Occipital nerve stimulator for migraine

Hello,

I have had migraines for the past 16 years and no better now then I was then. I have tried everything that is possible and then some. I also go to the Diamond Headache Clinic for the past 16 years. It seems like I am just on a rotating circle. I usually go inpatient about every 3 months for about 14-18 days. Then i usually leave with about the pain scale of a 5. Which I have leaned to accept.

I participated in the research study for the occipital nerve stimulator (which is now FDA approved for migraines). When I first got it placed I was like a new person. I was able to go back to work, after being on disability for 6 years, and i thought life was going to get better. After 2 months it quit working so they went in and found that a wire broke so they replaced it. After that it just wasn’t the same. After 7 more surgeries to try and get proper placement I decided to have it pulled and withdraw from the study. I later was referred to a neurosurgeon who placed another one in. Still doesn’t work. There is just too much scar tissue to get proper stimulation. So i am back to my original misery.

I am still working but i don’t know for how much longer. And now things are just really bad. My dad passed away last week unexpectedly and I am really having a hard time dealing with that. I know that GOD doesn’t give you anything that you cant handle but when is enough enough. Its just doesn’t seem to be getting any better and I am at a loss on what to do next. I feel like I am just going though the motions of a daily routine and then when I go to bed I cry myself to sleep. Crying because I miss my dad and because my head just hurts. I gave up going to the ER because they just make me feel like a drug seeker. I am using all my injections twice a day which are either Norflex, benadryl, toradol, nubain, triple shot or dhe.

So if I ever get my migraines to break I am going to rebound like crazy. I will be getting admitted back into the hospital in March so if I can just hold out until then. I keep praying that tomorrow will be a better day that’s about all I can do right now.

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