I am in my second year at college and have recently been diagnosed with headaches. I have always had headaches, though they were infrequent and not at all severe. A nap would usually knock them out. However, about eight months ago, they started to become frequent enough that I began to notice a real change. They became once a week, and made me want to seek a dark room with a bed no matter how much fun I had been having before. My boyfriend and I theorized a thousand things-I must be dehydrated, or over tired, or hungry. Then we thought it might be wisdom teeth, or TMJ. None of these proved true.
Three months ago, I finally went to the doctor with my complaints. Almost every day, for a couple of hours, I had a constant facial ache that hovered around a 4/10. She prescribed to me Maxalt, which made me feel terrible. We tried Zomig and I actually went into pre-hypertension. The migraines became worse the entire time-facial pain mainly in the jaw and eyes, neck pain, nausea, fatigue, longer duration, more severe pain overall. I was prescribed Amitriptyline and Fioricet-only the fioricet helped in any way.
It kept getting worse in time and severity, until I was suffering all day, every day, minus the three hours post-fioricet that the pain was more or less negated. (around six hours a day total). The doctor spoke to my university and placed me in the Center for Students with Disabilities in order to prevent me from suffering academically.
I finally made it into a (long awaited) neurologist appointment, at which point the doctor fully examined me and BARELY gave me any sort of diagnosis. He explained that it was my trigeminal nerves, but did not specify which kind of migraine I suffered from, or what my condition might be called. He upped my Amitriptyline dose, gave me more fioricet, put me on Propranolol, and gave me two weeks of Prednisone. This was about a month ago.
In the last three weeks or so, my headaches seemed to be getting a little better. I only reeeally had to take the fioricet once a day, and things seemed to be looking up-until about a week ago. The migraines got right back into their routine and once again, they seem to get worse every day.
I am completely at a loss and feel like I don’t have the right answers. I know the cause is my trigeminal nerves, but what does that mean I suffer from? Has anybody else experienced this?
Any input would be insanely helpful and at the very least, comforting!!