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Diagnosis of Migraine & Headache Types

What is wrong with me?

  • By Smur26

    I’ve had migraines for 5 years (21 now) and doctors have never known what’s wrong. I’ve had different neurologists that I feel like just throw different medications at me that give me terrible side effects and leave me drowsy all day. My neurologist recently retired but I was getting a lot better just being less stressed out and trying to live a healthier lifestyle. Yesterday morning though I woke up with a terrible migraine, I can’t handle light or sound, I feel like vomiting every time I stand up, my vision is blurry. I had my friend drive me to my primary dr where she just gave me naproxen and zofran (I told her that naproxen doesn’t work for me once my migraine is bad but she didn’t listen) but that didn’t help and so later I went to urgent care because I couldn’t handle my head and they gave me a toradol which didn’t help either and she also gave me muscle relaxers.
    I took them at night as instructed and still didn’t get much sleep. I called my primary doctor again and told them that what I got didn’t help.
    Does anyone else not get relief by these after their migraine is there? They look at me like I’m crazy and making it up. Why would I make up how much pain I’m in?
    They told me if the pain is unbearable just go to the ER or urgent care again but I feel like the ER just gives you the migraine cocktail until you’re passed out then they let you go. I feel so frustrated because I feel like no one will listen to my problems because they don’t see anything in blood work or ct scans.
    How do I make someone listen to me? I’m just so frustrated and going on 48 hours with this migraine. All I can do is sleep. What am I supposed to do when no one cares about my migraines?

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  • By msscott

    Hi Smur26–I had lots of headaches, too. I saw a few doctors, including a neurologist, but it wasn’t until I saw an ENT that I finally felt like someone was listening to me. He referred me to another doctor who diagnosed me with vertical heterophoria. I had headaches, dizziness, and reading could make my vision go blurry… and this went on for years. You should look into vertical heterophoria too. I never heard of it until the ENT referred me to a doctor who specializes in it and when they sent me a questionnaire, every question was spot on about my symptoms. Meds did not help, either btw. I still get headaches now and then but the doctor who diagnosed me with VT prescribed special lenses that made muscles in my neck and shoulder loosen up for the first time in soooo many years. Know that you’re not alone and people do care–I do!!

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  • By Nancy Harris Bonk Moderator

    Hi Smur26,

    I’m sorry you are struggling right now. You may want to think about calling your doctor back and asking for a steroid dose pack to help break this current migraine cycle.

    General neurologists and primary doctors don’t seem to be as educated in migraine and headache disorders as a “true” migraine specialists is. And it’s not that they aren’t good doctors, they just have a hard time being experts in one area because they treat so many different conditions. A true migraine/headache expert is board certified in headache medicine, which again is different than being certified in neurology, and treat one condition all day, every day- migraine and headache. Let me share our information on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.

    Also if you are having more than four severe attacks a month it’s time to discuss migraine prevention, or a daily medication to prevent attacks. Not to worry there are over 100
    medications that can be used to treat migraine. Here is that information; https://migraine.com/blog/migraine-preventives-start/.

    I hope that helps, please keep us posted on how you are feeling.
    Nancy

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