Migraine life

My name is Colette and I'm 31 years old and have had migraines since I was 6 and chronic daily migraines for 5 years.
My whole life is dictated by my migraines- my activities have stopped, I can't work, I can't go out, or have too much fun since it will trigger a horrible migraine.
I am on disability because my migraines are so severe. My migraines are normally accompanied by an aura, light/sound/smell sensitivity, and nausea.

But now I have a new "symptom" that is extremely scary- I have spasms that cause my whole body to twitch or jerk. It starts with my head jerking back like somebody attached a string to the back of my skull and pulls suddenly. Then it advances to my whole body twitching painfully.
My doctor says it a "migraine phenomenon" and could potentially turn into seizures.
This new symptom is very concerning and adds another layer of stress to an already super stressful migraine life.
I am also a single parent to a 11 year old son who not only suffers from migraines as well but my son is a cancer survivor with 4 years in remission.
I feel like my migraines are past the point of finding an effective treatment but I hope I (and my son's doctors) can find something that can help my son's migraines.
Thank you.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.