What’s Your Secret: Submit Your Questions!

Migraine.com is a rich and thriving community and every member is a vast resource on the topic. Although migraine is very prevalent, few of us know many, if any, people in our real lives who have the condition as severely as we do. In this video, we invite members to submit questions they would like to have brought to life in video form by our patient advocates in order to mobilize the community and create an engaging discussion on the topic of their choosing.

 

If you have questions you’d like to pose to the Migraine.com community for the What’s Your Secret Video Series, please add them to the comment section below, or go to the Q&A page and submit your question there. We have a wondrous resourceful community with a wealth of information and support just waiting to help you out.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (12)
  • rachel20
    12 months ago

    I find if I’m not home, ginger in pill form is my first attempt. I also try to eat a granola bar or a little something. I also have found that taking ibprophen and tylenol can get me at least home and not make me tired to get home. If nothing works i have to try and lay down for a few minutes and then try again

  • KadKat
    1 year ago

    How do you feel about Medical Marijuana use as a preventative and an abortive of chronic migraine?

  • Holly Baddour moderator author
    1 year ago

    Hey KadKat – Thanks so much for your question. Have you seen any of our articles on the topic? You can find them here: https://migraine.com/?s=marijuana&submit=Go

    Additionally, stay tuned- we’ll add your question to the list of topics to bring to life through the “What’s Your Secret” video series. Many thanks. Warmly, Holly B. (migraine.com team).

  • Wendy
    1 year ago

    What can I do about the fatigue associated with my chronic migraine?
    Why do we feel a chronic fatigue even on days that we don’t experience a full-on migraine?

  • aurohra
    1 year ago

    I call that a migraine hangover… especially in the days after a severe attack. Chronic pain drains a lot of energy

  • Holly Baddour moderator author
    1 year ago

    Take a look at this article, Wendy- you are definitely not alone in feeling this very normal postdrome after-affect of Migraine: https://migraine.com/living-migraine/chronic-bodys-slow-leak/?r= That said, I will bring your question to life in an upcoming video to see how the rest of our community members handle this tough reality. Thank you for your topic. Warmly, Holly B. (migraine.com team).

  • Brian in TN
    1 year ago

    Based on my own experience of having service aboard a submarine aggravate my unknown propensity for migraines (reduced oxygen concentration, constant exposure to diesel fuel, monoethanolamine & lube oil mist) and the anecdotal evidence that service on submarines drastically increases the incidence of migraines; could a questionnaire allow organizations to “filter” applicants for positions that should be avoided by undiagnosed migraineurs? In my case there were experiences among myself and family that in hindsight would have shown the risk for me was higher than average:

    1. Have you, your parents or siblings ever experienced temporary vision problems that resulted in part or all of your vision being distorted or covered by intense geometric figures or grey areas? A: When I described my first ocular migraine to my family my father, mother & brother had experienced ocular migraines and did not know what they were or seek attention for them.

    2. Have you ever experienced severe pain or an inability to keep your eyelids open when stepping into direct sunlight or bright light, when you were not experiencing a hang over? A: I thought my photophobia was a symptom of sinus headaches.

    3. Have you experienced a sinus headache, or pain behind your eyes that did not include sinus congestion? A: I realize that any “sinus” headache with or without congestion could be a migraine symptom, but I believe I experienced both sinus & migraine headaches without realizing many of them were migraines.

    I imagine many of us are uncomfortable trying to find ways for employers to block us from positions, but in my case, it is possible had I been medically disqualified from submarines in boot camp, I could still have served in the surface fleet and my infrequent, undiagnosed episodic migraines might never have become chronic daily migraines that resulted in my medical discharge. I have tried to find medical research that documents the long term effects of submarine atmosphere but apparently that research is either classified (a 1946 study is available on line that is so different than nuclear sub service it is useless to me) or the Navy decided not to ask a question it didn’t want the answer to. I’m betting there are many more questions out there.

  • aurohra
    1 year ago

    How do you express that you’re in pain without sounding like a complainer?

  • GB49er
    1 year ago

    This is a difficult one. My wife is aware of the pain I suffer, but I never mention my migraine attacks to anyone else anymore. Why? Because they just don’t understand. Most peoples response in the past has always been even if they don’t say it is ‘it must be just a bad headache’. I have become a very good actor hiding the pain. Plus no one can help even if you do tell them.

  • aurohra
    1 year ago

    I also try not to bring it up… Although, I feel that they will judge me because of unexplainably missing commitments or they will judge me because I’m “complaining about a headache again”. Personally I think everyone needs a little empathy from time to time and so I offer my shoulder for them to lean on if needed. I hope that when I need to explain to them why I can’t do something that it a fact (I am in pain and I cannot do this) and not see it as a complaint or an excuse. The reason I posted the question is that my method isn’t really working.

  • Holly Baddour moderator author
    1 year ago

    @aurohra– this is a great question and topic to bring up. I hope our community members might respond with ideas here- but I plan to bring your question to life in an upcoming video in order to mobilize the most answers possible. It’s a very real and common issue that we all encounter. For me, the challenge of trying to inspire compassion in others has a lot to do with raising awareness and educating them as to the serious nature of the condition. We might feel insecure about expressing the very real pain we’re in if we feel others don’t understand or believe that Migraine is a complex neurological condition. Perhaps if you can think of some ways of creating a framework to help others understand what Migraine is, by forwarding them articles from this site, for instance, you will feel more comfortable expressing how you are feeling from day to day. Thank you for submitting this question. Warmly, Holly B. (migraine.com team).

  • Holly Baddour moderator author
    1 year ago

    @aurohra– just an update- I wanted to let you know I’m working on both an article and a “What’s Your Secret” video on this topic as it is such an important and rich topic. So, stay tuned! Warmly, Holly B. (migraine.com team).

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