Back to all discussions

filing for SS disability

Has anyone filed for SSD disability lately for migraines? How long until you got a decision?
I am pretty upset that I had to come to this point, but my migraines aren't being controlled.

  1. Has anyone filed for SSD disability lately for migraines? How long until you got a decision?
    I am pretty upset that I had to come to this point, but my migraines aren’t being controlled.

    1. Hi Mariaici,

      Thank you for your question and being part of the Migraine.com discussion forum - we're happy you're here!

      I'm sorry you are having a rough time. Migraine can be debilitating, exhausting and frustrating. I was approved for SSDI in 2009. The first time I applied I did it by myself and was promptly denied. I was approved with the help of my lawyer. We have information on SSDI in this section that may be helpful; https://migraine.com/migraine-basics/social-security-disability-insurance-benefits/.

      If you haven't had a chance to see a "true" migraine/headache expert, I would encourage you to do so. These doctors are board certified in headache medicine, which is different than being certified in neurology. Neurologists may be fine doctors but have a hard time being experts in one area because they treat so many different disorders such as stroke, epilepsy, multiple sclerosis, Parkinson's and others. Migraine/headache experts are just that, experts in one area - migraine and headache. When you get a moment take a look at this information on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.

      I hope this helps,
      Nancy

      1. Hi Nancy,
        Thanks for your support!
        Do you recall how long it took for SSDI to make a decision?
        I will read the the articles you referred to.

        Thanks,
        Maria

        1. Hi Maria-
          I filed my initial request for disability March, 2016 and received my first denial July, 2016. I hired a disability lawyer in August, 2016 and am waiting for an appeal hearing to be scheduled. Good luck!

          or create an account to reply.