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Mayo clinic – what should I expect?

I have had chronic daily headaches over persistent new daily headache for the past eight years. It started after having surgery where I had a tumor in my pituitary removed and I had us undiagnosed spinal leak for five days. I had it patched but I don’t think they really patched it completely I was on disability for three months and return to work on different medications through the past eight years.

I have tried so many different medications and natural therapies including Topamax, antidepressants, Neurontin, blood patches, glue patches, acupressure, craniosacral therapy, physical therapy, massage, psychologists, occipital nerve injections, and now I’m now I decided to go to the mayo clinic to see Dr. Dodick in Phoenix Arizona.

I am scared because most treatments have made me worse. I am wondering if anyone can tell me what to expect at the Mayo Clinic and if anyone had good results afterwards.

Any advice or feedback would be greatly appreciated 🙂

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  • Katie M. Golden moderator
    5 years ago

    I’m excited for you to be going to Mayo. I have personally not been there, but have heard good things. Seeing a specialist should be helpful in creating a new treatment plan. Ive been to the Jefferson Headache Clinic and I’ve been happy with them.

    I suggest you check out our Forums section, where many patients have described their experience at different headache clinics including Mayo. You can also ask specific questions of these people.

    Good luck and let us knowhow it goes!

  • Mpatient
    5 years ago

    Lisa, how was the Mayo clinic for you? Live here in Phoenix and wondering if I should go in. Thx

  • helplessNJmom
    5 years ago

    I just wrote a lenthy letter to Dr. Dodick pleading with him to help my son. We have been to Jefferson in PA and Michigan Head Clinic with no help. Please let me know how you do.
    Good luck,

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