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My constant companion

All our family suffered migraines. I knew my mum saw flashing lights, my sis had to lay down for days in a blackened room. I knew of their pain until I was 18 my first migraine came & I thought I was dying. I could barely stand, was sick etc.. as I got older they got worse. Until one day I woke up unable to move, walk, talk. I was terrified. A doctor was called, I was taken straight to the hospital and had a brainscan as they were sure it was a major stroke. I had to go for physiotherapy to help me walk etc. I was eventually diagnosed with hemiplegic migraines. I had my daughter 8 years ago and the hormones made it worse. I now get the headpains and stroke like effects and coma effects. Tremors, severe weakness right side with loss of strength, body jerks, loss of speech/slurred speech, etc. One minute you’re fine the next you’re in a pathetic heap hating yourself. I feel no one believes how bad this can get. I have heard over and over “you were fine a second ago” now you have snakes etc, how convienent…. stop putting it on etc. All I want for christmas is for people to realise I do not do it for attention, I dont put it on, I have no control over when it comes and its me that cannot speak. And it cannot be cured….
I cannot be fixed….

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  • Katie M. Golden moderator
    5 years ago

    You are right that there is no cure for Migraine. And it is not your fault. It took me a long time to accept this. For years, I searched to find out why my Migraines were so bad. I’ve not been able to find the “smoking gun” or a treatment that will miraculously cure me. I’ve accepted that I need to do everything in my power to deal with the pain, to try new medications and treatments and to just not give up.

    Hemiplegic Migraines are especially hard to manage and treat because of the sudden onset of severely disabling symptoms (not being able to walk, talk, etc). It’s also difficult because certain abortive medications like triptans or DHE are avoided due to contraindications. We have a Forum thread on Hemiplegic Migraines that you may find interesting and be able to connect with others who suffer from these as well. When those around you don’t fully understand your disease, you are definitely not alone.

    Best Wishes!
    -Katie Moderator

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