Cluster Headaches

By sonny53

Last Updated:

1 min read

I have been dealing with these headaches for about 15 years now. I have been to doctors and they all tell you the same thing but these always start in October and last to January. but I do not know why I am a smoker and they tell you to quit but does choc. or any candy cause this problem. I'm a male at 53 years old but I have been reading other peoples stories and it tends to feel sorry for them it is a pain that some people just doesn't understand. I have heard about the piercing in the ear and would like to know if it really works. I do not have high blood pressure but the doctor put on a high blood pressure pill and gave me the pill sumatriptan and this pill really works. who ever read this I would like to know if they have ever had the shot of botox behind the ear and if it works.

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DonnaFA Member

Hi Sonny53, as with any treatment protocol, our members report varying success with both treatment options. You may be interested on the discussions on <a href="https://migraine.com/?s=daith&submit=Go" rel="nofollow">daith piercings</a> on the site, and this <a href="https://goo.gl/nDSrQw" rel="nofollow">personal account</a> shared by a member. Points that seem to lead to success is making sure your piercer knows that this is for migraine relief, and that they have experience. There is also a personal account, accompanied by a robust discussion, <a href="https://migraine.com/blog/the-injections-chronic-migraine-and-botox-diary/" rel="nofollow">around Botox injection points</a>. I hope you find this information helpful until some of our other wonderful community members weigh in. Thanks for being part of the community. -All Best, Donna (Migraine.com team)
tammy-lrome Member

Cluster headaches are in a completely different diagnostic category from migraine and have very different effective treatments. Although many people living with cluster headache are smokers, and there are many good health reasons to quit smoking, there is no evidence that quitting smoking will stop the attacks. Many of us with cluster headache have never smoked at all. Everyone has different triggers, but chocolate is usually not one of them. The most common trigger is alcohol. Bright/flashing lights, strong fumes, and weather changes are common, too. Because cluster headache is so rare, even a lot of headache specialists don't know how to treat it properly. The typical treatment protocol involves acute treatments using high-flow oxygen and/or injections of sumatriptan. The pills simply take too long to take effect. Treatment also involves greater occiptal nerve blocks, SPG blocks, and preventive medicines such as verapamil, topiramate, depakote, lithium, or melatonin. Please see our articles on cluster headache for more information. <a href='https://migraine.com/blog/cluster-headaches-explained' target='_blank'>https://migraine.com/blog/cluster-headaches-explained/</a> <a href='https://migraine.com/living-migraine/cluster-explained' target='_blank'>https://migraine.com/living-migraine/cluster-explained/</a> <a href='https://migraine.com/living-migraine/is-it-cluster-headache-or-something-else' target='_blank'>https://migraine.com/living-migraine/is-it-cluster-headache-or-something-else/</a> <a href='https://migraine.com/blog/headache-that-never-ends' target='_blank'>https://migraine.com/blog/headache-that-never-ends/</a> <a href='https://migraine.com/living-migraine/another-migraine-look-alike' target='_blank'>https://migraine.com/living-migraine/another-migraine-look-alike/</a> Feel free to write back with any questions about cluster headache. I have had cluster headache since 1999 and work as a full-time advocate for the condition. I'll be happy to help you learn more. I do get Botox injections for Chronic Migraine. The injections do help with the frequency and severity of cluster attacks, too. However, it is not FDA approved for cluster headache and may not be covered by insurance unless you also have chronic migraine.
exhausted Member

Sonny, get your doctor to get you oxygen to use for these attacks. After two years of trying so many things and feeling like life was never going to be better, oxygen use not only stops the pain, but used when in cycles, it stopped them.
Wendykd1 Member

I have been getting botox injections for years and as long as I stay on schedule they have helped me tremendously with Cluster headaches. I have at times in between gotten trigger point injections. I feel sure all if what I get is considered for migraines since I haven't had any trouble with insurance. You have to work around the system. I also have oxygen. I've done everything out there and I either couldn't tolerate the levels or it just didn't work for me.
1. Nancy Harris Bonk Member
 
 <inline-mention username="Wendykd1" user-id="4827655"/> Thank you for sharing your input and being part of our community! Good to hear Botox is beneficial! How are you doing today? Nancy Harris Bonk, Patient Leader/Moderator <a href='https://migraine.com' target='_blank'>Migraine.com</a> Team 
2. Rebecca C Member
 
 <inline-mention username="Wendykd1" user-id="4827655"/> Many in our community use botox saying nothing else is helping. Glad you have access to oxygen as well. Trigger point injects are a necessary treatment as well - helps my spine issues. Havent had them for migraines. Clusters are some of the worst ... wishing you all the best on this treatment regimen. Warmly ~ Rebecca (comm advc)
Wendykd1 Member

Thank you. I was just reading what someone had posted in regards to CH being seasonal. In actuality it is the time change and/or the changes in the amount of daylight. I was lucky to be diagnosed immediately and have educated myself immensely on these monsters. But as with anything else, being female most want to put in the category of hormones or psychosomatic! 
1. Cheryl Picerno Member
 
 <inline-mention username="Wendykd1" user-id="4827655"/> The time changes/daylight changes impact so many of us. I always thought disrupting our circadian rhythm was a bad idea. I think keeping things as they were designed is the best way to go! I'm glad you received a prompt CH diagnosis. Stigma with invisible illnesses like headache disorders is terrible. Being a female often makes that worse, as you mentioned. Some doctors want to put us into the most convenient box that fits their treatment ideology rather than treating us objectively and without bias. Thanks for sharing your experience. Warmly, Cheryl <a href='https://migraine.com' target='_blank'>migraine.com</a> team