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14 yrs ago at age 50 starting getting daily migraines out of the blue.

migraineur_mzt7oz's avatar image

By migraineur_mzt7oz

2 min read

I started having migraines after my son was born 35 years ago. Only had them around menses and ovulation. Cafergot was AWFUL. Then asthma like inhaler came out and it was great but it went off the market due to problems at plant.

Then, at 49, I had very few migraines and thought they were going away at menopause. Then one day I came home with a migraine at the base of my head that never went away. Imitrex did not work and it was not due to MOH as I had used very little the year before. My docs were confused so I just went into a dark room with ice on my head for 7 years until I tried 2 Medronic Neurostim. The first one worked but the lead fell off the wire and they took it down. A year later they put a different hook up buy it never helped.

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I finally went on morp for 5 years & was ok. My husband kept it in a lock box. I was up to 500 mg a day but I was functional. Last Nov., I voluntarily went off morp to try the DHE infusion at the Headache Clinic. They put a light sensitive migraineur in a bright room and a beeping stat machine in my dominant arm and everytime I moved it, it it beeped. NO SLEEP, another sensitivity. I came out with worse headaches than before and different ones. No more icepick headaches but a shooting gallery in the back of my head.

I finally had 2 occipital nerve blocks and they calmed down but I was the one to diagnose it as Occipital Neuralgia; the shooting stabbing pains were the clue. Is this similar to Trigeminal Neuralgia? I had no pain control for 7 months & the stress has caused SEVERE muscle pain. I meditate 5 hrs a day. Had a second Botox and that has helped somewhat but still have night sweats and muscle pain. Feel a constant chill all over yet even if I sweat a little I begin to shiver and shake and can't sleep.

I am going back to a vitamin regimen that once worked but stopped for some reason. Feverfew, B2, Co Q 10, etc. But now I hear that histamine containing foods like milk, yogurt, avocado, chick peas, lentils can cause migraines also. I knew alcohol was bad but not the rest. HELP

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