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Jennette Fulda- I’ve been on prescription medications for 16 years now, and it’s amazing how many different things have made it difficult to get my refills. It’s particularly confounding because I’ve never been on controlled substances for my illness, just non-opioid medications like beta blockers, tricyclic antidepressants, or anticonvulsants. If I run out of pills, I’ll go into painful withdrawal symptoms such as nausea, body aches, and an even more painful headache than normal. Problems getting refills are one of the most stressful things I deal with because it causes low-level anxiety that follows me throughout the day until the problem has... Read more
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Kerrie Smyres- After several years of no longer having weather as a migraine trigger, it suddenly became a trigger again. After some sleuthing, I figured out the culprit. Even though taking magnesium didn’t seem to change my day-to-day migraine attacks, it made a big difference with the weather-triggered attacks. Read more
Elizabeth Roberts-Zibbel- Recently an online friend sent me a message asking for my advice about how to become an advocate for migraine disease. My answer to her: Sweetheart, you already are one. I went on to explain. Her posts are very honest and forthcoming about her pain and migraine issues; problems with doctors; difficulties with family and friends who don’t understand. She’s involved in support groups, sharing kind words with those who need to hear them. Raising awareness on social media In many ways, that is all that is needed to be an advocate. Our disease is stigmatized, so just being honest... Read more
The Migraine Girl- It’s been over a year since I last wrote anything about my Cefaly headband, and I wanted to tune back in and let everyone who’s interested know how it’s working for me. (Looking to see what it looks like to wear the headband? Check out my video from May 2016 here.) Treatment adherence To my happy surprise, I have nearly 100% treatment adherence when it comes to the Cefaly. I can count on one hand the number of nights I have not used it—and I find this quite impressive considering I’ve been using this daily preventive treatment for over eighteen... Read more
Kyky Knight- It can often be really tricky to figure out how to properly nourish one’s body in the midst of a migraine attack. This is certainly often true for me. For one, my migraines are usually accompanied by egregious nausea that makes my appetite go poof. The last thing I want to do when fighting migraine symptoms is to eat..well…anything really. Then there is the fatigue I feel before, during, and after an attack. I just can’t muster up the energy to think about getting or preparing food when all I want to do is lay in a cold, dark, and silent room to recover. But, migraine... Read more
Amanda Workman- Some individuals may wonder why this is even an issue. The sad reality of the matter is most of the time you get 6 to 9 abortive migraine medication doses a month, regardless if it is a pill or a shot, etc. Unfortunately, many of us are impacted with a migraine on a daily or almost daily basis. So this is where the game of debate comes into play, how bad do you let the pain get before you take something for it? If one dose of medication did not kick the migraine, do you use another dose to try... Read more
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Yesterday, I made French Toast with maple syrup. Before that, I hadn’t eaten maple syrup for 20 years. Being Canadian, that was tough! I couldn’t eat it because it triggered a migraine, without fail, every time. Crippling pain, relentless nausea/vomiting, being knocked flat on my back for five days straight without even being able to open my eyes because the light seared straight through and burnt my brain. (Well, that’s how it felt anyway!) Maple syrup wasn’t the only (food) trigger that sparked an attack, and so when I was first diagnosed with migraine I had to embark on that... Read more
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