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Allodynia – it’s a real thing!

I have been suffering with migraines for many years now. About 5 years ago I started getting this area around my right temple which included the right ear and across the right side of my face which caused a lot of pain. At first I had trouble wearing my glasses – the arm caused this pain to flare up. Then it would also happen when I put anything into the right ear. It progressed to even touching these areas that would cause pain. Now the top of my scalp has this same problem and I have to keep my hair extremely short because my hair hurts me!

I have seen several different doctors about this – 2 neurologists, an ENT, 2 GP’s and none have ever said anything about Allodynia. Recently I went for a overnight sleep study test to see if I had sleep apnea (just another thing to rule out for the cause of the migraines). The registered nurse that I saw afterwards blew me away when I began to (once again) describe my face and scalp pain symptoms. She actually knew what I was talking about and had a name for it – Allodynia. I couldn’t believe it. The neurologists at first called it Atypical Trigeminal Neuralgia and the ENT called it Myofacial Pain Syndrome – both of these terms did not sound correct to me. Allodynia sounds exactly what I am experiencing. I am so glad to finally know that this is something someone else has experienced other that me and that it has a name.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • quilter laura
    4 years ago

    Yes, you’re right Absolutely glad to know allodynia is real and not “all in my head” although I wouldn’t wish it on anybody.

    Does your short haircut really help? I’ve been considering a short haircut, but when my hair hurts I pull it up tight in a ponytail or bun. For some unknown reason the ponytail pain relieves my allodynia and I’m afraid of losing that bit of relief. But I would shave it all off in a heartbeat if I believes that would help.

  • Jenn Lebowitz
    4 years ago

    Hi ZennedOutMigraine-

    Thanks so much for sharing your story! You’re right- allodynia is certainly a real thing, and you are not alone in experiencing it! I thought this article might be of interest:

    We’re so glad you shared, and that you’re part of our community! Thanks again. Wishing you our best!


    Jenn (Community Manager,

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