I dont know what is going on!?

I have had a constant, unending migraine for the past 7 weeks, with no end in sight. I am sensitive to light, loud noises, and movement. When the pain gets really bad, I stutter, forget words, and stumble all over the place. This is a new experience for me, as my past migraines would only be 1-2 days, not 49 days and counting. I just want some pain relief because college is starting soon and I can barely leave my bed. I have tried 6 medications and spent $800 on new glasses to try to help the pain. I do have an MRI and a xray on my spine soon. Another symptom I have is something my neurologist brought up; my eyes do not dilate in the light (she passed the little flashlight past my eyes and they didn’t dilate). Is that something to be concerned about? I don’t even know if this is just a migraine or something worse, I just want some pain relief, can anyone help???


Community Answers
  • blancj8
    3 months ago

    I had a problem like this going last year. Had a 7 month migraine. Turned out I had crossed over to having a dairy trigger. As an adult was never much of a milk drinker but wouldn’t worry about ice cream, milk shakes, or yogurt. Only figured it out, because one day I actually woke up with out the migraine and had a typical thought for me when a longer streak ends; ‘now to eat healthier.’ went for a yogurt instead of a hangover type breakfast. Bam half an hour later migraine.
    So I guess what I am suggesting is, have you “checked” for new triggers lately?

  • Nancy Harris Bonk moderator
    3 months ago

    Hi Bluerose425,

    Thank you for sharing your difficult journey with us. Being in constant pain is exhausting and frustrating, I’m sorry you are going through it.

    Trying six different medications in less than 50 days is not optimal care, in my opinion. Here’s why – it can take up to 90 days, sometimes longer, before we see a reduction in our migraine attack frequency and severity when we start new medications. If we don’t give each medication a fair trial, we’ll never know which one would have worked out. Does that make sense?

    It may be time to seek out IV infusion treatments to break this nasty cycle. These can be done in some doctors offices or infusion centers. Here is a list of medications that can be used;
    Brand name Decadron, or dexamethasone
    Brand name Depacon, valproate sodium
    Brand name Inapsine, or droperidol
    Brand name DHE-45 or dihydroergotamine
    Brand name Keppra or levetiracetam
    ketamine, lidocaine
    Brand name Phenegran or promethazine
    Brand name Regaln, or metochlopramide
    propofol
    Brand name Ultram or tramadol.
    Once the attack has broken you can move on to migraine prevention. If your current doctor is unable to help you, it’s time to find one who will!

    I’m not sure what part of the country you are in, but there are doctors who are experts in treating migraine and headache disorders. These doctors have extra board certification in headache medicine, which is different than being certified in neurology. These two articles talk about how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and
    https://migraine.com/blog/really-find-headache-specialist/.

    Please let me know what you think!
    Nancy

  • jmedlin
    3 months ago

    For pain I have always used a mix of opioids mixed with aspirin. Make sure your doc knows, but that is the only pain relief that’s works when preventers don’t for me.

  • jmedlin
    3 months ago

    Sorry should read relpax damn auto correct

  • jmedlin
    3 months ago

    The thing that worked for me after a 2 week migraine was relax (eletriptan).Its important to get tests but I have experienced shifts in migraine pain and patterns. They will still need to rule out others causes but change in migraine does happen.

  • Bluerose425 author
    3 months ago

    I think that was the first medication I was on, it didn’t help. Thank you for the advice though!

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