I'm one of you.
I had meningitis (viral) when I was 9 years old. From that episode on, I have been suffering from migraines. I've quit calling them headaches, because they aren't. They are migraines. I am sick, my head hurts, light hurts,sound hurts, vomiting from being sick makes it hurt worse, and nothing seems to help.
I am on butorphinal spray (please spare me from the bounce back information and the addiction stuff, I've heard it all before). It's the only thing that works, from time to time. I have tried everything. I'm too the point that if someone told me that standing on my head in a bucket of warm bull piss would help, I'd try it. Cold piss as well. It's amazing, the insurance will pay for the nasal spray, which I know is expensive, as I at one time had no insurance and had to pay for everything out of pocket. Believe me, I know how lucky I am to have insurance now. I am grateful.
However, they will not pay for the botox injections that my neurologist truly believes will help me. Apparently, I do not have proof that I have migraine headaches as least 14 days a month. How do they know? I have documented it, sent it in, my neuro wrote a letter... Some pencil pushing geek has decided that I'm not a candidate. I don't wish any ill will on anyone. However, I wish the people that make these decisions could experience what we go through for just 30 seconds before they decide how our lives should be lived.
Have you taken our In America Survey yet?