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Ophthalmic Palegic Migraines

I have very rare migraines. Only three times in my life have I had one of these headaches. The first time was 29 years ago, the second time was five years ago and now. My current headache began August 11, 2011. When I woke up August 12 not only was headache ragging, but my right eye was closed just as it had the other two times. My PA put me on a round of steroids which I took for two weeks. My headache completely subsided after three weeks. My eye remains shut. If my eye were open I would have to patch it because the right eye is not tracking. It is cocked to the right.
Steroids are the only thing that makes the pain stop.

Four years after my first headache 1986 I became part of a study Dr. Couch and Dr. Konrad of SIU School of Medicine were conducting. The MRI was a new diagnostic tool. They discovered that I had a deviated septum. Dr. Konrad E.N.T. When Dr. Konrad did surgery he discovered that the back of my right eye was covered in polyps which he removed. He said that the polyps were a result of sinus and allergy disease. I know I am allergic to mold, corn pollen, corn dust, cat dandruff, cockroach dust, and box elder.I take Zyrtec every evening, Asmanex, and a new nasal spray that destroys fungal infections. I have taken allergy shots as an adult and a child. It is now September 9, 2011 and my eye is still closed.

I admitted to Barnes Jewish Hospital in St. Louis, Mo five years ago while I was experiencing my migraine. They did every imaginable test and came up with it was the same thing that happened to me twenty-five years before. They gave my headache a name, Ophthalmic Palegic Migraines. I am hopeful my eye will open again soon.

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  • Stephanie Suter
    8 years ago

    hi.., I’m stephanie.. I’ve been diagnosed with optic palegic migraines as well.. I’m 22 years old.. my mother first noticed this happening to me when I was about 3.., of course.. being that young and not being able to explain what was wrong was very difficult.. I had medical insurance at the time., so she took me to a neurologist in Lexington, KY.. he was the first to diagnose me with opm.. soon after that we moved to another state.., and I was sent to another neurologist.., dr ijaz ahmed.. he’s located in huntington wv.. he’s been the best so far.. unfortunately., I lost my medical card after I turned 19 years old.., and haven’t been back.. my right eye droops., I have to take prednisone to help open it back up.. you’re not alone in this. I thought I was the only person in this world who had this horrible condition.. but.., I honestly know what you’re goin’ through.. I had to be taken to the ER yesterday due to my migraine..

    i’ve missed tons of school, church events., not been able to socialize the way I want to.. and I know that there has to be a cure for this.. one of these days we’ll be able to live pain free.. I’ve been tryin’ to do it since I was 3 years old.. god help us all..

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