A life with migraines

I’m a 23-year-old migraneur, first onset was sometime around the age of 13 when I also began experiencing depression and insomnia. I am currently diagnosed with Chronic Migraine Syndrome, Chronic Daily Headache Syndrome, Major Depressive Disorder, Insomnia, Insulin Resistance (Pre-diabetic levels), Temporomandibular Joint Disorder, and Peripheral Neuropathy.

I have a headache everyday and it has been like that for at least the past three years, beyond that my memory breaks down because of all the medications I’ve been on trying to fight this. On top of those headaches I also have on average 13 migraines a month. Most of them are either levels 8 or 9 on that arbitrary scale they have you use. I could never say 10 because I can imagine pain worse than a migraine. 9 is my Hell.

I’ve been through three neurologists in just as many years, one of which is considered a renowned expert but at this point non of the treatments have worked. I don’t experience aura and I respond negatively to triptans. If I haven’t been on an antiseizure medication for migraine prevention I’ve been on it at high doses for sleep. I’ve tried beta blockers and calcium channels. My insurance won’t cover botox treatments and I can’t afford it out of pocket.

At the beginning of August I’m heading up to Chicago to the Diamond Headache Clinic and I hope that they will be able to tell me something I don’t know yet. I’m going to discuss possible testing for the TRESK gene function, if testing protocols are available yet.

I need something to hold out for, some medication that doesn’t exist yet but will because I struggle to keep myself alive through all this suffering.

My only advice to others is to not expect your government to recognize your suffering and your inability to lead a life as a human being, let alone your inability to work.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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