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Migraine Every Day

I will be turning 50 this year . I have been suffering migraines since I am about eight years old. I started my menstrual when I was nine . When I do get a migraine they last anywhere from several hours to three-to four days. They pretty much rule anything I do in my life.

I have been to many neurologist and have had many MRI’s – I have white matter and lesions in which my latest neurologist would like to keep an eye on due to the fact that my sister had a stroke at age 54 .

I am currently on a daily dose of 50 MG of Topamax twice daily and 10MG of Maxalt when needed . The only thing is I am only allotted 9 tablets of Maxalt per month because they are very strong and anymore than 9 per month can cause issues with the heart .

I have tried making my bedroom as dark as possible with room darkening drapes I have bought at Walmart . I have tried Aromatherapy heat packs . I have tried ice packs . I have tried rolling Icy Hot on my fore head and the back of my head for relief .

My doctor keeps telling me I may be a candidate for Botox however my insurance will not cover it.

My family and friends have suffered greatly due to the fact I am unable to be present in their lives most of the time because of my crippling migraines. I just pray to find a cure one day .

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  • Anne
    2 years ago

    Sounds like the Topamax is not working for you as a preventative. I tried it too and it didn’t work for me. There are many, many other options for preventative medication for migraine. I’ve tried Botox – didn’t work for me, anti-seizure medication that didn’t work, and a blood thinner that didn’t work. I’m now on Nadolol, a blood pressure medication that is working to lessen my migraines. I’m down to one migraine a week – two at most, which is a big improvement from where I came from. Don’t quit until you’ve found a good preventative! I had to go to several doctors, then several neurologists to find something that worked.

  • libra71
    2 years ago

    I feel like your leading my life..I’m a 46 year old woman living migraines for more than 15 years.I can’t sleep now because I have one and its 1:36 am..I too am on topox except 125 mg twice daily to be increased next month 150 mg twice when I see my migraine doc in CUH in cork and also under a neurologist in same hospital..A lot of travelling because I live nowhere near that but Dublin is the other option..I too are on the 9 tabs every because they are sopposed to be very strong.I also have legions on my brain and lots it along with white matter which I’m sure you know what that means.Lost count how MRI’S I’ve had and CTC scans and spinal ones .They thought I had m.s at first but they have to rule out everything don’t they I guess.But for ages I lived thinking I had but they made a mistake.The hardest part is missing out on all the family events and the looks I do get from some well meaning family members when ido manage to turn up to something and all the questions about my health.For along time I kept it to immediate family but when I started loosing weight etc it became more obvious but hey .You have to look forward to the rare good days..I have had 4 great days in a row now and I don’t what’s happening..Have headache now and couldn’t sleep and saw your so thought I’d say hi..Chin up pet 🙂

  • Joanna Bodner moderator
    2 years ago

    Hi there vampirella67,
    Thank you greatly for sharing your story. I so sorry to hear how much migraine controls your life and how frequently you are suffering. Please know you are not alone.

    You mentioned that your insurance will not cover the recommended Botox treatments. Did your doctor provide you with a prior authorization? Here are a few articles which discuss steps you can take if you’ve been denied.

    You’ve Been Denied: What Can You Do Now? –
    Botox for Chronic Migraines: Will My Insurance Cover It? –

    Please always feel free to reach out for support and thanks again for taking the time to share this. -Joanna ( Team)

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