cyanne2ak
"Just thought I should say this because no one else does: It is OK to stop treating your migraines. Meds have never worked for me and they don’t work for up to 40% of patients. I stopped all treatment and do you know what happened? Nothing. My migraines didn’t get worse because they never got better. However, it made it a LOT easier to pay my bills because insurance doesn’t cover much. But really, if meds aren’t helping, you absolutely CAN just stop them. If you’re like me, it won’t make a bit of difference."
, thank you for saying this. It is absolutely true that it is okay to stop treating migraine. It is a personal decision and there are many reasons (as you mention) as to why medication might not be the right decision for someone. It's good to hear that financial planning has been easier for you because you no long spend the money on the meds. Prescription costs (for any medication) can be unaffordable for many people. Can I ask if you do anything else to help mitigate symptoms? Avoid triggers or made any dietary changes? Again, we appreciate you sharing this perspective. Wishing you a gentle day. -- Warmly, Christine (Team Member)
"Just stopped by to see if there’s anything new. Unfortunately, no. All the clinical trials are for combinations of already existing meds that just don’t work. What do other countries offer for treatment? I don’t see anything online other than a far lower incidence of chronic migraine. Google restricts access through AI based on location."
ugh, so sorry you haven't found anything new to try. It can be very challenging and frustrating when the existing meds haven't helped you. Unfortunately, I'm not entirely sure what other countries offer for migraine treatment, and I wasn't aware that there was restricted access based on location.
I was, however, able to find this study done on different treatments from different countries, https://pmc.ncbi.nlm.nih.gov/articles/PMC8142511/. You might be interested in this from the conclusion, "In the process of choosing the most appropriate acute or preventive migraine treatment, comorbidities, the patient’s opinion [28], and of course, that of the neurologist must always be assessed, but as we have observed in this first international study, this may differ depending on the country where the treatment is prescribed." Of course, that doesn't necessarily help identify any new trials or medications available in other countries, but all the same I thought you might be interested in this information. -- Warmly, Christine (Team Member)
"Just stopped by to see if anything new had hit the market. It hasn't. Drug companies sure do make a LOT of money on these scams. IMHO all migraine meds are scams. I've taken all of them, and yes, I mean ALL of them."
The medicine-making process is a slowwwww one -- years and years. It's tough and I think the vast majority of people here share your frustration. Hang in there. -Melissa, team member
"12 years and still no relief. I’ve had ONE 45 minute migraine free period. That was in 2018. I keep thinking there will be something new that works. But no, there isn’t. "
Oh,
, my heart goes out to you! I can hear how challenging, frustrating, and painful it has been for you these past twelve years with only one forty-five minute migraine free period. Do you work with a neurologist or migraine specialist? With all the various treatments for migraine, I wish there was something that helps you! Please know our community is here for you! Sending you gentle hugs. -- Warmly, Christine (Team Member) yes, I’ve seen 5 neurologist who were all credentialed as “headache specialists.” All it meant was a more expensive treatment that didn’t work. Imho, headache specialist doesn’t mean anything but a higher bill.