Welcome to the Weakness Forum
Welcome to the Weakness Forum
Actually – often the weakness is more debilitating than the pain.
Laura, I’m wondering what your doctor says about your finding that adding food or a sweet beverage seems to be helpful?
My doctor did not have any thoughts that he shared with me about this symptom. I just came home from work today because i feel so weak and spacey. I could not concentrate at all. I have spaced out several times writing these few sentences. It is more debilitating than the pain right now. I’ve scheduled an appointment with a new headache doctor – but it is at the end of July.
I have been suffering with what my neurologist will only define as chronic daily migraine for the past 14 months, as in it never lets go enough to be defined as a headache. I have always had fatigue and aura with my migraines and the sensitivity to light and sound since this began in March 2011 but a few months ago I woke up unable to lift my head. my limbs all felt like they had weights attached and it took an immense amount of effort to sit up. Since then I constantly feel like my head is too heavy as if I have a counterweight inside my skull eg: if I put my head forward to look down it just sort of flops I cannot control the speed it drops at. I am trying to get a clear picture of my numerous symptoms so that I can explain them to my neurologist properly and have a more definitive diagnosis that can be treated correctly.
I had 2 episodes of all over body weakness during the past 4 months which coincided with the time my locked-in right side headaches began in addition to the regular bilateral migraines I’ve already been having for the past 2 years. I couldn’t do anything but lie down on the couch for 2 hours. When I woke up I was okay, but it was scary to feel so weak for no apparent reason. I went to the ER where they drew blood and did a CAT scan and everything came back normal. A few days later I had an MRI done which also came back normal with the exception of lesions in the white matter of the brain. I wonder how such an alarming symptom like complete weakness can generate normal labs. I also wonder how severe pain in the head that feels like its trying to kill you can be perfectly benign.
I believe it’s called a complex migraine. I’m 19 and I’ve had a few “episodes” where it looks like I’m having a stroke: one-sided weakness, aphasia (difficulty speaking/finding words), even a facial droop! And that’s all in addition to the head pain. I had one episode where the weakness kept going after the headache ended and got progressively worse over about 2 months, so I went to the ER and they said “You just have a headache. Take some Motrin.” I was so insulted. One, obviously it was not “just a headache.” Two, if Motrin worked and this wasn’t an absolutely terrifying experience, I wouldn’t have gone to the ER, now would I?
Anyway– The reason it doesn’t show up in labs is because it’s not something in your blood. If it was caused by an infection or underlying condition (perhaps thyroid), then it would show up in a blood test, and that’s only if they ran that specific test.
Lesions in your white matter, however, would be a reasonable explanation for the sudden weakness. White matter is basically the communicating part of your brain. If you have lesions, which means there’s damage to your white matter, then some of the messages may not get through correctly, causing weakness. There’s really not much you can do about a lesion though.
By Teri Robert
The term “complex Migraine” can be very confusing because under the International Headache Society’s International Classification of Headache Disorders (ICHD-II), the gold standard for diagnosis and classification of Migraine and other headache disorders, there’s no such diagnosis. Take a look at Complex and Complicated Migraine – The Scoop, at https://migraine.com/blog/living-with-migraine/complex-complicated-migraine/. The only form of Migraine that causes true motor weakness is hemiplegic Migraine.
The white matter lesions sometimes found on the brains of Migraineurs have thus far proven to be asymptomatic in the studies. That is, they produce no symptoms, so it’s unlikely that they’re the cause of any weakness.
I also experience weakness, usually in my arms. It feels like there is too much gravity pushing down on me, and the sensation comes and goes with other symptoms (ringing in my ears, wavy lines in my vision, a sensation of lightheadedness or like I’m rocking, numbness of parts of my face). I don’t get bad headaches, but for lack of any other diagnosis after MANY blood tests and trips to my primary, ENT, cardiologist, and neurologist, they tell me it is migraines. My MRI also showed some small ‘spots.’ The neurologist said that they are consistent with migraine. It’s just nice to know I am not the only one with these wacky symptoms.