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Lifetime Club

Somewhere along the way I must’ve signed up for the lifetime migraine account, and I can’t get out of my contract. I started getting these miserable things at 19 years old. My first M with aura , I thought I had food poisoning because it was right after I ate a big Mac. It’s been all downhill from there.

I’ve tried everything in my journey Short of Botox. They come in clusters, where I have a run of them ,many in a month and then they’ll disappear for a month or two. #BAL seems to be the worst time of year. So I take an additional Zyrtec every day during this time. I’ve had limited success with Maxalt and I am on a daily dose of amitriptyline every day. The amitriptyline over the years have really helped. When I got pregnant I stopped taking it because it’s dangerous. I figured I was OK not to go back on it. But after I gave birth to my daughter within a month the migraines were back and worse than ever. It was right before Christmas and every store I went into triggered a migraine, I put together that it was the florescent lighting ,which continues to be a huge trigger for me. I went right back on the amitriptyline, and that knocked them back. I could long go into the horror stories, like so violently throwing up that I broke the blood vessels in my face and it looked like I had been beaten up. Not to mention all the other times like driving, taking care of an infant , or hiding in a closet at work. Laying on the floor in the bathroom crying in the fetal position, Praying to God a loaded gun would fall from the sky so I could stop the pain. If I had to be thankful about one thing is that I do get an aura, that way I can get the medication in me when I need too and prepare. The Auras last about a half an hour and I can barely see it all.

My doctor said he never knew anybody over 55 that’s past menopause that gets migraines. I told him well you’re about to see it. Because they have not stopped.
Zoey

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Comments

  • Luna
    8 months ago

    Your doctor must have a limited view. There are too many of us over 70 still in the lifetime club of migraine. Mine have changed but not gone away.

  • Delilah
    9 months ago

    I started getting migraines when I was around 26 it was long enough ago that I was diagnosed with sinus headaches would take OTC for that when that stopped working was diagnosed with everything fibro arthritis chronic fatigue etc etc. Read female problems they always associated it with my cycle which it never was associated with and they told me once I went through menopause I too would not have any more migraines a big lie it is unfortunately a lifetime club one I wish I was never a member of but I also know now that I always will be and with the new ridiculous regulations on not only insurance but also medications It has certainly made it more difficult and anxious for me and that certainly does not help this condition the whole thing is infuriating

  • whitedogpurple
    9 months ago

    My family doctor also said that he didn’t know anyone over 70 with migraines…I’m almost there so he’ll soon know one person!

    My theory about that is that folks who do still get migraines as they enter the senior portion of their lives are usually retired and are able to go to bed when they have an attack.

  • sgirl
    9 months ago

    You have not tried Botox? It was a game changer for me. Between it every 3 months in my face, scalp, and down neck it helped dramatically. That and the sinus spray Migranal. Of course along with eliminating all triggers (alcohol, perfumes, artificial sweetners, etc) and taking supplements. Magnisium, B Complex, and Butterbur. I also buy lots of ginger stuff (tea and natural ginger ale). These don’t completely prevent them but shorter duration and not as vivid and painful.

  • Joanna Bodner moderator
    9 months ago

    Hi there @zoey03,
    Thank you for sharing your personal journey with migraine with us. I absolutely hear your frustration. Living with a chronic health disease that is not only terribly physically draining, but emotionally as well it is so hard to keep picking yourself up day after day. I know you have been dealing with this for so long, but please try to not give up hope for better days ahead! Maybe these articles with provide you with a bit of comfort as you mention having tried so many different treatments. – https://migraine.com/living-migraine/virtue-not-having-tried-everything/ and https://migraine.com/blog/tried-them-all/.

    As we do with all our members is to encourage them to get the care, treatment & support they deserve! Are you satisfied with your doctor? https://migraine.com/getting-help/is-it-time-for-a-new-migraine-doctor/. Finally, the emotional toll migraine takes can be overwhelming. While I realize you are likely using the “loaded gun” comment as a means to stress how absolutely frustrated & done you are with dealing with your migraine disease, I also realize that this disease may cause dark thoughts. I thought I’d share this resource and please know there is always somewhere to turn for help. https://migraine.com/blog/suicide-safety-plans/. You can always contact the 24-hour Suicide Prevention Lifeline at 1-800-273-TALK (8255).

    Finally, I realize I have shared many resources with you, but I also wanted to let you know that we have a forum page dedicated to those that are 50 years & older living with migraine in case you wanted to join in on any of the conversations there. – https://migraine.com/forum/fifty-years-older/.

    Know you are never alone here!

  • zoey03 author
    9 months ago

    Thank you for your info!

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