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cyanne2ak

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  1. "Just stopped by to see if anything new had hit the market. It hasn't. Drug companies sure do make a LOT of money on these scams. IMHO all migraine meds are scams. I've taken all of them, and yes, I mean ALL of them."

    1. The medicine-making process is a slowwwww one -- years and years. It's tough and I think the vast majority of people here share your frustration. Hang in there. -Melissa, team member

  2. "12 years and still no relief. I’ve had ONE 45 minute migraine free period. That was in 2018. I keep thinking there will be something new that works. But no, there isn’t. "

    1. Oh, , my heart goes out to you! I can hear how challenging, frustrating, and painful it has been for you these past twelve years with only one forty-five minute migraine free period. Do you work with a neurologist or migraine specialist? With all the various treatments for migraine, I wish there was something that helps you! Please know our community is here for you! Sending you gentle hugs. -- Warmly, Christine (Team Member)

    2. yes, I’ve seen 5 neurologist who were all credentialed as “headache specialists.” All it meant was a more expensive treatment that didn’t work. Imho, headache specialist doesn’t mean anything but a higher bill.

  3. "In April, we found that I have Stage 4 Non-Hodgkin’s Lymphoma. There were ZERO signs of it in February. I had a CT scan to look for an abdominal tear and instead, we found cancer. Lots of cancer. Interestingly, the IV iron supplements have lessened the intensity of my constant migraine."

    1. Wow, I'm so glad to hear that they were able to catch your cancer diagnosis during the CT scan, . How have you been coping with treatment? I can imagine it's quite stressful and draining.


      It's also interesting that your IV iron supplements have been helping your migraines! I wonder if you have had a history of being anemic? In any event, it must be nice to get a relief from the head pain. Thanks for sharing what's been helping.


      Sending lots of positive vibes your way, - Cody (Team Member)

    2. oh the pain is still there, just not as intense at times. I don’t have a history of anemia, or of any deficiency other than sodium on occasion.

    3. Ah, I see. Hopefully you will continue to find other things that work for you. Do you use any additional complimentary approaches? I've recently been giving a TENS unit a try for shoulder stiffness. I like it a lot, and it allows me to function just a bit more each day. Curious if you've tried anything like it. - Cody (Team Member)

    4. I stopped absolutely all migraine treatment in 2020. It just didn’t help. I find all treatment, including supplements, to be total scams. There isn’t anything on the market that I haven’t tried. Over 70 medicines. The only trigger I can control is MSG. The only other identifiable trigger for me is changes in barometric pressure.

    5. Hi -- just wanted to let you know that we also have a site for people with lymphoma and other blood cancers, if you're looking for some extra support. The address is www.blood-cancer.com. Regardless, we are all here for you and I'm sending all of my support! Hugs. -Melissa, migraine team

    6. I’ve tried them all. Nothing works. I haven’t found a single treatment that is not a total scam.

  4. "Continuous pain, now extremely elevated. Nothing works. No one acknowledges that all these meds are just total scams. "

    1. Hi there. It sounds like you're go through a lot. Is there anything else you want to share with us for now? We're here for you! -Melissa, migraine.com team

    2. I'm so sorry that your meds haven't worked out for you! How have you been feeling as of late? I hope you've connected with your doctor to find better options. Sending positive vibes your way. Wishing you a gentle and symptom-free day! ~ Sawyer (migraine.com team)