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A New Low: Migraine Causes Hair Loss And Tooth Decay

Migraine takes and takes and takes! As if navigating severe pain and complex neurological symptoms weren’t enough, we might also have our vanity taken to task by this disease. Due to medication side effects and stress, many of us struggle with hair loss. Additionally, if migraines cause vomiting on a frequent basis, tooth decay may be another real concern.

Migraine’s impact on hair loss and tooth decay

In this video, we discuss the reality of both hair loss and tooth decay and invite you to join in the conversation in the comment section below.

How has migraine impacted your body? Have you experienced hair loss or tooth decay? Let us hear from you so that we can learn from one another!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • JustNutz
    5 months ago

    Still struggling… My kingdom to narrow this down. The dentist is not the route. The new one wants to pull all my teeth. Lol my teeth are beautiful. . Not happening. . Ill pull them one at a time as needed if necessary, but to pull all for implants? Sounds like a car salesman to me…. After finding myself in ER for uncontrolled high BP ( after my dentist appt. Shocker) , thinking i was stroking out, but finding out my heart is infact golden ( far as tests can tell ) my headache log would argue a clear case of occipital neuralgia . There. My doctor finally uttered those very words. My neuro shot down any shots in my spinal column at c2, or 3, but they are both on board for a whack at a nerve block in my scalp near my condyle maybe! Me too.

  • Melissa.Arnold moderator
    5 months ago

    Hi, JustNutz. What a tough ride! I’m sorry your dentist suggested pulling healthy teeth — I hope you can find someone else that you feel you can trust! It seems like you’re doing a good job keeping track of things and prioritizing your health — persistence is key. Hang in there. We’re here for you … please let us know how the nerve block works!

    Take care,
    Melissa, migraine.com team

  • JustNutz
    5 months ago

    So yes, the tmj exercises i just looked up on the internet. There are just a couple i am doing right now because my jaw is very weak. Here is the link i used to find the couple i chose from , https://www.healthline.com/health/tmj-exercises

  • Holly Harding moderator author
    5 months ago

    JustNutz- I know you’ve been through a lot lately and I’m grateful you took the time to circle back with this resource. I know I’m not the only one who will find this of use. So glad you’re a part of our community. Thinking of you. Please stay in touch! – Holly (migraine.com team).

  • TNmigGal
    5 months ago

    Found out vomiting isn’t the only reason for tooth decay and/or loss – several of the preventative medications that I have taken or currently take cause dry mouth and I went from having a decent twice yearly dental checkup to many (10+) cavities, two root canals (w/ crowns), and two teeth extractions. Nobody warns you about this – I spent a ton of money in my 30’s for braces and even had jaw surgery to correct a congenital jaw deformity and now I feel like I’ve wasted a lot of money and lost the self-esteem I gained in the process.

  • panton27
    2 months ago

    I have had the same issues with my teeth. Taking amitriptyline for my chronic migraines and it works great on the headaches. Haven’t had one in over a year and I was getting them every day. Unfortunately the medication causes dry mouth which causes the tooth decay and I’ve had 3 root canals and an extraction in the last year. And it hasn’t been easy getting to see a dentist during the pandemic. Also, my neurologist said she never heard of this side effect from the medication.

  • Holly Harding moderator author
    2 months ago

    THREE ROOT CANALS plus and extraction in just one year?? Oh my goodness! I’m so sorry to hear that! I had only one and it brought me to my knees. I suppose the upside is how well this medication is working to manage the migraine attacks. And that’s a pretty big upside. Thanks for sharing and hope you don’t lose any more teeth! Warmly, Holly (migraine.com team).

  • Holly Harding moderator author
    5 months ago

    Oh my goodness,TNmigGal. This is just insult upon injury. I’m so sorry to hear about your experience. Can you identify which medications were causing the dry mouth and eventual tooth decay? It might be helpful for the rest of our community to learn this from you. I have had one tooth extraction and know how complex and expensive the process can be– I’m really sorry to hear you have gone through this repeatedly, atop having migraine! Ugh. Really thinking of you. Grateful you took the time to share your story with us. – Holly (migraine.com team).

  • Allyson.Ellis moderator
    5 months ago

    Oh how frustrating, TNmigGal. I hear how discouraged you feel with your teeth and mouth. The many ways migraine and medication side effects can impact health are so difficult to endure. It is rotten that many of the improvements you made to your oral health have been compromised by migraine. Thank you for sharing your experience so honestly. How are you feeling today? Please know we are always here to listen when you need support. Wishing you a gentle afternoon. ~Allyson (Migraine.com team)

  • jenfer
    5 months ago

    I began to experience hair loss and breakage shortly after beginning Botox treatments, however I could never find anything online about side effects relating to Botox. I take triptans and topamax as well however it seemed to coincide with my Botox cycles. Anyone else experience this? It also began at around age 42 so is that just part of aging? So many things to consider.

  • Holly Harding moderator author
    5 months ago

    Hi jenfer- thanks so much for chiming in. So sorry to hear of your experience with hair loss and breakage. You are right to bring up all the various factors at play. From medications to aging, it can be difficult to pinpoint the actual cause of this issue. I have heard people mention hair loss as a side effect of using Topamax- and of course aging can cause it as well. Like you, I have not heard of hair loss in relation to Botox. I suppose to get to the bottom of it, you could try taking a break from Topamax (if your doctor agreed and if it wasn’t a key part of your treatment protocol, of course!). Ultimately, no matter the cause, the treatment is up to you. There is a good discussion that follows in the comment section below as to various approaches. Thanks again for sharing! – Holly (migraine.com team).

  • ninafranco
    6 months ago

    I have never used steroids but I use sumatriptan, Aimovig, and botox. The last two are recent so I don’t think they have anything to do with any hair loss. For almost 20 years I have been using a generic Rogaine each morning. My hair was quite thin, maybe it was just the usual getting older but it did could correspond with my increased sumatriptan use. A friend who was a nurse and whose husband worked for Pfizer, the makers of Rogaine, clued me in. I buy either the Walmart or the Amazon Kirkland brand. You can buy 6 months worth for about 25 bucks. It is a clear liquid that smells very little, only a tiny bit like alcohol. I use one dropperful on my scalp. You might start with twice a day, IDK, read the instructions. It takes 3 months for hair to grow in and if you stop using the stuff your hair will start falling out again. Very simple to use. Here is the funny thing, Most of the time, I get my migraines on the right side, have been for 50 years. The right side of my head often feels hotter to the touch than the left. Now my hair does not grow past my shoulder on the right. Grows normal on the left, never past the shoulder on my right. I let it grow for a while, then go to the salon and tell them to even up my hair, match my left to the right. I have a theory that the extra heat/blood flow inhibits hair growth.

  • Holly Harding moderator author
    5 months ago

    ninafranco- that’s fascinating about your hair- thanks so much for sharing. First- as to the generic rogaine- yes! That’s what I was prescribed by my dermatologist when I lost my hair in droves the first time. I can’t swear that it really worked for me and I found it very messy. The instructions talked about applying it to the patch or specific area where I was experiencing hair loss- but my hair loss was comprehensive- so I had to apply it all over my scalp. It was messy and I didn’t love the smell. I found what worked best for me was taking Biotin (nutritional supplement thought to help with nails and hair growth). I still take it daily.

    As to the uneven hair growth being related to where the pain originates, this is quite interesting. Are you saying your hair breaks off on that side? For those of us who experience allodynia (hair and skin sensitivity: https://migraine.com/video/secret-touch-hair-skin-sensitivity/) it’s easy to picture this reality.

    Thanks again for sharing. Hope you’ll stay in touch. – Holly (migraine.com team).

  • ccones
    6 months ago

    I have really experienced hair loss. I have a wig, but it is so confining to wear. Only use it for special occasions

  • Holly Harding moderator author
    6 months ago

    Hi ccones- Thank you so much for chiming in. I can only imagine the confining sensation of wearing a wig a top dealing with the oftentimes vice-like sensation of migraine. Must be awful. There’s also the condition of allodynia – which, if you have it, I would imagine would be exacerbated by wearing a wig: https://migraine.com/video/secret-touch-hair-skin-sensitivity/. Thanks again for sharing your experience with us. I hope you’ll stay in touch. – Holly (migraine.com team).

  • JustNutz
    8 months ago

    Im 49, 8 months ago I broke a bunch of cervical vertebrae and a couple thoracic ones in a trampoline a accident. Had ACDR last August. Walk and talk and maintained by continence and use of bowels. However, in Nov developed Right sided migraine ( didn’t know ) thought it was residual effects from trauma, as my neuro said in December I was experiencing sensory disturbances. Was nearly paralyzed by Jan. ( numb, constant dull ache, weakness) on right side only before I finally had my PCP look at me in January. Treating with muscle relaxer and triptans along with a steroid shot for right leg . Symptoms dulled but remain.. this week, my right side, back of skull base, massive hair strands released ( physcially felt like a tourniquet release) as I rinsed hair in shower last couple times. I go back to PCP in April possibly for prophylaxis, see my neuro surgeon again in March. What the heck is going on ? I was on a good road to recovery from Aug surgery to mid October. Still don’t drive or golf. Can lift up to 25 lbs now and continue to work to build my strength. Is it normal to lose hair in one area only? Will it stop when my headaches are under better control? I’ve never had headaches and didn’t even realize that’s what could be happening.

  • JustNutz
    8 months ago

    Oh ya, and also in January had a tooth pulled for the first time. Talk about traumatic. Won’t ever do that awake again.

  • JustNutz
    5 months ago

    I still have to wait to get to the bottom of WHY. Im good with a soft food diet vs the corona. Lol. PCP will want more skull base imaging and im sure another trip to the dentist, just not the one who pulled my tooth. He didnt give me stitches , he said good luck, here is some antibiotics. Freak.

  • JustNutz
    5 months ago

    So yes, the tmj exercises i just looked up on the internet. There are just a couple i am doing right now because my jaw is very weak. Here is the link i used to find the couple i chose from , https://www.healthline.com/health/tmj-exercises

  • ninafranco
    6 months ago

    Ha Ha. I just had three pulled at once in Feb. the pulling was fine, the damn stitches drove me crazy.

  • Holly Harding moderator author
    6 months ago

    @justnutz– Thanks so much for the update – I’m so sorry about the TMJ on top of everything. I wonder if you’d be willing to describe any of the exercises you were given as many of us have TMJ as a comorbid condition with migraine. Hope you are feeling better from the flu! Stay in touch!

  • Holly Harding moderator author
    6 months ago

    Hi JustNutz- thanks so much for sharing this experience with us. TMJ is a frequent comorbid condition that goes along with migraine. Here are a number of articles on the link between the two, in case you’re interested: https://migraine.com/?s=tmj. Terrific that you got that diagnosis in order to go forward with your eyes open to the issue.

    So sorry to hear you are dealing with the flu but I suppose given all that’s happening currently, it’s a relief that it wasn’t more than that.

    I’d be most fascinated, as a fellow TMJ sufferer, to learn what jaw-strengthening exercises you were given. Would you be willing to share those with the rest of us?

    Many thanks for following up about how you’re doing and for staying in touch! Please keep doing so! – Holly (migraine.com team).

  • JustNutz
    6 months ago

    Ended up back at PcP , well for various reasons, but mainly because I didn’t think I’d be able to come April. Lol. Glad I did too. I was diagnosed with influenza A and B and received tamiflu. He also found me to have a severe case of TMJ. BAM. TRIGGER! I’ll be taking Tylenol rather than Aleve til this covid crap is under control. Did get a prophylaxis also during the visit. Feeling much better knowing random symptoms can actually be explained. I didn’t know that little pop could be such trouble, however it has affected my laughing, eating ( my weight ) talking , my precious neck. I’m learning different exercises to strengthen my jaw. I just started so … We will see.

  • Allyson.Ellis moderator
    8 months ago

    Uff, you certainly have gone through a lot recently, JustNutz! I hear how overwhelming everything feels. You are not alone developing migraine symptoms following an injury. I thought this article might be of interest to you:
    https://migraine.com/blog/what-is-the-difference-between-a-primary-and-secondary-headache/
    I hear how disconcerting the hair loss feels for you. Migraine can present so uniquely for each individual there isn’t a good way to predict how your body may or may not respond over time. While we cannot offer specific medical advice over the internet (for your safety) this article from the Harvard Medical School gives a general overview of several different possible reasons for hair loss: https://www.health.harvard.edu/a_to_z/hair-loss-a-to-z If you haven’t already, I would encourage you to discuss this new symptom with your doctor, either at your next visit or by calling or sending a message through your online charting system (if your doctor uses one!). Please keep us posted on how you are managing. Wishing you a gentle day. ~Allyson (Migraine.com team)

  • AZReynolds
    9 months ago

    I thought my migraine meds cause my fibromyalgia to flare udp. At least I blamed the meds in the past. Now I’m avoiding Relpax due to the fact that my flu-like symptoms are lasting longer and longer, now up to three days. So now I’m using a combination of CBD oil and T-Relief, then oxycodone to fight the migraines. Since fibro flare ups are still happening on a regular basis, I have wondered if migraine is bringing on more flares. Maybe it’s just a perpetual pain machine?! One begetting the other like you mentioned in your previous article. Either way, this is my life so I must…MUST… find a way to be happy within it! Find the joy! Ummmm, right now my joy is going to be a hot cup of joe!

  • Holly Harding moderator author
    9 months ago

    So hard to parse things apart when there are so many dynamics at play- and this is the case for so many of us. What came first? The chicken or the egg? What is flaring up the fibro? The migraine attacks? And yes, the pain and the related treatments can make us feel like we are just chasing our tails. Your statement reminded me of this article: https://migraine.com/living-migraine/whack-a-mole-chasing-freedom-from-pain/

    And good for you! Get that cup of coffee- sometimes it’s the simple pleasures that can have the greatest impact on giving us comfort and helping us get through each day. One foot in front of the other, my friend. Thinking of you.

  • AZReynolds
    9 months ago

    I thought my migraine meds cause my fibromyalgia to flare up. At least I blame the meds in the past. Now I’m avoiding Relpax due to the fact that my flu-like symptoms are lasting longer and longer, now up to three days. So now I’m using a combination of CBD oil and T-Relief, then oxycodone to fight the migraines. Since fibro flare ups are still happening on a regular basis, I have wondered if migraine is bringing on more flares. Maybe it’s just a perpetual pain machine?! On begetting the other like you mentioned in your previous article. Either way, it’s my life so I must…MUST… find a way to be happy within it! Find the joy! Ummmm, right now my joy is going to be a hot cup of joe!

  • DephineM
    9 months ago

    Hello,
    Last evening my husband alarmed me when he said “Honey, you have some bald spots on the crown of your head and your scalp is really pink.” I also have been noticing when I shampoo my hair that what I gather in my hand is a much smaller bundle of hair. I got up this morning and did a search for “Can chronic migraines cause hair loss?”. My search brought me to this article. Now what? What do we do? I’ve been on the 3 new migraine Injectables for the last 2 years but I also experience stress on a regular basis due to chronic migraines.
    Any one have any advice for the hair loss?

  • AZReynolds
    9 months ago

    I was losing my hair in frightening amounts for years. But when I broke my back they put me on Fosamax and Osteo Prime Ultra. Now my hair is growing again and the hair loss has cut in half! I credit the Osteo Prime Ultra since it is full of vitamins.

  • Holly Harding moderator author
    9 months ago

    Oh- thank you for that information and sharing what worked for you, AZ!

  • Holly Harding moderator author
    9 months ago

    Hi again, Dephine- So- good question as to how to respond to this troublesome side effect. I consulted with a dermatologist about this and recommend your doing the same. There are some treatments and medications that can be tried to stop the hair loss trend and even help regrow hair that are designed specifically for women and specifically for men. I tried an OTC treatment recommended by the dermatologist that definitely stopped the hairloss in its tracks – but mostly when the stress stopped, I experienced new hair growth as well.

    Let us know if you find something that works for you. Thanks for being a part of this community.

  • TheKimberly75
    11 months ago

    I’m 62 and have had migraines since my teenage years. For several years I took methadone as a preventative, which did cause dry mouth, like nearly all of the seemingly hundreds of meds I’ve tried over the years and it did seem to help somewhat, and even though my teeth literally started breaking off, they said there was no correlation. However, in my 40’s I lost so many teeth I had no choice but to go full dentures at 51.
    I have no real hair loss to speak of.
    * NOTE TO SHERIKAY: Please look into the safety and efficacy of root canals. I know we all hate having them done, but I watched an illuminating documentary a year or so ago regarding their high failure and complication rates. I don’t think your own dentist will be very forthcoming, so you should research articles yourself, specific to the subject of why root canals fail.

  • Holly Harding moderator author
    11 months ago

    Thanks so much for sharing. And yes- so many migraine meds do cause dry mouth. Interesting that the doctors didn’t make the connection! Glad you did, for the rest of us. – Please stay in touch!

  • pinkwheels
    11 months ago

    Wait… methadone as in what they use to treat addiction? It prevents migraine? Really?

  • Holly Harding moderator author
    11 months ago

    Yes- methadone is among the treatments that can be used as a preventative for migraine. Not super common, but definitely one of the many.

  • Sherikay
    1 year ago

    I am noticing increased hair loss these days, about the past year. I used my phone to see the top of my head. Very discouraging. Won’t do that again.
    I had been using migraine headbands frequently and wondered if that was stressing my scalp and hair. So I’ve switched to using a sleep mask for pressure. I’m taking calcium too.
    I’m starting to wonder if I’m going to need a wig.
    The tooth decay fairly has visited me too. Last summer I had root canal and 2 crowns, and then an extraction and dental implant. No dental insurance.
    My dental office felt that my teeth were affected by dry mouth from some of my meds. I take amitriptylin as migraine prevention. Also on zoloft since my mother’s death.

  • Holly Harding moderator author
    1 year ago

    Thank you for chiming in and sorry to hear that you, too, are navigating dental challenges related to migraine. I’m glad you pointed out the issues related to dry-mouth as I’m certain that is a common problem for migraineurs due to the fact that so many medications we take carry that side effect.

    I wonder if there’s anything that can be done to offset dry mouth in order to prevent dental issues?

    Thanks again for joining the discussion- so glad you’re a part of our community.

  • greeneyednanny
    1 year ago

    Yes, migraine really is the monster we say it is and keeps on delivering the “hits”. I suffer severe trigeminal nerve pain in the roof of my mouth with the migraines, along with head pain, nausea, etc. In 2016 it became literally over the top painful and very long term (several months with the same migraine) and I couldn’t bear to chew anything with any substance. I lost a massive amount of weight and suffered some temporary malnutrition. It’s common to lose hair approximately three months after such trauma and for it to take months to regrow. Years before I lost my teeth due to Sjogren’s Syndrome and prolonged vomiting due to migraine. All my teeth had to be removed and I ended up with a full set of dentures at age 48!! At 65, my migraines are worse and more severe than in my twenties or thirties. My biggest concern now is bone loss, due to so many days in bed with the monster. No, he does not play fair.

  • Holly Harding moderator author
    1 year ago

    My gracious- you definitely demonstrate the way that migraine can impact our bodies comprehensively. So sorry to hear about the very serious dental challenges, hair, weight, and now concerns over potential bone loss.

    Thank you for sharing your story as many of us can relate and it helps to feel less alone. Glad you’re a part of our community- thinking of you. Please stay in touch.

  • Beth
    1 year ago

    I’m such a mess. Was on a triptan for rescue and had a couple TIAS and a stroke. Thanks to throwing up and acid reflux and some medications that caused dry mouth, I’ve lost almost all my molars. Plus thin hair. I’m taking steroids for a bad pneumonia and unfortunately I’m dealing with a migraine too. I keep hoping that the Ajovy shot will help more. Between that and Fiorecet…that’s all I have now.

  • Holly Harding moderator author
    1 year ago

    oh, @bethyoung! I’m so sorry to hear this. Thank you so much for sharing what you’re going through so that we can send you good thoughts. Sounds like a particularly challenging time in an already rough migraine journey. I went through a very stubborn pneumonia last summer that led to 2 months of steroid use, resulting in massive hair loss. So frustrating especially when the migraine cycle continues atop all of that!

    I also wanted to share, regarding the Ajovy- that for me at least, I didn’t have a great response with Aimovig but do seem to be having a more dramatic turnaround with Emgality. Not all CGRPs (even though they are the same drug) inspire a similar response in us as patients. Maybe worth discussing with your doctor. Hopefully you have more options left after all?

    Thinking of you and so glad you’re a part of our community. Please stay in touch and let us know how you’re doing.

  • mjreddin
    1 year ago

    I have both migraines and seizures so I have been on so many meds to try and prevent both. The most recent has been Lamotrigene..aka Lamictal. For years i have had dental issues but none like the past 7 years on Lamictal!! My teeth are brittle, they have broken off at the gum line or have cracked, only to break later. My front upper teeth are “decalcifying” according to the dentist…and only $10k worth of veneers will fix them…..or so I was told 7 years ago. I rarely smile and show my teeth they are so bad. Still have the headaches and the seizures…..

  • Holly Harding moderator author
    1 year ago

    Ugh- so sorry to hear about this reality – although it is one many of us share with you. With dental work being so out of reach financially (and many of us either underemployed or disabled due to migraine), we are left smiling with our lips shut.

    Sorry also to hear about the double whammy of having seizures as well as migraine disease. I do know that there are several medications out there that treat both (Topamax- a medication known for causing hair loss- is a commonly prescribed to migraine patients which was originally created for seizure patients). I’m sure you’ve tried them all.

    Glad you’re a part of our community. You are not alone and we are thinking of you.

  • mels060473
    1 year ago

    I’m in the same situation with my teeth. All 6 of my front upper teeth need crowns as they are so bad. Dental coverage is awful ($4k rotal for 6 teeth) and I’m a single mom so i will likely end up with missing teeth soon.
    I get really bad side effects with Imitrex and stuff so I usually suffer and take OTC meds. Doing so over the past 20 or so years has apparently caused liver damage. Just letting you know to watch how many Excedrin and Tylenol you take! I’m hoping my liver will repair itself but I can only take ibuprofen for my head. And we know how well that helps…

  • Holly Harding moderator author
    1 year ago

    You’re so right that dental work is ridiculously costly and out of reach for so many of us.

    The issue of liver damage from tylenol use is something we hear about on a fairly frequent basis, unfortunately. It really is a heartbreaking reality as, for many of us, medications with tylenol are sometimes the only ones that provide relief. A terrible catch-22.

    Have you done any research on ways you might be able to help to repair your liver? I wonder if there are things we can do to help that process along on a holistic level?

    Thanks so much for sharing. Thinking of you.

  • DephineM
    9 months ago

    I’ve been reading the books from Anthony Williams, one of them is specific to our Liver. The title is called “Liver Rescue”. I’ve been making the Liver Detox Smoothie on a regular basis in hopes of helping my liver. My recent bloodwork didn’t indicate any liver enzyme issues. Don’t let the word “detox” discourage you, it’s just a smoothie made with natural ingredients, no eliminating foods.
    Hope this helps.

  • SallyP
    1 year ago

    Hi- sadly reassuring knowing I’m not the only one dealing with hair loss and dental issues. I think since I’ve been on amitriptyline my hair has thinned. It took a few months and then one day I was “whoa”…I will look into Biotin. And thanks to an ER doctor’s recommendation a few years ago- to supplement with Gatorade to keep my electrolytes up- my tooth enamel suffered badly because of the acid in Gatorade (not the sugar). Turned to SmartWater and then tapered off that and am vigilant about drinking water all day. Sigh.

  • Holly Harding moderator author
    1 year ago

    Thanks for chiming in on this, @sallyp— you’re so right- it’s not the kind of thing any of us wants to have in common- but it’s also a relief to know we’re not alone. Great guidance about focusing on hydration. Thanks for sharing- glad you’re a part of our community!

  • Mare
    1 year ago

    Thanks for another great article. My issue has been my teeth likely from the acid in my throat and the steroids I’ve taken over the years. As if my migraines haven’t already stripped me from the person I once was but now they have physically done havoc on my body. I’m 61 yrs and have suffered for 40 years, they’ve gotten worse over time and now all I can do is hold onto hope.

  • Holly Harding moderator author
    1 year ago

    Hi @ameoch– I’m not sure I can say that I’m glad this article resonated with you as I wish no one else was dealing with these types of issues!

    You are so right to make the point about migraine taking so much from who we once were (emotionally and perhaps taking us away from our families and career)- that it can feel like a step too far when the condition impacts our physical appearance too.

    It sounds like you’ve had quite a lengthy journey with migraine. Please know you are not alone in that or in the rest of the challenges that accompany the disease.

    So glad you are a part of our community. Please stay in touch.

  • vada61
    1 year ago

    I don’t have much vomiting (lucky for that one) but the topiramate has caused my hair to thin out I think. I have invested in good hair products and am getting some regrowth so now getting the little sprouts coming up thru my hair…thats fun…not! I’m not even sure the topiramate is helping me much so I think I may stop it and see what happens. Anyone have reactions with topirmate like this?

  • Holly Harding moderator author
    1 year ago

    Hi @vada61! So glad you asked this question. Yes! many people have that reaction to Topamax. Very common. We in fact have an entire forum dedicated to this topic which I hope you’ll check out because it’s got some good ideas as to potential solutions to try:https://migraine.com/topic/topamax-and-hairloss/

    I personally take Biotin- a supplement that has been shown to help to stimulate hair growth and I believe it has helped.

    So sorry you are dealing with this- but you are definitely not alone and I hope some of this information helps! Please stay in touch and so glad you’re a part of our community.

  • KJDNP
    6 months ago

    I’m so happy so see this (not that you have hair loss, but that others have experienced hair loss with Topamax and that there might be a solution). I’ve been experiencing hair loss from Topamax and my neurologist seems so surprised to hear that it is a side effect. I will check out the forum.

  • vada61
    1 year ago

    Thanks so much for the response. I will check that forum out. I have heard of biotin and will definately look into that. Thanks for the help!!!

  • kellikens
    1 year ago

    I don’t vomit that often but get wicked heartburn along with my migraine. Apparently, that acid is enough to make my teeth crumble. Very upsetting!

  • Holly Harding moderator author
    1 year ago

    Oh my, that IS upsetting. Is that related to a medication or to a stomach upset that comes with migraine? Do you take anything to address the heartburn? Curious what your doctor has recommended to help with that issue. Thanks for sharing!

  • dizzyblonde
    1 year ago

    I have dealt with hair loss for quite some time. I naturally have thin, fine, straight hair as it is, and it has always bothered me because it is rather flat as it is. I’ve been on migraine preventives for quite a long time and it finally occurred to me that maybe a medication was causing hair loss. I asked my doctor and she knew exactly which one it was and she helped me taper off of it. It did take about a year for my hair to grow back in and they way it growed in was in funny little short pieces. I had lost about 1/3 of my hair too. Since I didn’t have much hair as it is, this side effect bothered me a lot.

  • Holly Harding moderator author
    1 year ago

    Hi @dizzyblonde– so sorry to hear of your hair loss challenges! That can be such an affront to our ego atop the pain of migraine. There are so many ways this disease takes from us, to have it impact our physical appearance can sometimes feel like a step too far! You are not alone. We appreciate you sharing your experience here and that you are a part of our community. Please stay in touch!

  • glassmind
    1 year ago

    So true. I know someone who suffers abdominal migraines and has much dental problems from recurrent vomiting. Thanks for raising awareness of the many complications of migraine.

  • TheKimberly75
    1 year ago

    Hi, I had a full set of dentures at 51 and I know it was from constant vomiting from migraine, and, even tho they tell you different, they say it is a hygiene issue, I was on methadone as a migraine preventative at roughly the same time. Steroids only work 40/60% of the time for me but nearly always give me horrible insomnia for the full run of the course, as well as being extremely agitated and having an increased level of hostility.
    In other words, I’m best left alone.
    I have been chronic now for 20 yrs, with a 45 yr migraine history. I am nearly 62.
    I don’t expect it will change much, at this point.
    (Remember, Hope is a double-edged sword)

  • Holly Harding moderator author
    1 year ago

    Hi there, @thekimberly75– thanks so much for chiming in! Glad this piece resonated with you, though not entirely sure it’s a good thing that it did, as no one wants to have such an awful thing as tooth decay caused by profuse and repetitive vomiting!

    It can be so difficult to find something that works, treatment-wise, and then when that thing ends up being weighed down with troublesome side-effects almost as challenging as the migraine itself, we are between a rock and a hard place.

    And yes, I know exactly of what you speak regarding the tricky nature of hope: https://migraine.com/living-migraine/the-intersection-between-hope-and-acceptance/

    So glad you are a part of our community. We have a similar history of migraine in terms of length, by the way. Please stay in touch–because even though I wouldn’t wish this disease on my worst enemy, it really helps to know there are others out there who are navigating the same kind of life and challenges.

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