Cefaly Hurts

By kmtnmm

1 min read

To join a blog takes time. I don't have spare. But I am motivated enough to put this out there. For me the cefaly device has been VERY painful. Yes I get the pins & needles and the fluttering sensation. That is not pain. For me it causes bad pain, akin to a migraine. I want anyone else who has this experience to know that it happens.They are not imagining it. You don't have to subject yourself to this for weeks or months. There is no data about long term affects. People try it in desperation. I did. But it didn't work. That is upsetting...again, but it just didn't. Trust your own experience.

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Joanna Bodner Community Admin
I am so sorry to hear what a terrible experience you have had using this device! This is super discouraging to hear. I know many have found it to be effective & helpful, so I a again just so sorry the pain was so bad for you. Have you thought about <a href="https://www.fda.gov/Safety/MedWatch/HowToReport/ucm053074.htm" rel="noopener nofollow">reporting this to the FDA</a>? I see their site has some basic information on long-term data listed on their site in case you are interested in checking it out. You can <a href="https://www.cefaly.us/en/safety/data" rel="noopener nofollow">read more here</a>. Lastly, in case you are interested, here is some information below for use of the device. You can learn more about read more below. <a href='https://migraine.com/blog/cefaly-questions-answered/' target='_blank'>https://migraine.com/blog/cefaly-questions-answered/</a> <a href='https://migraine.com/blog/cefaly-migraineurs-review/' target='_blank'>https://migraine.com/blog/cefaly-migraineurs-review/</a> <a href='https://migraine.com/blog/the-girl-tries-cefaly/' target='_blank'>https://migraine.com/blog/the-girl-tries-cefaly/</a> Thanks again for sharing your personal experience with us. Have you found any treatment(s) to be effective? Best, Joanna (Migraine.com Team)
tess4 Member
I also recently tried Cefaly for only 5 days, and it’s not for me. It gave me more migraines and made me dizzy. I did not like the feeling even after the Cefaly was off my forehead. I will be returning the device.
1. Holly Harding Moderator & Contributor
 <inline-mention username="kmtnmm" user-id="3795959"/> Glad to hear that Emgality is working to decrease the severity and frequency of your attacks. You are obviously a very experienced person with migraine and have gained a lot of wisdom in the process. We are grateful you are sharing that wisdom with us. I, like you, have had migraine for a number of decades and have also learned that there is no one cure. It seems that this condition is about finding various approaches and combining them to create a more manageable existence. The trial and error of it all can be exhausting- and the side effects of some of the treatments can be just as, if not more troubling than migraine itself, as you describe. You are not alone in this and we're so glad you're a part of our community. Please stay in touch. Warmly- Holly <a href='http://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team 
2. Melissa Arnold Community Admin
 <inline-mention username="kmtnmm" user-id="3795959"/> I hear you. There's truly no one-size-fits-all approach to migraine, and if a treatment is making you feel worse than it's definitely not worth it! -Melissa, <a href='http://migraine.com' target='_blank'>migraine.com</a> team
kmtnmm Member
Hello Deh, No it did not lesson and it had no effect at all on my migraines. I appreciated the chemists personal help and so I trialled it for a long time, several months. I wanted to be thorough. I hated it. Now, with the wisdom of hindsight, it was just another dead end, a painful one, on a journey to minimize pain. Panadeine Forte (PF) and cold packs. For instant part relief I always keep 9 cold packs in the freezer and rotate through them. And don't let them bully you into thinking you'll get addicted to PF. I've been using it for over 20 years and I have never been addicted. I have not gone from 2 to 4 to 8 to nothing works. I use PF when cold packs don't kill the pain enough for me to sleep. I never use it otherwise and I don't like it, but it is the lesser of two evils. There is so much oversight by government bodies relating to how much you can get in a go and such like. That has simply meant I go to the doctor more. My doctor is in complete agreement with me that I am not addicted. Both my GP and neurologist affirm what I do. The people who make these rules do not have the pain I do. There is a documentary around 'The Crime of the Century' which vilifies PF. I watched it and was also appalled by the overt attempts to get people addicted to the drug. But as I watched it, a little voice was saying: "It's not all bad. If I didn't have access to it, my life would be pretty horrible."
1. Holly Harding Moderator & Contributor
 <inline-mention username="kmtnmm" user-id="3795959"/> Thanks again for sharing your experience with us. Glad that you've found success with the combination of Panadeine Forte and cold packs. We all have different reactions to the various treatments out there and therefore must find our own paths to managing our condition. What works for one doesn't always work for another. And what causes challenges for some, may be easy for another. This is why it's so important to have a healthy partnership with our doctor in which we can communicate openly about concerns and feelings related to the treatments we are trying along the way. The opioid crisis has definitely changed the way that many doctors prescribe and think about employing that class of drugs for migraine. Again, this is a personal decision and discussion that must be had between us and our specialist which takes our specific case into account. Always helpful hearing about real-life cases. Thanks for sharing. Warmly- Holly <a href='http://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team

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