I’ve had migraines for 35 years, but they’ve changed over the years. At first I had pure migraines and when imitrex came on the market, it worked for my migraines. But imitrex and maxalt and relpax quit working. So then I started on fioricet. This was around the same time I started at least monthly visits to urgent care (cheaper and faster but they give me a bad migraine the next day and makes me throw up a lot) or the ER (better meds, but the old cold Drs and long lines. Last time I went my whole care was done in the waiting room until four hours later when they decided to admit me).
Two years ago my headaches turned chronic. My neurologist at the time had tried everything and gave me stadol. It made my life come back again. I could go from dying on the couch to eating with my family in 15 minutes.
But now I see a headache neurologist and he keeps asking me about my pain. In ways I’ve never been asked before. I thought I had headache pain of varying times per day cluster into groups of headache days consecutively with a day or two between. Sometimes as long as five days. But he didn’t agree with this (told me I was wrong and lying, but I let it slide – this dr is very black and white, no grey. He said I either had to have some sort of headache pain, even mild, every day, or i had a standard flow of migraines where the migraine only lasts 1-3 days and then several days or even weeks between migraines. And I have to figure out which one it is because the treatments are different. So I said every day. I’ll describe my pain and see what you think.
I will have days where I get stabbing shooting pain in my temples or a general pressure around my whole head. And when I can lay down on my special pillow, the pain slowly goes away. Also my scalp, especially the occipital area, is extremely sensitive. I Can actually start a headache by slightly looking down at my laptop or propped up on pillows to watch tv. And they are full fledged migraines.
My headache pain can be anything from feeling like my head is being stuck in a vice to pulsating throbbing pain on one or both sides of my temporal bones. When this happens, the eye on the side of the pain years and closes from the pain. Then i can have all over head hurting and slight pressure. In February I had a migraine that made my left arm almost completely paralyzed for quite awhile.
So what kind of headache do I have (besides chronic)? Is it in my neck? Is it traditional migraine? Is it tension type? Is it something else or a little of all of them? Right now I’m on depakote, lyrica, and verapamil. Yesterday I got occipital nerve injections, which hurt like hell because he actually did more of a TPI/NB. He injected the needle halfway between my shoulders and neck and moved the needle around in the muscle and nerve, injecting lidocaine and methelprednisolone.
I guess what I’m asking for is advice or stories of what could work based upon my symptoms and your experience.