glassmind's avatar image

glassmind

Primary Badge Member

Status

"Recently diagnosed with Vestibular Ocular Reflex Syndrome.
.
Neurologist and physical therapist both say it is both a contributing factor to migraine as well as it’s own condition.
.
Started PT to manage it (not considered curable) and take zofran before therapy to mitigate vertigo and nausea.
.
Sharing as it may be something for others to consider in their own journey with migraine.
.
The causes of VOR impairment vary greatly. At this time my doctors are considering it a complication of Ehlers Danlos Syndrome.
.
I am scheduled to see an optometrist to rule out any other conditions. The physical therapist thinks I may have some impairment of depth perception as well.
.
It’s all rather exhausting to have yet another condition to manage. I will do my best though.
.
Love to you all and hopes for a low symptom day.
.
Hoping for myself that the PT helps and that MS is not the underlying cause.
.
hugs"

Status

"Recently diagnosed with Vestibular Ocular Reflex Syndrome.
.
Neurologist and physical therapist both say it is both a contributing factor to migraine as well as it’s own condition.
.
Started PT to manage it (not considered curable) and take zofran before therapy to mitigate vertigo and nausea.
.
Sharing as it may be something for others to consider in their own journey with migraine.
.
The causes of VOR impairment vary greatly. At this time my doctors are considering it a complication of Ehlers Danlos Syndrome.
.
I am scheduled to see an optometrist to rule out any other conditions. The physical therapist thinks I may have some impairment of depth perception as well.
.
It’s all rather exhausting to have yet another condition to manage. I will do my best though.
.
Love to you all and hopes for a low symptom day.
.
Hoping for myself that the PT helps and that MS is not the underlying cause.
.
hugs"

About glassmind

  • Member Since 2019