YOU are your healthcare provider.

Sometimes people write to me about how lost they feel when coping with migraine, how unarmed and uneducated they are.

Friends who also cope with migraine disease confide that they have no idea how I manage to learn so much about the affliction and confess that they don’t know a whole lot about it.

There’s no great mystery here, folks, and no magical way to suddenly understand what’s happening to your body when you are in the midst of a migraine episode. As you probably know by now, there is a dearth of headache specialists in this country, and primary care doctors (and even neurologists) tend to be uninformed when it comes to the mechanism of migraine and current research and treatments. I cast no blame on the doctors, mind you—it’s just the state of things, and the reason why we need to push for more educational initiatives for healthcare providers.

The most efficacious way to learn about migraine is to educate yourself. You can rightfully assume that most well-meaning health websites don’t keep up with the latest accurate information about migraine. I’m grateful that Migraine.com is now on the scene; my only disappointment in regards to the site is that it didn’t exist a decade ago.

Do your research. Learn about the disease’s mechanisms, and keep track of your episodes with a headache diary/migraine journal. Try to be more in tune with your body, and do your best to regulate your sleep schedule, your meal, and your exercise routines. This is YOUR life. Don’t wait around for someone else to fix it. I probably sound like a bully, and perhaps that’s apt: what other wakeup call do you need? When hours if not days (if not months!) of your life are being whisked away due to the debilitating effects of migraine, you can’t afford to lose another minute. Take control. The first step is to educate yourself.

What are you waiting for?

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (8)
  • Dina Issa
    8 years ago

    So true. We have to accept that there is no cure only management of it. I am optimistic about the future of treatment however and have been following the research.

  • Lynne Heller Smith
    8 years ago

    As a retired health educator, I’ve made it my business to understand a great deal about migraines. However, I have just changed doctors and this has opened up a whole new challenge as he has adjusted my diagnosis and treatment plan. I feel a bit like a fish out of water, and like I am starting some parts of my migraine management anew. Happily my new doctor is willing to instruct me. discusss side effects of medications and address my questions.

  • Gala Walker
    8 years ago

    I do not have the migranes, my husband does. He has had (maybe) hemiplegic migranes for the past 4 years. at first the doctors thought it was a stroke, because of the stroke like symptoms. Severe pain on his right temple, and weakness on his left side. He even passes out and has been hopilized many times. His eyes are wide open during these times but does not respond. Once he comes to, he doesn’t remember anything only has weakness and slurred speech. Doctors are not sure but are calling it a rare migrane. Stress seems to cause alot of it. Can anyone help me? Thanks!

  • Danielle Turney
    8 years ago

    Throughout my adulthood, I have always went to the “best” doctors I could find. A few examples would be: University of Michigan, Emory Hospital and major facilities in Washington DC.
    I have always felt alone with my migraine pain, that I was never going to enjoy my life again. I jumped through every hoop my dr. and insurance company told me I had to. Finally the FDA approved Botox; I pushed, I begged and I bullied my insurance company until they approved my Botox treatment. I have only under gone 1 series of shots, but while the Botox worked I have many pain free days. I was always told to stand up for myself, because no one is going to stand up for you. We, the migraine sufferers, need to stand up and push for research, for better education about our disease. Unless others have walk a mile in our shoes, they have no clue of our pain.

  • Lyle Henry
    8 years ago

    I totally agree and have just posted a blog about making migraine prevention your number one priority. See http://tuliv.blogspot.com/

  • Rosa Sundquist
    8 years ago

    This is so true ~ I’m always reading and looking for any and all info I can share not only with my neurologist and others in the medical system but also with my family. They are my support system and see and live the endless pain in my daily life.. Thank you for sharing your articles, the information on Migraine.com has been so very helpful to me. TEAM WORK! 😉

  • Louise M. Houle
    8 years ago

    You said it Migraine Girl. Education is key. In spite of the fact that my chronic migraines have worsened and become daily, in some ways I actually feel better because I am empowered through education. Every time I read about something new or different I discuss it with my neurologist. And, I often bring ideas about treatments to try to my appointments. I don’t expect him to have all the answers or the magical cure. We work as a team.

  • April Kenney
    8 years ago

    This is so true ~ I continue too learn from migraine.com and about my body. I then am able to carry the information to my health care provider for better results; often I am transfering the information to my healthcare provider. Thanks

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