Using a migraine diary can be a real wake-up call
In the last several months, I’ve not been keeping up with my health and lifestyle regime as well as I should.
(I’ve talked about falling off the wagon a couple of times on this Migraine.com blog, and it sounds like many of you are in the same boat!) In the back of my mind, I’ve thought, “Well, I certainly don’t feel as sick as I used to, but I would feel better if I’d take better care of myself again.”
I had no idea how bad things had gotten.
That is, until I took some time to look at my computer calendar and transfer data on all my migraines (the ones I remembered to record, at least) into my migraine journal. Yes, onto real paper. And I only did this at last because I had to visit my primary care doctor two weeks ago for injectable rescue treatment after a 9-day migraine, and she told me that I had to schedule a follow-up to discuss a better treatment plan. So, somewhat begrudgingly, I did what I always tell migraineur friends to do and updated my journal.
The results were shocking.
Between April 1st and August 1st of this year, one-quarter of my days have been affected by migraine. (Mom, don’t worry—this doesn’t mean that 25% of the time I was sick in bed—the percentage applies to days when I had a migraine but was still highly functioning, too.) And I also saw clear data on how, as reported earlier, that I’d been taking my abortive meds more often than doctors recommend.
This was a real wake-up call. If you are someone who has a vague idea that your migraines have gotten worse in severity or frequency, you’re especially in danger of being like me, venturing dangerously close to chronic migraine/intractable migraine land without knowing it. Even if the results are frightening, it is always better to know what’s happening with your body so you can take care of yourself.
So get yourself a journal or use a computer-based program, check out the migraine journal here. Keep track of when your migraines show up, how severe they are in terms of pain and other effects, when they go away, what you eat, when you sleep, and all the other ideas mentioned here.
Now when I go see my doctor next week I will be armed with some information that will help us both take a more proactive role in getting back in control of my life.
How much has your migraine disease changed or evolved over time?