Invisible illness

I have suffered with chronic migraines since the age of 11 years old. I was always told throughout puberty that I would grow out of having chronic migraines. However I am now 22 years old and my chronic migraines are getting worse, my life is being ruined because of them, I’m at the end of my tether and I don’t know what to do next.

Over the past 12 years it’s just been popping pills which come with there share of side effects. In 2014 I tried Botox on the NHS which reduced the attacks for about 1 year. I’m now at the point where I am desperate and is scrapping money together to pay to see a specialist in London.

I have never felt so desperate. There is a constant fear hanging over me all the time ‘am I going to get a migraine’. The amount of days I have to have off work is embarrassing and frustrating because I love my job yet I feel there is a massive barrier in the way because of my migraines. I try to keep positive but sometimes I just cry thinking is this what life is all about. Pushing yourself from one day to the next, suffering daily, no social life, bed bound and depressed.

To top it off I believe that unless an individual has experienced a migraine themselves or knows someone who suffers they have very little understanding. With my migraines they begin with the aura, telling people you can’t suddenly see doesn’t always go down to well as they don’t understand that a migraine is not ‘just a headache’. This is the same when having take a couple of days off work to recover ‘just for a headache’. It really angers me and I’d love to scream and shout about it but it’s my invisible illness, people can’t see it to understand the pain, frustration, exhaustion. I just wish I could get some relief.

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