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Three Things About My Migraine

This summer, we at Migraine.com wanted to share three things about our individuals migraines with the community that our members might not know. Migraine can be such an alienating disease, and we felt this may help us all feel a little more connected!

My three things include:

  1. Dizziness is my most annoying and debilitating symptom (outside of those pesky auras!)
  2. I didn’t know migraines existed until I was in my late 20s. Until then, I thought the experiences I had were the same everyone had when they said the word “headache“.
  3. My most important migraine goal right now is to release the guilt that I sometimes feel about having passed the disease onto my daughter.

That’s it! I look forward to hearing three things about yours. If you feel comfortable, please share in the comments below. Happy summer!

 

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • pigeongirl
    3 years ago

    my three things-

    dizziness nausea and visual disturbances bother me worse than the headache pain- since they have become chronic.

    i still try to ‘hide’ my illness, though when my face droops on one side or i get clumsy/seem intoxicated, i wind up confessing so people don’t worry so much. i call it a ‘neurological condition’ since so and so has migraines, takes a pill, and then is FINE.

    i never wanted to have children, knowing i could pass this on as it was passed to me. the pill failed, over and over, i have 5, and one has inherited my nightmare- her difference is right sided (mine are left) and seeing her under attack makes me realize how i look and seem. the guilt… certainly something to have to deal with.

  • DonnaFA moderator
    3 years ago

    Hi, pigeongirl. Please know that you’re not alone. I agree that sometimes the peripherals are absolutely worse than the pain itself (nausea, tinnitus, and vertigo are the banes of my existence). It’s both understandable and terrible that you feel the need to hide your illness. Unfortunately, many people with invisible illnesses do because of the lack of empathy and general understanding.

    As a mom, it is difficult watching our children suffer. You may find something that speaks to you in Kerri’s Letting Go Of Guilt. Please be gentle with yourself and know that we’re always here to share information and support. We’re glad you’re here. -All Best, Donna (Migraine.com team)

  • Ann
    3 years ago

    Three things about my migraines:

    They keep changing. I think I have them pegged and one symptom disappears but another one appears in its place. I’ll try a new preventative and think I finally nailed them but it doesn’t work for long.

    They rule my life.

    I have no life.

  • Ann
    3 years ago

    Hi Donna,

    Thank you for pointing out the Puffy eyes article. At least I feel like I’m not alone. It helps so much to discover that others are in the same boat. Now I wish we all could get a life-preserver. Thank you.

  • DonnaFA moderator
    3 years ago

    Hi Ann! You’re most welcome! I’m glad that you found it helpful. Please know that while migraine expresses itself differently in each of us, you’re never alone. I am definitely with you in the wish for that life-preserver (love that line!).

    Thanks for being here! -All Best, Donna (Migraine.com team)

  • DonnaFA moderator
    3 years ago

    Hi, Ann! Thanks for sharing your thoughts with us. We hear you and we want you to know that you’re not alone. In Puffy eyes and the changing face of migraine, Migraine Girl talks about experiencing changing symptoms. There’s also a great conversation that accompanies the article.

    It’s frustrating when what you rely on no longer provides relief. And it’s frightening to feel at the mercy of migraine. You may be interested in reading Taking charge of your migraine care.

    We’re always here to share information when we can, to provide information or just to listen. We’re glad you’re here. -All Best, Donna (Migraine.com team)

  • Mr FBP
    3 years ago

    1. My best discovery was that when waking up with migraine including nausea, eating a single slice toast would reduce the nausea to a more manageable state and speed up recovery (whereas not eating would lead to increased nausea and possibly vomitting).
    2. The most annoying thing about migraine is that it never stops changing in it’s presentation or it’s response to treatments.
    3. The worst thing about being a migraineur is the disappointment that my family feel when I drop out of an activity.

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