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The Non Stop Headache

I am 41 years old. I have had migraines my whole life. Yet the last ten years they have became chronic. I am at my wits end with the Migraines! I have tried all the preventative medications. These medications have all failed to bring any prevention or relief from the migraines at all. have tried ultra sound, massage. acupuncture, electrodes, cupping, reflexology, deep breathing, yoga, counseling writing and exercise.

 
I have seen several neurologists. My GP is an absolute God sent she is with me all the way. Several cat scansand MRIs. Food diaries; pain diaries; Keep track of my pain levels. Allergies I take Benadryl for any allergenic that I come into contact with in every day life.

I know that part of it is stress;(Mother-in-law)and also that there is black mold in our home. Finances being limited is making it tough to fix everything but we are getting to the bottom of the problems.

I take relplax, immetrex, Motrin liquid gels; Tylenol and gravel or go in and get a shot usually of morphine and gravel or go in for intervenes of DHE for pain relief.

One definite contributor is the pressure systems.

I am very diligent in trying to figure out away to live with the Migraines. It is different and aggravating but it is a daily process of trying and recording daily routines.

I am still working on what is working and what is not working.

Thank you

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Comments

  • Gretchen
    5 years ago

    Lauren, I am 46 and have gone through the non stop headache as well. For about 8 years I always had some degree of a headache. Migraines started for me when I was 22, but got increasingly stronger and more frequent until my late thirties when they were here always. I tried everything you listed, am on two full time medications, Topamax and Nortriptyline and take Relpax when I am suffering from a serious migraine that puts me in bed. The one thing that has brought me serious relief is cutting Gluten out of my diet. I mean ALL THINGS WITH GLUTEN. There is gluten in alot of our food these days. When I started this diet, after 3 days I woke up without a headache for the first time in almost a decade! It was glorious. Now, I still get plenty of headaches, but because I have headache free days, I am starting to exercise, which is helping me to feel better and feel a little more in control of my life. I am hoping to cut out all caffeine and then sugar next. Diet is a HUGE FACTOR. Just try it for a month. I mean, everything that you eat – Soy Sauce has Gluten in it!! Salad Dressing has Gluten in it! Gluten is an inflammatory and causes inflammation which ( I think) triggers the headaches. So, make a radical change to your diet, and I hope you have some improvement.

  • Lauren
    5 years ago

    What do you do when you have seen a headache specialist already? What’s the next step then? What about when your headache specialist that you’ve seen for five years+ has given up on you? When they no longer know what to do with you? (PS they are the director of the headache clinic at a major university in a major city). When you have tried all of the things that Angela has tried–had MRIs, scans, tried multiple preventatives, multiple acute attack medications, acupuncture, chiropractic, massage therapy, are seeing a therapist for the depression & anxiety that comes along with the chronic headaches and migraines. I too am at my wits end. I am financially in capable of many of the extreme treatments available such as surgical implants. I’d love to go to someplace such as Thomas Jefferson University and check myself in, but I’m financially incapable of doing so. Due to the headaches I’ve either lost jobs or had to quit jobs. At this point I work part time because I’m not able to hold a full-time job reliably. Due to that, I do not have good insurance-only have Medicaid– which I am very thankful for. But with that, my options are extremely limited. Your thoughts?

  • The Migraine Girl moderator
    5 years ago

    Lauren,

    You’re in a really tough spot. I’m so sorry to hear this. Calling a couple of migraine/headache treatment centers (NOT the doctor who has stopped pursuing treatment with you) and talking to them about financial assistance may also be an option.

    For now, there are some free things you can do that will help with your stress levels and maybe your migraine severity. Try to go on gentle walks (30 minutes works) a few times a week, and carry a water bottle with you and drink from it WAY more than you think you need to. Simple lifestyle changes (not classes you take, just free things you can start doing right NOW) will improve your outlook and perhaps your health. Keep us posted; I do wish there were more options for those of us with limited funds.

    Take care,
    Janet G.
    “The Migraine Girl”

  • Katie M. Golden moderator
    5 years ago

    Angela,
    So sorry you’re going through this. You’ve definitely been extremely proactive in managing your headaches.

    I’m glad you feel that your GP is helping. It’s so important in this process to have a doctor you trust. However, since your Migraines are chronic I encourage you to find a Headache Specialist. This is a neurologist who only deals with Headache patients. Regular neurologists split their time with patients who have Alzheimer’s, Parkinsons and the like. A headache specialist can really be aggressive about your treatment. Here is information on how to find one near you:
    http://migraine.com/blog/how-are-migraine-specialists-different/

    All the best to you!
    -Katie

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