Allodynia – it’s a real thing!

I have been suffering with migraines for many years now. About 5 years ago I started getting this area around my right temple which included the right ear and across the right side of my face which caused a lot of pain. At first I had trouble wearing my glasses – the arm caused this pain to flare up. Then it would also happen when I put anything into the right ear. It progressed to even touching these areas that would cause pain. Now the top of my scalp has this same problem and I have to keep my hair extremely short because my hair hurts me!

I have seen several different doctors about this – 2 neurologists, an ENT, 2 GP’s and none have ever said anything about Allodynia. Recently I went for a overnight sleep study test to see if I had sleep apnea (just another thing to rule out for the cause of the migraines). The registered nurse that I saw afterwards blew me away when I began to (once again) describe my face and scalp pain symptoms. She actually knew what I was talking about and had a name for it – Allodynia. I couldn’t believe it. The neurologists at first called it Atypical Trigeminal Neuralgia and the ENT called it Myofacial Pain Syndrome – both of these terms did not sound correct to me. Allodynia sounds exactly what I am experiencing. I am so glad to finally know that this is something someone else has experienced other that me and that it has a name.

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