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My head

My medication includes, Fiorinal 1 to 2 capsules every 4 to 6 hours as needed for pain, Compazine 5MG 3 times a day. Vitamin B2 and Magnesium Oxide. Ice helps the pain. Sunglasses helps my eyes, Quiet, no fragrances NO vanilla or shay butter, strong smells. No Bright lights. No Sharp sounds.

The pain never goes away. When it gets unbearable I stay in my room. I am almost use to all of the pain, one of my nurses said that I would get use to it. I am thinking she is right. I have been to the Doctor on a weekly basis to receive Toradol shots. This helps when the pain is unbearable. When the paralysis on my right side is really bad I use a cane or walker.

MY HEAD Pain….
a. Bad days when it is cloudy
b. When I go from sitting to standing I black out, I have had to lay down to keep from passing out on a few occasions.
c. Tingling pain on right side of my head
d. Right side of head above my ear I feel something, when I get upset I feel something shut down like my veins are closing off. Kind of behind my right eye too. Then my nose starts to run like crazy on the right side
e. Cold, Sharp pain from behind my right eye to the back of the head Above right ear
f. Behind right eye, eye weak , eye brown and face numb, face numb on right side
g. Precaution feeing on right side of face
h. I feel like I have been Cut in half
i. Can’t feel bladder or bowel, I don’t always know when I need to go to the bathroom, but never lose control
j. Can’t think, can’t speak words
k. Confused, can’t concentrate
l. Hard to breath when head hurts
m. Nauseated all the time
n. Blurry shape in right eye
o. Can think the words but can’t speak them

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Comments

  • TiciaNiemi author
    8 years ago

    Hi Pamela

    Thank you for your input. I am not a new Migraine sufferer. I have had them all my life. I have what is called Occipital Neuralgia that is what is causing my constant pain. I am on my way to Stanford to get this corrected. Actually the Fiorinal, WHEN used correctly is a wonderful medication. I don’t have rebound headaches. I don’t think I have ever really just had a headache. I get Migraines. The prescription reads 1 to 2 cap every 2 to 4 hours. But I only take it once a week or so. I also have other blood disorders that prevents me from taking most all narcotics, so I am very limited on what I can take. But the Occipital Neuralgia is what the real problem is, so we are going to see if we can get that taken care of at Stanford. Once we get that under control I think my migraines will be few and far between. 🙂

  • Mark Kilen
    8 years ago

    Hello Tricia, My name is Mark and after reading your story all I can say is I’m sorry that your experiences with migraines are that severe. I sell a juice called Xango that may help you. It’s an all natural juice made from mangosteen fruit. I have personaly heard many stories of migraine relief and in a lot of cases virtually eliminating them. I’d bet your willing to try anything new so if your interested get back to me. Thanks

  • Pamela
    8 years ago

    Please read more about Fiorinal, which is known to cause rebound headaches. No wonder you’re having them so constantly! I’m told it’s banned in several other countries for this reason. I have used it for years but had to learn to find other treatments between doses–if you take it for more than a few days a month you are guaranteeing more headaches.

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