jnelson
I live on Whidbey Island near Seattle. Does anyone know of a support group there or can anyone recommend a headache clinic?
Nancy Harris Bonk Moderator
Hi Jnelson,
I'm not aware of any migraine support groups in that area, but you may want to look into Meetup.com. This is a site that has all kinds of 'meetups' for different organizations, clubs and support groups. You can find that information in this link; http://www.meetup.com/.
When looking for an expert to treat migraine, it's a good idea to look for the individual doctor rather than a big name clinic. Those clinics are wonderful, but may not have the expert you are looking for in migraine/headache. You can also find a board certified migraine/headache specialist at the United Council for Neurologic Subspecialties or UCNS here; http://www.ucns.org/globals/axon/assets/10300.pdf. We also have information on migraine/headache specialists in this link; https://migraine.com/blog/looking-for-a-migraine-specialist/.
Good luck, keep us posted on how you make out,
Nancy
dttordai Member
Are there any groups in or near channahon il?
kippieloo Member
I'm looking for a support group in the Naples, Florida area.
jcat24 Member
Ann Wallace, Auntmimi from above I just joined and saw your post about Naples, FL. I'm in Naples.
I've been wanting to start a support group where I live. Did research, etc, etc. because there is nothing where I live that addresses Migraines and what we go through.
It would be so nice to call someone up and say, "hey I've got a migraine do you have one? The barometric pressure must of just changed."
But then Covid-19 hit. My friends say they can hear it in my voice when I answer the phone even if I try and hide it. They stopped calling me to do things years ago because they know I can't plan ahead because of the chronic migraine. I have to call them spontaneously. Which usually doesn't work out.
I just found this site and I like what I have read so far. It is a very isolating disease.
patchwork Member
Jnelson: I live in the Seattle area and I'm currently going to the Swedish Medical Center in Issaquah for the management of migraines, essential tremor, and restless leg syndrome. I'm seeing a nurse practitioner there who specializes in migraine treatment. Her name is Kate Kennedy. I've only had one appointment so far, which was the initial patient entry exam and it lasted for about 2 hours (very thorough).
Since I only just started treatment there I cannot attest to the effectiveness of care, but she seemed quite knowledgeable and I was reassured by how much I felt that she actually cared about trying to help me get my migraines under control. I really felt like she listened to me and I felt very involved in the treatment process.
I know Issaquah is quite a drive from Whidbey Island (I believe close to an hour and a half), but it might be worth it if you haven't had much luck finding a doctor elsewhere. Unfortunately, I don't know of any migraine support groups in the Seattle area either.
EDIT: Also important to note, the Issaquah location has a special migraine treatment service to assist in prolonged migraines. Same day appointments are possible for this service, though I think you have to call prior to 8:30am. It's designed to help when you've had a migraine for several days in a row. I can't think of the name of the service off the top of my head as I am unfortunately currently in migraine mode.
auntmimi Member
Hi Ann,
Have you found a support group in the Naples area yet?