Most doctors are very unhelpful

I have had migraines since I was around 12. They started around the same time as my menses. A couple of years ago I learned one helpful thing. I’m allergic to wheat, probably because it’s been genetically modified. If I eat anything with wheat in it I WILL get a migraine. Of course, sometimes I get them for no discernible reason at all.

I have found most doctors to be amazingly unhelpful. They don’t like to give painkillers, the only thing I’ve ever found that works after trying everything else under the sun (I’m 69). The only thing I haven’t tried is botox. Don’t ever use Reglan. It has horrible effects. I finally found a doctor who gives me painkillers which I am extremely careful with. I divide 2 capsules down into five. I also take topamax which is supposed to keep me from having as many migraines. I don’t know if it works or not.

I went through hell with my migraines. For a few years I had no relief at all. Anyone who says they can get relief for their ‘migraines’ by taking an excedrine or an aspirin or by lying down – does not have a migraine. Real migraines – if you don’t get relief from them – can make you wish you were dead. I understand there are some bad statistics on suicide attempts among migraine sufferers too.

I’m not even going to write about the actual history of my migraine suffering. It is too awful and makes me start too cry. I just pray that my doctor does not decide to retire soon. He knows how responsible I am with my medicine. Finding another who would give me the medicine – Fiorinel with codeine – I already know would be very difficult. They don’t seem to care if we’re in agony. They think they are God. They are just stupid. I found out how stupid doctors really are when my daughter (a child prodigy) became a doctor. Well, SHE’S a GREAT doctor! She’s not a migraine specialist though.

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Comments

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  • Nancy Harris Bonk moderator
    6 years ago

    Hi,

    It sounds like you know what some of your triggers are like wheat and hormones which is great. Avoiding those, (hormones fluctuations are difficult to avoid)and other triggers may help reduce the number of migraine attacks one has. To find out what your other triggers are you may want to keep a migraine journal. With all the different apps out there it is easy to do today. The Migraine Meter from Migraine.com is one such migraine journal you could try and here is the link for it; https://migraine.com/migraine-meter/.

    Some doctors are just not knowledgeable enough about migraine and headache because they really don’t have the time it takes to devote to it. One of the best things we can do for ourselves is see a doctor who is board certified in headache medicine and there are only around 418 of them in the U.S. For more information on migraine specialists take a look at these two links; https://migraine.com/blog/looking-for-a-migraine-specialist/ and
    http://migraine.com/blog/how-are-migraine-specialists-different/.

    One reason doctors don’t like to prescribe opioid pain medication is it only masks the pain, it does not stop the migraine process. Abortive medications actually stop the migraine process these include triptans and ergotamines. Here is information on opioids; http://migraine.com/blog/the-confusion-about-codeineopioids-and-migraine/.

    I hope this helps,
    Nancy

  • zippy36
    6 years ago

    I too take either Fiorinal or Fioricet with codeine. I have tried other medications with terrible side effects. I have a very sensitive system. I too am terrified that my medication will be taken away from me due to the crack down on pain medication recently. If I take my fiorinal at the first warning signs of a migraine, I usually either avoid or lesson the severity of my migraine. I am lucky to have physicians assistant who takes such good care of me. I am 50 years old and in my life time I have found that female doctors have been more sympathetic with me about migraine. I just wanted to leave you know I feel the same. Take care.

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