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It’s Just A Headache…

I feel like I am lucky that my migraines didn’t start until I was 26 years old. I’d had headaches before, but that was it. In fact, this all started with just a headache. Initially, I could make the pain stop with aspirin and a nap. Then it was a Tylenol 3. Then nothing would take the pain away…. and finally it turned into Chronic Daily Migraine, Chronic Daily Headache, Cluster Headaches, and Hemiplegic Migraine. I was a very active woman, married to a military man, living overseas and loving life. No one could find a cause for the pain, nor could they find a cure. Every doctor I saw ran the same tests as the ones before, with the same results. They could find nothing wrong with me, yet the pain continued. We eventually got sent home from overseas, and we spent the rest of my husband’s career in the states, near large hospitals. My husband has been my rock, my advocate, and my hero. He accompanies me to every appointment, holding my hand, asking questions, and keeping track of my meds.

I don’t tell a lot of people about my condition, because when I first shared it with friends, they couldn’t understand how I could qualify for Disability for “just a headache”. They said I was “lucky” I didn’t have to work, and they would love to stay home and get paid for it. My own stepfather told me that he gets headaches too, and I need to stop being so dramatic. I try to explain, but I get cut off. I have gotten to the point where I do my best to hide the pain, force myself to do more than I should, and only let my husband know I’m in pain when I can’t possibly hide it anymore. It’s very isolating, having to avoid things that trigger the pain. I don’t have any close friends, because I keep having to cancel plans.

I have tried every medicine, taken every test, even did Botox shots (My fourth round is next month, still no relief) and nothing changes the pain. I work very hard to stay positive, but there are days… Well, there are days. I cannot tell you how much respect I have for everyone on this page, and how much gratitude I have for every uplifting article. It keeps me going, keeps me hoping.

Thank you.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Katie M. Golden moderator
    3 years ago

    Karen, so sorry your going through this.
    I always tell people to give it at least 3 rounds of Botox before you swear it off. I know you’ve already started it, but this article may help:
    https://migraine.com/blog/botox-basics/

    You are so lucky to have a husband who is so supportive. I know how difficult it is when someone you love dismisses your illness and your pain. Sometimes sending them an article or another person’s account of their Migraines can help them slowly become more sympathetic. Just an idea, but of course you don’t need negativity in your life while you are struggling so hard.

    Best wishes!
    -Katie
    Migraine.com Moderator.

  • Karen author
    3 years ago

    Thank you so much for the botox link. It never hurts to review and I always find something new when I come to this website. Thank you for the encouragement as well. Some days are worse than others, and it always helps to have someone understand what you’re going through. Thank you for all you do to keep this site the most up-to-date and informative place for migraine sufferers like me.

  • Jenn Lebowitz
    3 years ago

    Thank you SO much for sharing your story Karen – it takes a lot of strength to go through what you’re going through. You’re certainly not alone here – we welcome you to come by any time!

    Best of luck with your Botox next month – please keep us posted on how you’re doing! We’ll be thinking of you.

    Thanks so much for being part of the community.

    Best,
    Jenn (Community Manager, Migraine.com)

  • Karen author
    3 years ago

    Thank you! This website is a life saver for me. Thank you for all you do to keep it the best resource on the internet for migraine sufferers.

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