Welcome to the Vision changes Forum
Welcome to the Vision changes Forum
I had read about this “Alice in Wonderland Synd” awhile ago and jaw dropped ! This used to happen to me every once in awhile starting from when I was early grade school. Never scary or enough to say anything to my parents, I figured no one would believe me. Mine were sometimes really short ceilings and short doors-lots of those. Other times it was one side very small and the opposite side normal. People or just me had short bodies yet hands were like big like baseball gloves. They stopped around the time I started having babies. I’ve always been the “headache prone” one. Now I know why and what they are. I don’t always experience a visual aura, depending on when my migraine hits. A normal one is,first a sharp ringing in my ears, then it’s like when you’re going indoors from out in the bright sun light and yours eyes need to adjust to the difference. My hearing is muffled, although sounds as though I am underwater or I have my earplugs in. (the ringing sound is gone) This lasts for approx 60 secs or so. I’ve never timed it. This occurs 1-2 times a month.
anyone had “persistent aura” (without the migraine). i have it almost all the time now. blank spots, lights, after-images, etc. the doctors have no idea what it is or what i’m trying to describe. it’s very annoying (although i’m glad the pain doesn’t come). love to hear if i’m the only one.
so glad you mentioned “persistent auras.” my migraines are mostly hormonal, and in the past i had the normal aura then pain and it was gone in a couple days. but lately it has been different. this past week i have been very scared because i have had pretty constant pain but auras that come again and again. sometimes they are full blown zig zag lines, but it has also been blank spots or distortions. i cant tell if its after effects of the original migraine or the beginning of a new one. its so confusing.
Martha11, the important take-away message here, is that any changes in your normal pattern is a good reason to get to your doctor to find out what is going on. Have you seen your doctor yet? Is he/she a headache specialist?
Not all migraines have pain associated with them. That was something I learned the hard way. Fortunately I was at my Dr.’s at the time and he got to witness first hand. I have what I call “Tunnelling”. It is when the field of vision shrinks down to a pin-prick size and/or goes away completely. This is often the precursor to the pain as I have learned and as soon as I start to lose my peripheral vision, I take my meds, but oddly this is the only symptom I have that doesn’t hurt. All the normal pain that I deal with on a daily basis goes away.
rhondagrensberg-smith – I would encourage you to read this piece on acephalgic Migraine and see if this might match your own experiences: https://migraine.com/migraine-types/acephalic-complicated-migraine/
In addition to what seem to be chronic tension-type headaches, my son had a visual migraine for two weeks. During that time, he needed reading glasses. Now he doesn’t! This was confirmed by a neuro-opthalmologist.
LISACOOPER – that is really interesting. Did the neuro-ophthalmologist give a reason for the change in acuity? I do know that Migraine can increase eye pressure. I wonder if that might have had an influence in what happened to your son…
Has anyone noticed changes in pupil size? I’ve had migraines the past ten years or so, but it wasn’t till this year that I noticed I have one pupil that gets larger than the other when I get a migraine or under stress. I was at a rally in D.C. last March where I was walking around all day and by the time we were walking back to our car I had slight double vision and noticed the difference in pupil size. Now, every so often, I will notice it when I feel a migraine coming on. It’s not a constant thing, just when I have a migraine.
Lindsey – Have you talked about this with your doctor? Something new like this should really be a signal that an examination by a doctor is probably in order to be sure it really is part of your Migraine. It isn’t beyond the scope of possibility it is part of your Migraine, but don’t take a chance on it. Get it checked out. Give your doctor details, and don’t forget to include that your Migraines have reacted favorably to the ketogenic diet. 🙂
I haven’t yet, but I definitely plan on it. I actually don’t have a neurologist anymore (the doctor I was seeing moved to another office further away). I have been seeing an acupuncturist for almost a year and a half now though. But I am going to make an appointment with the eye doctor that I used to see since the double vision has been getting more frequent recently.
lindzey – Please be sure you see an ophthalmologist and not an optometrist. I wish you had a neuro as well. Please let us know how you are 🙂
Lindzey – I also frequently notice that my right pupil is larger than my left during a migraine, however, this has always been one of my normal symptoms (my Migraines start behind the inner corner of my right eye). Also, I completely relate to your “slight double vision”, as this has also become a normal symptom of Migraine for me, along with a blurriness like a light coat of vaseline on my eyeballs, worse on the right. My Neurologist is aware of these symptoms, and knows other Migraineurs with these symptoms. My eyesight has gotten worse during my most recent Migraine from Hell (I have had a constant Migraine with no breaks since January 6th of 2012). I have been to the Ophthalmologist and gotten my new glasses, but with the blurriness they still aren’t much use. Luckily!? Botox. 200 units every 3 months takes the pain down from a 10 to a 6, and very occasionally even a 5.
I’m already deaf and my first diagnosed migraine was actually an ocular migraine. I had no idea what that was or that it could even happen. I had bad headaches in the past, and people had called some of them migraines, but I was never officially diagnosed until this one.
What happened hit me like a ton of bricks. One day I got the worst pain in my head ever, and one of my eyes had this creamy gray coating over what I was seeing. It was like a filter almost. I couldn’t see through it much. Then my vision came back. That happened later in my other eye, and eventually, both eyes completely became non-transparent in those “filters”. I had no vision in either eye.
I was terrified. I was already deaf, and now I had lost the one sense I could not live without. Through this process, I went to an eye doctor, who did several tests and spent hours on me. The fear was a detached retina or blood clot. But all his tests were coming up without a clear answer.
I had to go to urgent care next, for additional exams and testing. After running some labs over a period of days, then doing a CT scan and seeing my neurologist, I was diagnosed with ocular migraine. I was put on Gabapentin as a preventative and after several weeks, the migraines stopped happening.
I’m new here, so I hope to jump into more discussions. I wanted to write this, because when I was first researching ocular migraines, there really wasn’t much out there in terms of peoples’ experiences for me to be comforted by.
The one takeaway I have from this diagnosis, is that no migraine is ever the same between two people. Everyone’s migraines are unique, and we have to give sufferers the dignity of believing what they’re going through. Often, people with migraines “look” fine, and their pain is chalked up to being in their head. Another thing I know now is that a migraine is not just a bad headache. Hopefully more of the general population realizes these points!
I wrote about this in a little more detail on my blog. –
Scariest Day of my life: migraine makes me blind and deaf