel weak and whiny and useless. I’ve tried every medication I know of. I’ve stopped taking anything at all in case they are rebound headaches. I’ve stopped eating anything that is known to cause migraines, but here I lay, in the dark and quiet of my bedroom, having absolutely no life. And every doctor I’ve gone to has given up on me. I’m being, what do I do?

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  • By Nancy Harris Bonk Moderator

    Hi tmarie13,

    I’m so sorry to hear you are having a difficult time. This time of year is tough for many of us with migraine disease. And you’re right – two months is too long!! I know how debilitating chronic migraine pain is and the toll it can take on us and our loved ones. It makes us feel depressed and alone. We’re here for you but I’d like to provide you with our crisis information in case things get to be too much and you need to reach out to someone immediately; https://migraine.com/blog/migraine-crisis-help/.

    Unfortunately it sounds like your doctor is not very knowledgeable about migraine disease so it may be time to find one who is. I know how frustrating finding a new doctor can be. I’m working with my 5th true migraine expert and finally think I’m making progress. These articles describe how different a true migraine expert is and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and
    https://migraine.com/blog/really-find-headache-specialist/

    It sounds like you are taking the right steps to help ease this pain, but it sounds like its time for a IV infusion to break this nasty migraine cycle. I know when I have extended pain my doctor gives me an IV infusion of magnesium sulfate, steroids and if I’m nauseous something for that. Here is a list of medications that can be used to help with this you may want to discuss with the doctor and see what he thinks;

    Brand name Decadron, or dexamethasone
    Brand name Depacon, valproate sodium
    Brand name Inapsine, or droperidol
    Brand name DHE-45 or dihydroergotamine
    Brand name Keppra or levetiracetam
    ketamine
    lidocaine
    Brand name Phenegran or promethazine
    Brand name Regaln, or metochlopramide
    propofol
    Brand name Ultram or tramadol

    The thing is if migraine pain lasts longer than 72 hours it increases our risk of a condition called status migrainous and stroke. This article has more information on this; https://migraine.com/blog/what-is-emergency/.

    I hope this helps. Will you please let me know how you are doing?
    Nancy

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