What do you think is the most misunderstood part of living with migraine disease?
Since I don't suffer from terrible headaches. I'd say people understanding how difficult the other migraine symptoms are to deal with are.
I actually suffer from debilitating Migraine pain. I curl up in bed in my dark room sometimes I play soft music on my guitar other times I put it on UT. I have Ice on my head and heat on my neck.
The last seven days have been very bad I am just in the postdrome phase and while I have that after pain, I don't sit here and wait for the prodrome to start. I casn start w/o me waiting for it.
I really am so sick of the pain, not being there for my wife/kids/grandkids I live as I do since mid 2015's. At least now I can say, I am so happy to be on the other side of 79 yy.
Remember, NB, life's hard/painful even, then you go to some place unbelievable to us now. This is not a line...I know.
Take care,
Dr. GaryThat is something I rarely speak about but that has been my last seven days of Deep, Black, Dark, Migraine. I have had to but a bucket beside my bed. (?) I have never done that before because stomach sickness was never part of my migraines. My stomach always let me know it was there but not throwing up.
Add another, I guess.
That a migraine isn't just a "normal" headache. I've had people tell me to just take Tylenol and get "over it" I'd like those people to have one, just one of my headaches, with all the nausea, pain and inability to open your eyes because the light hurts.
They know nothing and do not deserve to make comments like that. I agree!!!
The extreme traumatizing pain!
Lights hurt ! its real pain
Noise (even a little bit) is like stabbing my head
And above all the aura! No one understands, I have trembling legs, balance issues, trembling hands, n ppl think including my mom that I am just nervous,some say I run from work,or they'll say I am lazy.....
And now I even have started having vertigo,though it's not severe but it stops activities....I have Vertigo too. For two weeks now. I’m not getting much relief from the migraine either. Feels like someone stabbing me in the left eye and in my temples and forehead. I’m thinking of trying Aimovig, but not sure yet.
Please see a smart doctor who handles problems like yours.
It would probably have to be a neurologist, but do it for you!
You sound young - If no one is supporting you, including your mom (mine did not support me either) you need to go ahead on your own and find a real doctor!
If you have no insurance or money then go to a public clinic and tell them (with conviction) that you are suffering with this and need help now.
Good Luck.
Worst is people just caring about how it inconveniences themselves and not understanding how hard it is to live with and overcome.
Do not associate with people like that.
Find people who understand!
