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Holly Baddour- You know that little voice in your head that narrates life from time to time? Unfortunately, that voice can be quite negative when it comes to navigating chronic pain. We feel bad about feeling bad and guilty about missing out. We fear letting down those we love the most. We fear that we are watching life go by while sitting on the sidelines. That little voice might try to tell us that we aren’t trying hard enough or that we are somehow weak. Society sometimes tells us that migraine is just a headache. It’s easy to judge ourselves too harshly,... Read more
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Elizabeth Roberts-Zibbel- For a couple of years now, I have been employed, but working from home: writing about migraine, and coordinating advertising for a local online news journal, both of which I can literally do from my sickbed. Recently while working on the news site, I saw that our county library had sent me a ‘help wanted’ ad. As I was uploading it, I saw that the job they were hiring for was library page, which is not a term I was familiar with. The description said the job entailed shelving books that had been returned, pulling books for other libraries, and... Read more
The Migraine Girl- I’m well acquainted with odd times of night. When fatigue hits me hard during the day and I can’t resist a nap, I often wake up feeling a little better (or even a lot better). That’s the good news. The bad news is that I wake up at a really odd time, which screws up with my sleep patterns. Nausea, fatigue and fever Take today. I was feeling really nauseated and my stomach was upset, so I lay down around 5:00 pm. I started reading a new novel and, the next thing I knew, it was 8:00 pm and I... Read more
Kyky Knight- Sometimes it seems as though others around me are always ‘getting onto me’ about my migrianes. Well-intentioned folks sometimes make comments such as ‘well, you should try x, y, and z if you really want to feel better’, or ‘it’s probably because you weren’t doing this or that’. Ugh, give me a break. Well-meaning concerns can feel like blame These attitudes can make people who suffer from migraines feel like they are being interrogated for being ill. Some might call it nagging, and I am sure my loved ones and friends would call it healthy concern. One thing is for... Read more
Sarah Hackley- There isn’t a lot of information available about migraine and pregnancy. What information there is tends to boil down to individual differences. Most doctors say that during pregnancy women with migraine may get better, may get worse, or may stay the same in terms of frequency and severity of attacks. But what does that mean for the woman trying to conceive? I recently interviewed my fellow patient advocate Lisa Benson (a soon-to-be mama) to compare our pregnancy stories in hopes it may provide some insight into the pregnancy with migraine experience. Worries and concerns Sarah: “Were you nervous about being... Read more
Editorial Team- Have you participated in a clinical trial? We want to hear more about your experience! We are conducting a short survey to understand how patients are involved in the clinical trial process. Your experience, and the experience of all our community members, is extremely important to us. This survey should only take about 15 minutes to complete. All of your responses are completely anonymous and the data we gather from this survey will only be presented in aggregate. Insights we gather from this survey will be shared with the communities at Health Union, including Migraine.com, as well as to improve... Read more
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Bio: Hello, I’m Jim. I’m 28 and I live near Tampa, Florida. I’m seeking help with regards to eye pain. I’ve had constant pain behind both eyes for as long as I can remember; 8+ years. I cannot cope well with life like this anymore 🙁 I’d appreciate your time and help more than you can imagine! Pain (scale 1-10): The pain level behind both eyes is 3-4 on bad days and .5 to 1 on good days. I feel constant pressure behind both of my eyes (feels like it’s on the top/behind my eye lids). The feeling is like... Read more
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