Migraine symptoms

I have had migraines for at least 45 years now. It has been difficult to see how very few really “get” what migraines are all about, generally speaking. It has been hard for me as a man to have a disease that affects women mostly.


I cannot think of a way that migraines have not impacted my life. They have affected my marriage, my ability as a dad, my relationships with church members, my work/co-workers, travel, eating, illness and pretty much everything else in-between. It is a very hard disease to live with since pain is and always has been (for me) a part of life every day.

I was wondering whether any other males have had testicular pain in combination with migraines. If so, please share your experience with me so I can know I am not alone. So many things about migraines stink and there are enough times when we each feel isolated and alone. Thanks.

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Comments

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  • MoeReese
    3 years ago

    I am a man, born in 1950, who has suffered migraines since 1992. Fortunately, I was already long divorced, and have no children. Therefore, I have not had to deal with problems involving such relations. My parents and siblings were/have always been understanding and supportive, as my mother suffered migraines in her early adult years. Friends from childhood have also understood, but I have not developed new “deep” friendships since the onset.

    My migraines have occurred in addition to a constellation of hidden birth defects (brain [three surgeries], heart [two surgeries], liver, and adrenal glands), some of which threatened my continued existence. So, even though my migraine syndrome has been like an incredibly disruptive dragon, it does not quite compare to some of my other issues. Add in chronic back pain, from an automobile accident, and it lends credence to diagnoses of PTSD and depression.

    In the past few years, in addition to the pain and nausea of migraine headaches, I have suffered acute pain in my scrotum (but not in my testes). It began at the same time that, I developed the secondary (or perhaps tertiary) sexual characteristic of hair on my scrotum, along with nose and ear hair, and a rising forehead. It has turned out to be a reliable migraine indicator, which is useful, since I am rarely aware of a migraine onset, until it starts to rage.

    The surprise is that the pain is so great and so localized. Again, there is no tenderness in my testicles, only in the skin of my scrotum. It is so bad that I purchased nightshirts (from VermontCountryStore.com) so that I can avoid wearing underwear. Even then, I have to be careful how I sit, lie down, or “adjust” myself.

    If you think about it, is it possible that what you described as “testicular” pain is actually “scrotal” pain? Either way, I suspect there are more of us.

  • Steve Lloyd
    4 years ago

    I am a 63 year old male & have suffered with migraines for much of my adult life. I just retired as I finally decided I can no longer fight migraines & keep up a work schedule. I have 1-7 migraine days per week with an average of 2-3. Foods & environmental factors ( scents, barometric changes ) seem to be my main triggers & preventative meds have only been marginally effective. I have never experienced testicular pain with my migraine episodes.

  • Luna
    4 years ago

    Since your post I’ve realized I am blood related to at least 3 men with migraine, marriage related to 2 and know 5 others. This “invisible” disease has such a stigma it must be very difficult for men in this critical world we live in. We may just be mostly a bunch of women but we do relate to what you go through. As Katie said, your perspective is definitely welcome.

  • Katie M. Golden moderator
    4 years ago

    Seniorprez,
    So glad you found us! We love it when men are active on the site too!

    I’ve searched quickly for your symptoms but haven’t been able to find much info (I’m sure you’ve done the same). Is the testicular pain new or has it always been an issues? Do you find that it occurs only when having a Migraine? Or does it appear at other times as well?

    You may also want to post this question in our forum section under General Discussion to see if anyone who frequents the site ever has these symptoms.

    Sorry I couldn’t be of more help. If you haven’t mentioned this to your doctor, I encourage you to do so.

    -Katie
    Migraine.com Moderator

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