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Fifty years of this and still going

I am an RN who is disabled ( by a judge!) by my migraines. I’ve had them for over 50 years.The first one I remember was when I was 8 years old. As I have tried most all of the meds over the decades, both preventative and abortives, along with chiropractics, acupuncture, radio-frequency nerve ablations, occipital blocks, Botox…..and the list goes on and on. In a few weeks I will go to the inpatient headpain unit in Chelsea,MI,run by Michigan Headpain and Neurologic Institute of Ann Arbor, MI.

As I get older, the migraines seem to be worsening in frequency and duration but not in severity. If I am not having a migraine, I am in the postdromal period, rarely having a day completely free of pain.

Two years ago I did the ‘Eat to Live” diet by Dr. Joel Furhman and had unprecedented good health for about 2 months and then it went down the drain.

Has anyone had experience with trigger nerve decompression being long lasting, or with laser surgery to get rid of bone spurs and cleaning up the cervical vertebrae? How about the ‘TENS”type of nerve stimulation with the electrode implants??

I can’t imagine the rest of my life being like this. It is hard on my family, too, especially my husband. How old is the oldest person you know who has chronic intractable migraine and cervicogenic headpain?

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  • Katie M. Golden moderator
    5 years ago

    I’m so glad you reached out. I personally have not had a nerve ablation, I wasn’t a candidate for nerve decompression surgery and while my neck seems to be a constant issues for me, I’ve not had surgery. So I can’t give you first hand info- sorry!

    But I do have info on MHNI that is very timely and will help you know what to expect.We have a thread in our Forums section that talks about patient experiences at MHNI. One community member was just discharged last week and gives a great description of his time there. You could also ask him questions too. I know he’d be happy to help.

    I think that going through the program at MHNI will help in deciding if any surgical options are right for you. I hope you have a good experience and get some relief!
    -Katie Moderator

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