Severe Basilar Migraines, Severe Interstitial Cystitis, chronic fatigue, etc.
I have had them for 25 years. I have not found anything that works. I would like to have others respond that have this kind of headache . What have you tried? Does anything work for you? Does anyone know of support groups or good books for people like me that have multiple serious and disabling conditions that are rare and continue to worsen with no successful treatment. My health is really declining and at this point the doctors do not expect a long life expectancy for me. I accept that but feel alone. I'm sure there must be a support group for people with unusual conditions that can laugh, cry, and share common feelings such as grieving for the shortened life expectancy and typical phases people go through. I am home bound a lot but even a book or online group would be nice. I know many people are in the same situation but I personally don't know them. I am 55 years old. Thank You for taking time to read this and I hope and pray I will get some great and helpful responses. Blessings! Tamara
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