A New Low: Migraine Causes Hair Loss And Tooth Decay

By Holly Harding

Last Updated:

1 min read

Migraine takes and takes and takes! As if navigating severe pain and complex neurological symptoms weren’t enough, we might also have our vanity taken to task by this disease. Due to medication side effects and stress, many of us struggle with hair loss. Additionally, if migraines cause vomiting on a frequent basis, tooth decay may be another real concern.

Are hair loss and tooth decay related to migraine?

In this video, we discuss the reality of both hair loss and tooth decay and invite you to join in the conversation in the comment section below.

How has migraine impacted your body? Have you experienced hair loss or tooth decay? Let us hear from you so that we can learn from one another!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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thekimberly75 Member

Hi, I had a full set of dentures at 51 and I know it was from constant vomiting from migraine, and, even tho they tell you different, they say it is a hygiene issue, I was on methadone as a migraine preventative at roughly the same time. Steroids only work 40/60% of the time for me but nearly always give me horrible insomnia for the full run of the course, as well as being extremely agitated and having an increased level of hostility. In other words, I’m best left alone. I have been chronic now for 20 yrs, with a 45 yr migraine history. I am nearly 62. I don’t expect it will change much, at this point. (Remember, Hope is a double-edged sword)
1. Holly Harding Member
 
 Hi there, <inline-mention user-id="3794338" username="thekimberly75"/> - thanks so much for chiming in! Glad this piece resonated with you, though not entirely sure it's a good thing that it did, as no one wants to have such an awful thing as tooth decay caused by profuse and repetitive vomiting! It can be so difficult to find something that works, treatment-wise, and then when that thing ends up being weighed down with troublesome side-effects almost as challenging as the migraine itself, we are between a rock and a hard place. And yes, I know exactly of what you speak regarding the tricky nature of hope: <a href='https://migraine.com/living-migraine/the-intersection-between-hope-and-acceptance' target='_blank'>https://migraine.com/living-migraine/the-intersection-between-hope-and-acceptance/</a> So glad you are a part of our community. We have a similar history of migraine in terms of length, by the way. Please stay in touch--because even though I wouldn't wish this disease on my worst enemy, it really helps to know there are others out there who are navigating the same kind of life and challenges.
glassmind Member

So true. I know someone who suffers abdominal migraines and has much dental problems from recurrent vomiting. Thanks for raising awareness of the many complications of migraine.
not found

I have dealt with hair loss for quite some time. I naturally have thin, fine, straight hair as it is, and it has always bothered me because it is rather flat as it is. I've been on migraine preventives for quite a long time and it finally occurred to me that maybe a medication was causing hair loss. I asked my doctor and she knew exactly which one it was and she helped me taper off of it. It did take about a year for my hair to grow back in and they way it growed in was in funny little short pieces. I had lost about 1/3 of my hair too. Since I didn't have much hair as it is, this side effect bothered me a lot.
1. chrisssyclapp Member
 
 <inline-mention username="Holly Harding" user-id="3755969"/> thank you for those links-I’m only on 50 mg daily of topimirate…do you have a recommendation for a replacement?
2. Holly Harding Member
 
 <inline-mention username="chrisssyclapp" user-id="3697392"/> As we're not medical professionals, this would be a question best asked of your doctor for sure. That said, Topamax is a preventative and there's lots of options for prevention out there these days including CGRPs, Botox, and many others. Here's an overview of preventative options: <a href='https://migraine.com/migraine-treatment/prevention-medications' target='_blank'>https://migraine.com/migraine-treatment/prevention-medications</a>. Depending on your migraine condition (severity and frequency) your doctor may choose more than one of these. Would definitely be good to ask for ideas at your next appointment. Do you have an appointment coming up soon? Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
kellikens Member

I don’t vomit that often but get wicked heartburn along with my migraine. Apparently, that acid is enough to make my teeth crumble. Very upsetting!
1. Holly Harding Member
 
 Oh my, that IS upsetting. Is that related to a medication or to a stomach upset that comes with migraine? Do you take anything to address the heartburn? Curious what your doctor has recommended to help with that issue. Thanks for sharing!
vada61 Member

I don't have much vomiting (lucky for that one) but the topiramate has caused my hair to thin out I think. I have invested in good hair products and am getting some regrowth so now getting the little sprouts coming up thru my hair...thats fun...not! I'm not even sure the topiramate is helping me much so I think I may stop it and see what happens. Anyone have reactions with topirmate like this?
1. vada61 Member
 
 Thanks so much for the response. I will check that forum out. I have heard of biotin and will definately look into that. Thanks for the help!!!
2. kjdnp Member
 
 I'm so happy so see this (not that you have hair loss, but that others have experienced hair loss with Topamax and that there might be a solution). I've been experiencing hair loss from Topamax and my neurologist seems so surprised to hear that it is a side effect. I will check out the forum.
Mare2 Member

Thanks for another great article. My issue has been my teeth likely from the acid in my throat and the steroids I’ve taken over the years. As if my migraines haven’t already stripped me from the person I once was but now they have physically done havoc on my body. I’m 61 yrs and have suffered for 40 years, they’ve gotten worse over time and now all I can do is hold onto hope.
1. Holly Harding Member
 
 Hi <inline-mention user-id="3924864" username="ameoch"/> - I'm not sure I can say that I'm glad this article resonated with you as I wish no one else was dealing with these types of issues! You are so right to make the point about migraine taking so much from who we once were (emotionally and perhaps taking us away from our families and career)- that it can feel like a step too far when the condition impacts our physical appearance too. It sounds like you've had quite a lengthy journey with migraine. Please know you are not alone in that or in the rest of the challenges that accompany the disease. So glad you are a part of our community. Please stay in touch.
sallyp Member

Hi- sadly reassuring knowing I’m not the only one dealing with hair loss and dental issues. I think since I’ve been on amitriptyline my hair has thinned. It took a few months and then one day I was “whoa”...I will look into Biotin. And thanks to an ER doctor’s recommendation a few years ago- to supplement with Gatorade to keep my electrolytes up- my tooth enamel suffered badly because of the acid in Gatorade (not the sugar). Turned to SmartWater and then tapered off that and am vigilant about drinking water all day. Sigh.
1. Holly Harding Member
 
 Thanks for chiming in on this, <inline-mention user-id="3876026" username="sallyp"/> -- you're so right- it's not the kind of thing any of us wants to have in common- but it's also a relief to know we're not alone. Great guidance about focusing on hydration. Thanks for sharing- glad you're a part of our community!
mels060473 Member

I'm in the same situation with my teeth. All 6 of my front upper teeth need crowns as they are so bad. Dental coverage is awful ($4k rotal for 6 teeth) and I'm a single mom so i will likely end up with missing teeth soon. I get really bad side effects with Imitrex and stuff so I usually suffer and take OTC meds. Doing so over the past 20 or so years has apparently caused liver damage. Just letting you know to watch how many Excedrin and Tylenol you take! I'm hoping my liver will repair itself but I can only take ibuprofen for my head. And we know how well that helps...
1. kgburt Member
 
 <inline-mention username="shayla.oakes" user-id="4211428"/> Not as of yet. Fortunately, they aren't as intense and debilitating as they once were -- some upside to age! LOL! Ive been involved in many studies for different pharmaceutical companies but so far nothing seems to work to abort them thoroughly. I used to inject myself deep into my hip with DHE from ampules but doctors frown upon that now too. Ive been told it's too risky to allow me to do this at home. Anyway, I do what I can for now. Perhaps one of these new meds will be the ticket to relief. I am still hopeful.
2. shayla.oakes Community Admin
 
 <inline-mention username="kgburt" user-id="3789169"/> hey there. I just wanted to check in and see you are doing? Can you believe we are coming upon 2022? Where did 2021 go? Shayla (<a href='https://migraine.com' target='_blank'>Migraine.com</a>, Team Member)
we7s81 Member

I have both migraines and seizures so I have been on so many meds to try and prevent both. The most recent has been Lamotrigene..aka Lamictal. For years i have had dental issues but none like the past 7 years on Lamictal!! My teeth are brittle, they have broken off at the gum line or have cracked, only to break later. My front upper teeth are "decalcifying" according to the dentist...and only $10k worth of veneers will fix them.....or so I was told 7 years ago. I rarely smile and show my teeth they are so bad. Still have the headaches and the seizures.....
1. Holly Harding Member
 
 Ugh- so sorry to hear about this reality - although it is one many of us share with you. With dental work being so out of reach financially (and many of us either underemployed or disabled due to migraine), we are left smiling with our lips shut. Sorry also to hear about the double whammy of having seizures as well as migraine disease. I do know that there are several medications out there that treat both (Topamax- a medication known for causing hair loss- is a commonly prescribed to migraine patients which was originally created for seizure patients). I'm sure you've tried them all. Glad you're a part of our community. You are not alone and we are thinking of you.
bethyoung Member

I’m such a mess. Was on a triptan for rescue and had a couple TIAS and a stroke. Thanks to throwing up and acid reflux and some medications that caused dry mouth, I’ve lost almost all my molars. Plus thin hair. I’m taking steroids for a bad pneumonia and unfortunately I’m dealing with a migraine too. I keep hoping that the Ajovy shot will help more. Between that and Fiorecet...that’s all I have now.
1. Holly Harding Member
 
 oh, <inline-mention user-id="3682865" username="bethyoung"/> ! I'm so sorry to hear this. Thank you so much for sharing what you're going through so that we can send you good thoughts. Sounds like a particularly challenging time in an already rough migraine journey. I went through a very stubborn pneumonia last summer that led to 2 months of steroid use, resulting in massive hair loss. So frustrating especially when the migraine cycle continues atop all of that! I also wanted to share, regarding the Ajovy- that for me at least, I didn't have a great response with Aimovig but do seem to be having a more dramatic turnaround with Emgality. Not all CGRPs (even though they are the same drug) inspire a similar response in us as patients. Maybe worth discussing with your doctor. Hopefully you have more options left after all? Thinking of you and so glad you're a part of our community. Please stay in touch and let us know how you're doing.
greeneyednanny Member

Yes, migraine really is the monster we say it is and keeps on delivering the "hits". I suffer severe trigeminal nerve pain in the roof of my mouth with the migraines, along with head pain, nausea, etc. In 2016 it became literally over the top painful and very long term (several months with the same migraine) and I couldn't bear to chew anything with any substance. I lost a massive amount of weight and suffered some temporary malnutrition. It's common to lose hair approximately three months after such trauma and for it to take months to regrow. Years before I lost my teeth due to Sjogren's Syndrome and prolonged vomiting due to migraine. All my teeth had to be removed and I ended up with a full set of dentures at age 48!! At 65, my migraines are worse and more severe than in my twenties or thirties. My biggest concern now is bone loss, due to so many days in bed with the monster. No, he does not play fair.
1. Holly Harding Member
 
 My gracious- you definitely demonstrate the way that migraine can impact our bodies comprehensively. So sorry to hear about the very serious dental challenges, hair, weight, and now concerns over potential bone loss. Thank you for sharing your story as many of us can relate and it helps to feel less alone. Glad you're a part of our community- thinking of you. Please stay in touch.
sherikay Member

I am noticing increased hair loss these days, about the past year. I used my phone to see the top of my head. Very discouraging. Won't do that again. I had been using migraine headbands frequently and wondered if that was stressing my scalp and hair. So I've switched to using a sleep mask for pressure. I'm taking calcium too. I'm starting to wonder if I'm going to need a wig. The tooth decay fairly has visited me too. Last summer I had root canal and 2 crowns, and then an extraction and dental implant. No dental insurance. My dental office felt that my teeth were affected by dry mouth from some of my meds. I take amitriptylin as migraine prevention. Also on zoloft since my mother's death.
1. Holly Harding Member
 
 Thank you for chiming in and sorry to hear that you, too, are navigating dental challenges related to migraine. I'm glad you pointed out the issues related to dry-mouth as I'm certain that is a common problem for migraineurs due to the fact that so many medications we take carry that side effect. I wonder if there's anything that can be done to offset dry mouth in order to prevent dental issues? Thanks again for joining the discussion- so glad you're a part of our community.
thekimberly75 Member

I’m 62 and have had migraines since my teenage years. For several years I took methadone as a preventative, which did cause dry mouth, like nearly all of the seemingly hundreds of meds I’ve tried over the years and it did seem to help somewhat, and even though my teeth literally started breaking off, they said there was no correlation. However, in my 40’s I lost so many teeth I had no choice but to go full dentures at 51. I have no real hair loss to speak of. * NOTE TO SHERIKAY: Please look into the safety and efficacy of root canals. I know we all hate having them done, but I watched an illuminating documentary a year or so ago regarding their high failure and complication rates. I don’t think your own dentist will be very forthcoming, so you should research articles yourself, specific to the subject of why root canals fail.
1. Holly Harding Member
 
 Thanks so much for sharing. And yes- so many migraine meds do cause dry mouth. Interesting that the doctors didn't make the connection! Glad you did, for the rest of us. - Please stay in touch!
2. Holly Harding Member
 
 Yes- methadone is among the treatments that can be used as a preventative for migraine. Not super common, but definitely one of the many.
dephinem Member

Hello, Last evening my husband alarmed me when he said “Honey, you have some bald spots on the crown of your head and your scalp is really pink.” I also have been noticing when I shampoo my hair that what I gather in my hand is a much smaller bundle of hair. I got up this morning and did a search for “Can chronic migraines cause hair loss?”. My search brought me to this article. Now what? What do we do? I’ve been on the 3 new migraine Injectables for the last 2 years but I also experience stress on a regular basis due to chronic migraines. Any one have any advice for the hair loss?
1. Cheryl Picerno Member
 
 <inline-mention username="Jackie M" user-id="6657783"/>, thank you for sharing what you are experiencing, and for becoming a <a href='https://migraine.com' target='_blank'>migraine.com</a> community member! We are glad you're here. I always try to remember that we all react differently to medications. Our bodies are very good at letting us know what they will tolerate and what they won't. Propranolol has a pretty small side effect profile, but if your body rejects it then that is all that matters! I'm glad that it is working well for you. The CGRP class of medications has been life changing for many people, and others have no luck with them or the side effects are unacceptable. I tend to agree with your thinking regarding the injectables as those are your newest additions. Many medication issues improve over a little time, but it is defininately something you should talk about with your doctor. It may be frustrating for both you and your doctor, but if you work well together, there will be another therapy regimen for you to use. I've heard many people's concerns about hair loss and weight gain with the CGRP injectables. Depending on how helpful they are to you vs the side effects you experience can guide your discussion with your doctor. Explaining how migraine-related things impact our daily lives is not always something we think about discussing with our doctors, but it should be an integral part of finding ways forward in effective management of our conditions. I'm happy you are still pushing forward with managing your migraine disease. Suffering for so long can leave us discouraged sometimes, but there is always hope for better things to come. Stay strong and enjoy the community! We are here to support you and learn from your experiences. Let us know how you are doing moving forward. Warmly, Cheryl <a href='https://migraine.com' target='_blank'>migraine.com</a> team
2. Holly Harding Member
 
 <inline-mention username="Jackie M" user-id="6657783"/> Thanks so much for chiming in and welcome to the community! Have you noticed whether or not the Emgality is working to decrease the severity or frequency of your migraine attacks? I only ask because if it is helping - there are some options to consider that might help to address the hair loss including Rogaine and a wonderful nutritional supplement called Biotin. This piece talks about hair loss and in the comment section that follows, our community members shared a lot of approaches they have tried to address the issue, in case you are interested: <a href='https://migraine.com/living-migraine/hair-loss-tooth-decay' target='_blank'>https://migraine.com/living-migraine/hair-loss-tooth-decay</a>. Thanks again for your comment and so glad you're with us- sounds like you have a lot of wisdom you could share with such a significant journey with migraine. Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
azreynolds Member

I thought my migraine meds cause my fibromyalgia to flare up. At least I blame the meds in the past. Now I'm avoiding Relpax due to the fact that my flu-like symptoms are lasting longer and longer, now up to three days. So now I'm using a combination of CBD oil and T-Relief, then oxycodone to fight the migraines. Since fibro flare ups are still happening on a regular basis, I have wondered if migraine is bringing on more flares. Maybe it's just a perpetual pain machine?! On begetting the other like you mentioned in your previous article. Either way, it's my life so I must...MUST... find a way to be happy within it! Find the joy! Ummmm, right now my joy is going to be a hot cup of joe!
azreynolds Member

I thought my migraine meds cause my fibromyalgia to flare udp. At least I blamed the meds in the past. Now I'm avoiding Relpax due to the fact that my flu-like symptoms are lasting longer and longer, now up to three days. So now I'm using a combination of CBD oil and T-Relief, then oxycodone to fight the migraines. Since fibro flare ups are still happening on a regular basis, I have wondered if migraine is bringing on more flares. Maybe it's just a perpetual pain machine?! One begetting the other like you mentioned in your previous article. Either way, this is my life so I must...MUST... find a way to be happy within it! Find the joy! Ummmm, right now my joy is going to be a hot cup of joe! 
1. Holly Harding Member
 
 So hard to parse things apart when there are so many dynamics at play- and this is the case for so many of us. What came first? The chicken or the egg? What is flaring up the fibro? The migraine attacks? And yes, the pain and the related treatments can make us feel like we are just chasing our tails. Your statement reminded me of this article: <a href='https://migraine.com/living-migraine/whack-a-mole-chasing-freedom-from-pain' target='_blank'>https://migraine.com/living-migraine/whack-a-mole-chasing-freedom-from-pain/</a> And good for you! Get that cup of coffee- sometimes it's the simple pleasures that can have the greatest impact on giving us comfort and helping us get through each day. One foot in front of the other, my friend. Thinking of you.
justnutz Member

Im 49, 8 months ago I broke a bunch of cervical vertebrae and a couple thoracic ones in a trampoline a accident. Had ACDR last August. Walk and talk and maintained by continence and use of bowels. However, in Nov developed Right sided migraine ( didn't know ) thought it was residual effects from trauma, as my neuro said in December I was experiencing sensory disturbances. Was nearly paralyzed by Jan. ( numb, constant dull ache, weakness) on right side only before I finally had my PCP look at me in January. Treating with muscle relaxer and triptans along with a steroid shot for right leg . Symptoms dulled but remain.. this week, my right side, back of skull base, massive hair strands released ( physcially felt like a tourniquet release) as I rinsed hair in shower last couple times. I go back to PCP in April possibly for prophylaxis, see my neuro surgeon again in March. What the heck is going on ? I was on a good road to recovery from Aug surgery to mid October. Still don't drive or golf. Can lift up to 25 lbs now and continue to work to build my strength. Is it normal to lose hair in one area only? Will it stop when my headaches are under better control? I've never had headaches and didn't even realize that's what could be happening.
1. justnutz Member
 
 So yes, the tmj exercises i just looked up on the internet. There are just a couple i am doing right now because my jaw is very weak. Here is the link i used to find the couple i chose from , <a href='https://www.healthline.com/health/tmj-exercises' target='_blank' rel='noopener noreferrer ugc'>https://www.healthline.com/health/tmj-exercises</a>
2. justnutz Member
 
 I still have to wait to get to the bottom of WHY. Im good with a soft food diet vs the corona. Lol. PCP will want more skull base imaging and im sure another trip to the dentist, just not the one who pulled my tooth. He didnt give me stitches , he said good luck, here is some antibiotics. Freak.
ccones Member

I have really experienced hair loss. I have a wig, but it is so confining to wear. Only use it for special occasions
1. Holly Harding Member
 
 Hi ccones- Thank you so much for chiming in. I can only imagine the confining sensation of wearing a wig a top dealing with the oftentimes vice-like sensation of migraine. Must be awful. There's also the condition of allodynia - which, if you have it, I would imagine would be exacerbated by wearing a wig: <a href='https://migraine.com/video/secret-touch-hair-skin-sensitivity' target='_blank'>https://migraine.com/video/secret-touch-hair-skin-sensitivity/</a>. Thanks again for sharing your experience with us. I hope you'll stay in touch. - Holly (migraine.com team).
ninafranco Member

I have never used steroids but I use sumatriptan, Aimovig, and botox. The last two are recent so I don't think they have anything to do with any hair loss. For almost 20 years I have been using a generic Rogaine each morning. My hair was quite thin, maybe it was just the usual getting older but it did could correspond with my increased sumatriptan use. A friend who was a nurse and whose husband worked for Pfizer, the makers of Rogaine, clued me in. I buy either the Walmart or the Amazon Kirkland brand. You can buy 6 months worth for about 25 bucks. It is a clear liquid that smells very little, only a tiny bit like alcohol. I use one dropperful on my scalp. You might start with twice a day, IDK, read the instructions. It takes 3 months for hair to grow in and if you stop using the stuff your hair will start falling out again. Very simple to use. Here is the funny thing, Most of the time, I get my migraines on the right side, have been for 50 years. The right side of my head often feels hotter to the touch than the left. Now my hair does not grow past my shoulder on the right. Grows normal on the left, never past the shoulder on my right. I let it grow for a while, then go to the salon and tell them to even up my hair, match my left to the right. I have a theory that the extra heat/blood flow inhibits hair growth.
1. jennifer70 Member
 
 I contacted Rogaine and they said it does not work for migraines or hair loss from meds. It only works for hereditary hair loss. The hair cycle grows hair every 3 months so likely why people see results using rogaine... it’s not the med, it’s the hair cycle
2. Holly Harding Member
 
 Jennifer70- Thank you for taking time to call the company and sharing the results of that call/research with us! Fascinating! And interesting to hear what your acupuncturist said about blood flow and hair loss. Did she have ideas about how to address that? Warmly, Holly (migraine.com team).
jenfer Member

I began to experience hair loss and breakage shortly after beginning Botox treatments, however I could never find anything online about side effects relating to Botox. I take triptans and topamax as well however it seemed to coincide with my Botox cycles. Anyone else experience this? It also began at around age 42 so is that just part of aging? So many things to consider.
1. Holly Harding Member
 
 Hi jenfer- thanks so much for chiming in. So sorry to hear of your experience with hair loss and breakage. You are right to bring up all the various factors at play. From medications to aging, it can be difficult to pinpoint the actual cause of this issue. I have heard people mention hair loss as a side effect of using Topamax- and of course aging can cause it as well. Like you, I have not heard of hair loss in relation to Botox. I suppose to get to the bottom of it, you could try taking a break from Topamax (if your doctor agreed and if it wasn't a key part of your treatment protocol, of course!). Ultimately, no matter the cause, the treatment is up to you. There is a good discussion that follows in the comment section below as to various approaches. Thanks again for sharing! - Holly (migraine.com team).
wlhilliker Member

Found out vomiting isn't the only reason for tooth decay and/or loss - several of the preventative medications that I have taken or currently take cause dry mouth and I went from having a decent twice yearly dental checkup to many (10+) cavities, two root canals (w/ crowns), and two teeth extractions. Nobody warns you about this - I spent a ton of money in my 30's for braces and even had jaw surgery to correct a congenital jaw deformity and now I feel like I've wasted a lot of money and lost the self-esteem I gained in the process.
1. rcola Member
 
 I know how you feel. I love my teeth and have never had any problems with them even when I was a kid and then I wen to the dentist in college and I was told I had seven cavities when I had never had even one. Turns out it was due to medications like topirimate I had been on as a migraine preventative. It causes dry mouth and therefore ALOT of tooth decay but like you said no one tells you.
2. Holly Harding Member
 
 rcola- Thank you so much for chiming in. We are grateful you are part of an effort to help inform others about what to expect. Dry mouth can cause major teeth issues, and many migraine medications have that side effect. So glad you're a part of our community and hope you'll stay in touch. Warmly, Holly (migraine.com team).
justnutz Member

So yes, the tmj exercises i just looked up on the internet. There are just a couple i am doing right now because my jaw is very weak. Here is the link i used to find the couple i chose from , <a href='https://www.healthline.com/health/tmj-exercises' target='_blank' rel='noopener noreferrer ugc'>https://www.healthline.com/health/tmj-exercises</a>
1. Holly Harding Member
 
 JustNutz- I know you've been through a lot lately and I'm grateful you took the time to circle back with this resource. I know I'm not the only one who will find this of use. So glad you're a part of our community. Thinking of you. Please stay in touch! - Holly (migraine.com team).
justnutz Member

Still struggling... My kingdom to narrow this down. The dentist is not the route. The new one wants to pull all my teeth. Lol my teeth are beautiful. . Not happening. . Ill pull them one at a time as needed if necessary, but to pull all for implants? Sounds like a car salesman to me.... After finding myself in ER for uncontrolled high BP ( after my dentist appt. Shocker) , thinking i was stroking out, but finding out my heart is infact golden ( far as tests can tell ) my headache log would argue a clear case of occipital neuralgia . There. My doctor finally uttered those very words. My neuro shot down any shots in my spinal column at c2, or 3, but they are both on board for a whack at a nerve block in my scalp near my condyle maybe! Me too.
1. Melissa Arnold Community Admin
 
 Hi, JustNutz. What a tough ride! I'm sorry your dentist suggested pulling healthy teeth -- I hope you can find someone else that you feel you can trust! It seems like you're doing a good job keeping track of things and prioritizing your health -- persistence is key. Hang in there. We're here for you ... please let us know how the nerve block works! Take care, Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
chaoslette Member

Hi im a 30 year pld single mom of a 4 year old i suffered from horrible ocular migranes since i was little my teeth have always been really pretty and well taken care of but after years of trying every medication in the book i have yet to find any relief after having my son with whom i had a stroke while i was pregnant tho the baby and i ended up ok after. About 2 or three years ago my teeth have gotten worse n worse slot had to ne pulles n wvwn still alot have rotted out im even missing my nain front tooth as well as sereval others n im constantly in pain but my dentist will for someone reason only take out one at a time im tryin to fimd a new dentist im just limited transportation n resources as well as money n im scared if i take or lose anymore i wont be able to eat and i cant afford implants...dentures are not really a good option but i may have no choice..ive also experience frequent hair loss..i thought it was from my dyeing of kyehair but its interesting to se its a migrane side effect as well.
1. Holly Harding Member
 
 chaoslette- Thank you so much for sharing some of your story with us. Yes- hair loss and challenges with your teeth can definitely be related to your migraine disease. I'm so sorry to hear how much you have been struggling. What an intense journey! It sounds like you are doing the best you can despite it all. We are here for you as you continue forward. You are not alone! Hope you will stay in touch. Warmly, Holly (migraine.com team).
phoenix311 Member

I have chronic daily migraines. And Last year I had 6 broken teeth. And only one was while eating. the others I wasn’t eating at all. All had small decay, this was the first time in ages. I am not sure if it was due to migraines and grinding my teeth, my migraine meds or arthritis meds or some combo. It has currently slowed or stopped. Haven’t broken a tooth for several months now. Eek hope I didn’t just jink myself.
1. Holly Harding Member
 
 Hi Phoenix311- So sorry you're living with chronic daily migraine and that you had 6 broken teeth last year! That's a lot of dental work! I hope this current break in those challenges is a sign of things to come. Thanks so much for sharing! Warmly, Holly (migraine.com team).
parmes Member

I completely get this. I used to vomit a lot and that was a bad set up for the medication I take that rots my teeth. Plus my jaw being tight/grinding being a huge migraine symptom, my teeth are really bad.
Holly Harding Member

So sorry you can relate to this. I hope the fact that you said you "used" to vomit means that is a symptom that's in your past? If so, how did you get a handle on it? I'm sure many of us would be most interested to learn from you! How do you handle the jaw issues? Have you ever been evaluated for TMJ? Thanks so much for chiming in- grateful you are with us. Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
sheny Member

I was sure my tooth decay was from continuous vomiting with migraine and said to the dentist "who wants to swirl there mouth out with mouth wash every time they vomit". My dentist just wrote in my notes poor oral health!! I am now 64 and had to have the remaining top 8 teeth removed and wear a denture. At this stage I just have 4 teeth on a plate for my lower clampers! I am sure there could have been no other outcome for me. My parents both have their full set of teeth as well as my siblings. None of them have migraine.
1. Holly Harding Member
 
 <inline-mention username="sheny" user-id="3883286"/> Wow! That is very intense and does go to prove how much our teeth can be impacted by repetitive vomiting. So difficult when dentists are ignorant about the tie between this and migraine disease. I REALLY feel for you regarding having 8 teeth removed! I only had 1 taken out and it was a huge ordeal in terms of time, pain, and expense. I very much appreciate you sharing some of your journey with us. It helps us all to feel less alone when we see we are not the only ones navigating these difficult realities. So glad you're with us- hope you'll continue to share your story and wisdom with us. Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
sheny Member

Thanks for that Holly. My thought processes are so muddled nowadays that I find it difficult to stay tuned into this wonderful site but it has been such a blessing after so many years of boxing along alone, to be able to connect to understanding humans. I have actually hit a bad patch again and really thought maybe I was getting dementia and never realized so many of my symptoms can be tracked back to migraine. My family encouraged me to go back to the Dr but here in NZ it is very hard to get to see a Neurologist that specializes in Migraine, even with Medical Insurance. I am going through the process now of being referred but will need to travel to the North Island. I will do anything to get back even a tiny bit of what I was.
1. Holly Harding Member
 
 <inline-mention username="sheny" user-id="3883286"/> You are SO not alone in feeling overwhelmed by the many symptoms of migraine - and in feeling isolated by it. You've just done a terrific job articulating the many challenges of migraine. This neurological disease is so comprehensive and complex - the brain fog alone makes our ability to evaluate, manage, and pursue treatment for migraine very difficult. Good for you for pushing through despite all the roadblocks to pursue treatment and care. Your last sentence is one to which so many of us can relate. Really appreciate your sharing and being a part of our community. Please stay in touch as you are able. Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
jpaula Member

I have definitely had hair loss over the past five years or so. When I looked it up it seemed that Aleve and Advil could cause hair loss. I take a triptan and it says no. I rarely vomit however I have to get 3 caps on my molars - I thought that it was just age but perhaps not. 
1. Holly Harding Member
 
 <inline-mention username="jpaula" user-id="3777791"/> Fascinating. Thank you for sharing this. Could be a combination of factors (jaw clenching due to pain, vomiting - however infrequent - and the advil/aleve- which is interesting- I've never heard of that side effect) leading to the caps on the molars. Grateful to you for sharing with us and glad you're part of our community. Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team. 
2. Melissa Arnold Community Admin
 
 <inline-mention username="jpaula" user-id="3777791"/> Re: hair loss, do you happen to take any of the newer CGRP drugs (Aimovig, Emgality, Ajovy, etc)? Some of them have been associated with hair loss. Just something to consider. -Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
Harmonyfields Member

I was so relieved to see this. I just had crowns put on every single one of my teeth because of tooth decay. My Prosthodontist asked me if I was bolemic. Nope…now I can respond “I have migraines”
1. Peggy Artman Member
 
 @Harmonyfields, Yes, now you can respond, "I have migraines!" Do the crowns look good? I'm wondering if there is a positive to look for somewhere in all this. Wishing you a low-pain day. Peggy (Migraine.com team)
2. Holly Harding Member
 
 <inline-mention username="Harmonyfields" user-id="6912410"/> Ah! I'm so glad to see THIS! It's always such a relief to be reminded we're not alone, right? I'm sorry you've had to go through this - dental procedures are never fun - but I'm glad to find someone else who can relate. Thanks for speaking up. Glad you're with us. Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
Harmonyfields Member

It has been so nice to be able to smile again without being embarrassed by my teeth. Thanks for letting me know I am not alone. ♥️
1. Holly Harding Member
 
 <inline-mention username="Harmonyfields" user-id="6912410"/> Congratulations for getting to the other side of those procedures and feeling able to really smile again. I know this feeling after going months without one of my teeth while waiting for the process to finish. It's such a relief to get everything back on track to feel that baseline confidence return. So glad you're with us. Please stay in touch! Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
CommunityMember6922845 Member

My dental health is pretty good. But I see that possibility regarding hair loss. I thought perhaps just estrogen lower as we age, but I remember one headache in my 30's where "my hair hurt" is that neurologically even possible? But that is what I felt and said. It would not surprise me if other have scalp symptoms. My mother lived to be 102 and as beautiful as she was her hair and the thinning of it made her very sad. My family has chemical migraines and I think she suffered the most. Empathy to you all. 
1. Cody Leach Member
 
 <inline-mention username="CommunityMember6922845" user-id="6922845"/> Hi there. Thanks for posting and sharing your experience! It is in fact possible for your hair to hurt when experiencing a migraine. The symptom is called allodynia. We have a video about allodynia that you can watch here: <a href='https://migraine.com/video/secret-touch-hair-skin-sensitivity' target='_blank'>https://migraine.com/video/secret-touch-hair-skin-sensitivity</a>, and we also have another more lengthy article about it as well here: <a href='https://migraine.com/blog/migraine-allodynia-and-central-sensitization' target='_blank'>https://migraine.com/blog/migraine-allodynia-and-central-sensitization</a>. Let us know if that information was helpful, and if you have any other questions. We'd be more than happy to help! - Cody (Team Member)
2. Holly Harding Member
 
 <inline-mention username="CommunityMember6922845" user-id="6922845"/> The experience of hair hurting is very real and as Cody mentioned, is something called allodynia. I have it quite often. Did you only have it that one time in your 30's or have you experienced it more regularly? Also, I hadn't heard of the term "chemical migraines" - what does that mean? Thank you for being a part of our community! Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
mishakachina Member

 Thank you for sharing your story. I am so sorry to hear how you struggle with this disease. Most of the teeth in my mouth are now crowns or fillings so I can empathize with your dental woes. I too have hair loss. This November will be 30 years that I have been getting migraines. I have tried a variety of allopathic and natural treatments over the years plus keep a food journal because certain foods do trigger them (chocolate, citrus, etc). When we have changes in weather that can trigger them as can heat and humidity. Currently I am getting neurofeedback a few times per month and it got me out of an intractable cycle. I take supplements and find meditation, yoga, MBSR seem to help. I still get migraines weekly but at least it isn't every day and they tend to be less severe. If I try to live like most folks or work too many hours, I get slammed. I need to rest at least one day per week or I get hammered. 
1. Holly Harding Member
 
 <inline-mention username="mishakachina" user-id="7001165"/> Thank you so much for sharing some of your journey with us. I resonated with so much of what you shared. You clearly are a very experienced, and therefore wise, person with migraine. For those community members who may be reading along, I wanted to share that MBSR stands for Mindfulness-Based Stress Reduction - which is a type of meditation therapy. By the way, if you're interested in sharing more with our community about this approach, and the way you employ it for managing migraine, we'd love to invite you to do so on our stories page here: <a href='https://migraine.com/stories' target='_blank'>https://migraine.com/stories</a>. I was surprised to see how little we have on that approach on our site thus far- so, if you'd be willing to help us learn more about this, we'd be grateful! Of course, there are plenty of triggers that we cannot avoid (barometric pressure, hormones, moon cycle, etc) and for those of us who have multiple triggers, this can mean frequent attacks regardless of how hard we work to control our environments. That's when it can be so key to come up with strategies to respond to and relieve the pain. Again, there can be a sense of both power and calm when we realize that we have the ability to quiet some of our pain on our own and without the use of medication. Learning breathing, relaxation, and meditation techniques can be surprisingly effective in decreasing pain. That said, as we all know, migraine can pack a powerful punch- and there are multiple symptoms in addition to pain. So, many of us must turn to medication treatments as part of our overall treatment strategy. I love your last mention regarding the importance of rest. To me, it speaks to your wisdom on the key point of pacing. I find not overdoing- and pacing carefully - to be a very effective preventative technique that can keep my attacks from worsening- and sometimes from appearing in the first place. Thanks again for sharing a thought-provoking and helpful comment. Very glad you're with us - hope you'll stay in touch and continue to share your wisdom with us. Warmly- Holly <a href='https://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
faithannjarrett Member

Long time follower, first time commenting…lol! Status Migrainosus for 18+ yrs.; early Guinea pig volunteer status with conservative numbers over 150 different meds. in all forms, combos, variables. Over 50 different treatment options (some not FDA regulated yet) tried and still going. A pumpster since 2018, it’s filled with Fentanyl and Ketamine at the moment. Breakthrough meds., 5 different nausea meds. in different forms, multiple other meds. on a daily basis. I wouldn’t change anything, because the research has helped others in pain. Now, in a 6 week trial treatment that may be used for others with chronic migraine. The non-stop pain, nausea and side effects over the years has done enough damage that now, my teeth are dying and breaking. After 4 different dentists, they say I need dental implants costing from $350.00 a month to $70,000.00; both impossible on a disability income. So, I’ll keep grinding and gritting until either the pain goes away or my teeth do! 🤣 I wasn’t born with the name Faith but, sometimes I wish God didn’t have so much confidence in me! Don’t give up! ❤️<img src="/content/images/2024/08/13/0e9b1a98b06855e3cc14bf9d68526645_medium.jpg" alt="" class="uploaded-image"/>
1. Cody Leach Member
 
 Hi <inline-mention username="faithannjarrett" user-id="3737013"/> - thanks for posting and sharing your life experience with migraines. It sounds like you have been incredibly resourceful and tenacious in your quest to find relief from migraine. That is nothing short of admirable! I also thought you might resonate with this article on managing nausea: <a href='https://migraine.com/blog/managing-nausea' target='_blank'>https://migraine.com/blog/managing-nausea</a>. I hope that it helps. See you around the community 😀. - Cody (Team Member)
2. Holly Harding Member
 
 <inline-mention username="faithannjarrett" user-id="3737013"/> My gracious - you've been through so much! We're so glad you're with us and that you chose to join the conversation! You clearly have a lot of wisdom to share so we hope we'll hear more from you. If you'd ever be interested in sharing more about your journey- we have a stories page where we invite members to do just that: <a href='https://migraine.com/stories' target='_blank'>https://migraine.com/stories</a>. No pressure- I just thought- based on your history and the lessons and wisdom you've earned along the way- that others could learn a lot from you. So sorry about the challenges with the teeth. Losing my tooth was incredibly expensive so I feel for you there! Thinking of you- Warmly - Holly (team member)
faithannjarrett Member

Thank you, Holly! I’ll always give the advice/support/ truth but, don’t know where to start?
1. Cody Leach Member
 
 <inline-mention username="faithannjarrett" user-id="3737013"/> Some people prefer to share their story "from the beginning" - such as when they first started having migraine symptoms, or when they were first diagnosed. You could also focus on how you're doing with your migraines now, and some of the treatments you're trying. It's completely up to you, and we accept all types of stories. I hope this helps give you a starting point! Best, - Cody (Team Member)
2. Holly Harding Member
 
 <inline-mention username="faithannjarrett" user-id="3737013"/> Hi dear- thanks for writing back. I think Cody did a great job in providing some ideas about how to dive in. I wanted to echo what he shared and say that while you could share an overview of your migraine journey, you could also share just one aspect that you are thinking about currently. I know I'd be interested in learning about one of the trials you've done (and why you think it's important to take part in trials); about your dental challenges; or, some of the lessons you've learned from having migraine. Those are just some thoughts that come to mind based on what you already shared with us. We don't have information on clinical trials from the perspective of a participant. I think that would be fascinating- but truly if you feel moved to share- it should be about whatever you are most moved to share. Whatever is "on top" for you, if that makes sense. Your journey - any part of it- will be informative to others- help us all learn more- and feel less alone. All that said, zero pressure! Just if you are moved. All love to you - so glad you are with us. Warmly - Holly (team member)
faithannjarrett Member

My journey has been toll taking lately with the last trial lasting over 6 weeks (5 days a week) and I’m not sure that I can release details since I was the first participant in my certain “category?”. I always say “yes” and do my best to make sure that others in pain have a chance, maybe down the road, to be helped. I can privately share with you but, publicly sharing the information could jeopardize the results and maybe taint the outcome of the trial. This was an offshoot of another procedure and I am always optimistic that it will succeed; which some parts of previous trials are being used well today! But, if they continue with this procedure, it could easily cause damage: some permanent. As of now, they will not continue the procedure for patients with my condition and I will keep contact to make sure they stop this procedure of the trial. I will do anything to support, encourage and uplift anyone who is struggling or has questions, so if I can help, I’ll be glad to! But, my story has been 18+ yrs. and I find it best to answer specifics and “chapters”; otherwise, my journey turns into a long book without a happy ending…yet! FYI: I was not born with the name Faith! ❤️
1. Melissa Arnold Community Admin
 
 <inline-mention username="faithannjarrett" user-id="3737013"/> Thank you so much for the time, stamina and sacrifices you have given in doing clinical trials. They are not easy and you are truly making an investment in the future for all of us. Generally, our policy here is that you can speak about your experience as long as it doesn't violate any confidentiality agreements you have made with them. Hope that makes sense. If you have any questions, you can always email our team privately at contact@migraine.com and we can help you figure out what makes sense to share. Hugs to you! -Melissa, team member