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How do others grade and cope with a migraine when they feel one coming

I’ve had issues with headaches for many years. It was only about 8 years ago I realised it’s not normal. When one is coming it’s like a storm on the horizon, it can vary on how fast it comes but it is always coming. I’ll have as little as a 15m warning before the pain can be so intense I can’t see any more or my sense of balance is gone. At certain points I end up falling asleep to cope.

How do others regulate their migraines when they strike and how fast can the debilitations set in. Do others end up passing out at a peak too?

  1. hi again! Like you said, it can be hard to manage migraine. I have never passed out from a migraine. I do get severe vertigo and have hit items with my body. I want you to know that even though I have not passed out, you are not alone. We all experience our migraine a little bit differently than the next person. Here are some articles though, that I think you will find comfort and tips in: https://migraine.com/living-migraine/tips-increased-attacks
    https://migraine.com/living-migraine/life-changes-trigger-attacks

    I hope this helps get you started and is what you were looking for. (Tonya, team member).

    1. To answer your other question, there is a lot of variety in how fast you can go from fine to really struggling. There are even "thunderclap" headaches where there's nearly no warning. The best thing to do is take your medication at the first little sign that an attack is approaching.

      Are you on any medication at this time, and do you feel like it's working for you? What are you currently doing to try to manage?

      Just know that you're not alone in going through this. You'll continue to learn what helps you as time goes on, and we're here to support you. -Melissa, team member

      1. I was on a prescription of Triptans that I kept on me as an emergency course, but when I went to get it renewed for winter when they come more often, they wanted to not prescribe them any more and gave me sinus spray instead saying it sound like sinusitus. I did try saying I’ve had sinusitis before and they are in different leagues on pain but they were adamant.

        So as of now I have aspirin and sinus spray. So far I’ve had 2 episodes in a month, each lasting about 3 days. To combat the pain I use dispersible asprin ground to power so it’s almost instantly absorbing but it’s still like using the kitchen sink to put out a house fire. The sinus spray does nothing really.

        I was considering next time I’m really bad, going in so they can visually see what it’s like to be unable to tolerate light or sound… but getting there is a little akward at that stage.

        I actually had an episode while in the doctors waiting room and it was a student doctor there at the time, I don’t remember much for the visit as I was there for something fairly minor, but a few weeks later I was in and the student asked if I was better, commenting that I was clearly in another world last time and barely coherent from sensory overload! So it’s not exactly hiding!

        I’m not sure what other over the counter stuff to try, drinking a gallon of water is my only other option, that or going to sleep. As it happens I actually can force myself to sleep, I can’t explain how it works but I can sleep almost anywhere within 5m, but only if I can think clearly. So I need short term pain relief to get to sleep to give my brain a recovery break. Hard to do when it feels like your skull has how metal sloshing round inside it!

        1. perhaps you can clarify with your doctor this sinus route of administration - there are a lot of blood vessels and perhaps they thought that whatever is in the medication would be absorbed quickly (a bit like under the tongue?) - but regardless it sounds like whatever the ingredient is....it's not doing it for you! I'm curious though - does drinking a gallon of water stop your progression? Is seeking another opinion for getting a Triptan renewal an option for you? Wishing you a gentle day, Tracy (Team Member)

      2. I find that dehydration is a partial trigger, low humidity can give me a headache and if I get a mild one it can trigger a big one somehow. Once I’ve got a full attack I could drink a swimming pool and not get better but proper hydration is a preventative for me.

        That being said, intense heat and humidity like a sauna is a Nono! My work had a burst hot water pipe a few weeks back it took the plumber 4 hours to arrive and by then the boiler room was knee deep in boiling water, the concrete walls were all hot to the touch and their was condensation forming on the outer walls. The room temperatures were in the high 20s to low 30s with windows open. It was hellish but I had to wait for the plumber so I couldn’t leave as I was alone. The heat made my head throb

        Id probobly need an expert to be able to whittle down my experiences to a neurological reason but all I can do is learn certain experiences cause them, and to avoid anything associated with those experiences were possible.

        1. Wow - I can really empathise with the plumbing stress which I'm sure is also not helpful (water access issues aside). It is great that this can be helpful for you as luckily water is easy to access for us in the West. (I'm guessing 'high 20s to 30's) being hot means you're not in the North Americas (I'm in the UK). It totally makes sense to me to work on identifying triggers - even with a neurologist on board, that's useful information they'd want to have as well. Do you have a provider you're working with? Warmly, Tracy (Team Member)

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