I have been struggling with silent migraines for the past 3 years. Before that I had regular daily headaches, but for the most part I could "brush off" the pain. Three years ago I started to go numb in my hand. The next day I was numb down to my foot. That evening I was completely numb from my cheekbone to my toes on my right side. I also had muscle weakness.This lasted for 8 days. In that time my doctor believed it was MS. I had an MRI to rule it out. I started to pay attention to when the numbness would hit, as it was reoccurring regularly, and it was coinciding with my menstrual cycle as well as hot days. The neurologist I saw decided it was migraines, prescribed some meds and sent me on my way. The medication options I was given caused the same cyclical symptoms and a lot of side effects. I chose to stop taking them after 3 months. Since then I have been on Lupron to stop hormone production, and it seems to help the regular migraines, but as soon as we add back estrogen, I go numb again.
I guess I'm wondering if anyone else has experienced something similar. What was your formal diagnosis? Did you find a medication that worked?
I'm 32 years old and I really can't live in menopause without hormone therapy for the rest of my life, as my family has a history of osteoporosis, heart disease and dementia. The other thoughts some of my specialists have had are that it is related to an autoimmune disease, but that is being investigated alongside the rest of my ridiculous medical history.
If you made it this far, thank you for reading! I hope I can find some help. I'm not feeling very useful being numb all of the time.