Amanda Workman- Chronic migraine affects so much more than simply our pain levels. For many of us, it affects our social life, family life, our careers, and even our mental stability. Many of us have been accused of being isolated or withdrawn, nagged about not participating in events, and even told we just are not trying to “push through it” in order to be around more. Isolation Are we ever isolated from those we love and care about? Yes, but for good reason. The symptoms that are associated with migraine and chronic migraine can make it impossible to be around a lot... Read more
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Editorial Team- We are pleased to share this guest post with you by Tonilyn. “I’d like to stay in tonight.” I wish a romantic night of clinking champagne glasses in bed followed my last statement, but alcohol is a trigger, and the clinking is going to be too loud. Bed is a definite possibility. My husband’s disappointment is obvious. He doesn’t try to hide it anymore. Date night is ruined, and it’s my fault. Well, it’s the fault of my chronic migraines. I used to be fun When my husband and I were married over thirteen years ago I was fun. I could... Read more
The Migraine Girl- Written in late March 2018 As I type this, I’m on a plane thousands of feet above the earth, traveling to my home state of Georgia. I’ve just spent two days with a couple hundred colleagues in the patient advocacy/healthcare community field, and I am so grateful and happy I feel as if my heart could burst. The heart beat behind online communities Even people who’ve been visiting migraine.com for years may not realize that the beating heart behind this online community also serves many other condition-specific communities (and corresponding social media accounts). This beating heart has a name: Health... Read more
#purpleproject- I’ve recently started to publish my work on Migraine.com sharing my Hemiplegic Migraine diagnosis story. Part 1 of my diagnosis story was published & ironically, I had a monumental HM the same day. I thought I would take a few minutes to explain what HM does to my body when I experience one, so here is my most articulate way of explaining to all of you some of what I experience. Symptoms may differ Hemiplegic Migraine can present with different symptoms. This day I didn’t have more severe symptoms I do with others. Thanks for taking a few minutes... Read more
Amanda Workman- There is a challenge within in household when one party is chronic and one party is episodic. I know for most of you, the idea of having a spouse who is episodic while you are chronic seems like an amazing idea, but it’s not all it is cracked up to be all of the time. At times it can be very helpful, such as when I am in a ton of pain and he can see that I need to lay down. But it can also be a disadvantage because he is so used to me being in pain so... Read more
Editorial Team- There is less than one headache specialist for every 85,000 patients in the US. This number is similar or worse in other countries around the world. For the vast majority of us, this means we need to work with someone who hasn’t specialized in headache or migraine. Usually, this will be our family doctor or general physician. But there’s a problem. The family doctor or general physician has on average committed just 4 hours of headache education in their undergraduate medical degree. Four hours. This figure was revealed in the World Health Organization’s ‘Atlas of Headache Disorders’ report. We’ve spent... Read more
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In recent weeks, I’ve been considering applying for disability due to my migraines. Around the middle of February, I had to leave a new job that I’d only been at for roughly a month because of the migraines. That makes four jobs, in total, that I’ve lost or had to give up due to this disease. When I started the job, I was extremely hopeful. A couple of weeks before Thanksgiving, I had gotten the daith piercings and I was showing drastic improvement. I thought that I had FINALLY found the solution for me and I could regain some of... Read more
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